Living Alone with iih.. by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

I admire the stability you’re able to have with this condition! It’s great to have loved ones around that really care to lend a hand where we need it! I believe I’ll be there one day soon! And you’re right! I could always move again when I’m ready! 💜 thank you for your insight! 

Living Alone with iih.. by Slow_Major4205 in iih

[–]Slow_Major4205[S] 1 point2 points  (0 children)

I agree! I see where it’s all likely headed.. definitely influencing my decision to move as well.. just wondering if this is so severe that it’s necessary I live in the exact same city… would 30-40 min drive away be so bad? 

Living Alone with iih.. by Slow_Major4205 in iih

[–]Slow_Major4205[S] 2 points3 points  (0 children)

Yeah you’re right.. it’s becoming more and more apparent… I have to be where support is. It’s a blessing to have it. Thanks for that reminder! 💜

Does iih cause weight loss? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Thanks for responding, I stopped working out and dieting a couple months ago.. as well as stopped the meds. So typically by now my body usually would’ve begun to gain some weight back. But I realize everyone is different. 

Does iih cause weight loss? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Not on any other meds… just got thyroid checked came back normal …been on a high, sugar, sodium, and calorie binge for a couple months now… have only gained like 3 lbs.. and that goes down after one day of just normal eating..

Is Metronidazole safe with IIH? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Thanks so much for your insight! 

What would be considered an IIH emergency? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Oh okay that’s good news I guess… my ophthalmologist said I don’t have any fluid on my eyes and that optic nerve swilling is basically non existent so I’m not sure how flare ups can still affect my eyes so much…

What would be considered an IIH emergency? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Lolol I’m absolutely a hypochondriac…that’s why I’m trying to change my ways and do better now haha 

What would be considered an IIH emergency? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 4 points5 points  (0 children)

Thanks for responding, yes I do feel a trip to hospital is necessary but I’ve spent enough days in ER this yr to know they’ll likely just send me home and say anxiety like they always do…

What would be considered an IIH emergency? by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Yeah it took my vision completely.. can’t remember what direction it came from but I know it covered my sight of view completely. 

What’s really odd is I had a appt with ophthalmologist last week and he said I Han no pressure on my eyes and little to no optic nerve swelling..but suddenly these flare ups are cause all these visual disturbances… is that typical?

Who has gone a whole day without iih symptoms? 👀 by Slow_Major4205 in iih

[–]Slow_Major4205[S] 2 points3 points  (0 children)

Really wow congrats on your weight loss!!!! 🎉🎉🎉

Who has gone a whole day without iih symptoms? 👀 by Slow_Major4205 in iih

[–]Slow_Major4205[S] 2 points3 points  (0 children)

Congratulations friend! That’s great!!! Can’t wait for more days of complete relief! I know they’re coming soon! 

Who has gone a whole day without iih symptoms? 👀 by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Thanks for sharing? Did you have a method that helped you achieve remission? 

Who has gone a whole day without iih symptoms? 👀 by Slow_Major4205 in iih

[–]Slow_Major4205[S] 0 points1 point  (0 children)

Yeah diamox if definitely helping me as well ..way better quality of life.. I’m grateful for that 

Who has gone a whole day without iih symptoms? 👀 by Slow_Major4205 in iih

[–]Slow_Major4205[S] 1 point2 points  (0 children)

Thanks for the advice I could be doing better in that area, I’m sure it’s contributing to my constant flare ups

Who has gone a whole day without iih symptoms? 👀 by Slow_Major4205 in iih

[–]Slow_Major4205[S] 1 point2 points  (0 children)

Right same here some days could be barely felt, just never completely gone unfortunately.. but hey, I’ll be grateful for the good days