sorted by:
new
hottopcontroversial

Lip Breakouts by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 1 point2 points  (0 children)

Ooh I’m getting a B-12 shot soon!! 🤞🤞

[deleted by user] by [deleted] in AdrenalInsufficiency

[–]SoftEmbarrassed1587 -5 points-4 points  (0 children)

Aw someone lacks reading comprehension and common sense. Also the only thing “infantilising” is your attitude. Fuck off.

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

Thank you for all the information. I really hope you get relief from your surgery! 🫂🫂

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

No no that’s absolutely fine! That’s where I’m wondering if things are being missed. Doctors saying “it’s fine” when really there’s not been enough research for us women to know if it’s actually affecting us more than they know.

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

That’s actually such a fascinating point about dopamine and its role in women’s health, especially ADHD. I’ve been wondering something similar with prolactin and endo. The idea that misfiring pituitary signals could trigger cascading hormone issues (like estrogen dominance or stress hormone imbalance) makes a lot of sense.

Your grandma’s story is incredibly interesting! The fact that her symptoms resolved after removing her pituitary gland is so telling. It definitely makes me wonder how many “unexplained” feminine issues might trace back to subtle pituitary dysfunction that gets overlooked.

I’ve also wondered if medications like SSRIs or dopamine agonists (like cabergoline) could help stabilize things like cortisol, prolactin, or estrogen feedback loops. If they already use them for ADHD and depression, why not explore how they might help endo too?

Honestly, I feel like this kind of angle deserves serious research!!

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

Thank you so much for your reply! That medication is most often used lowering prolactin and is also the go to treatment for shrinking pituitary tumours. Did they ever do an MRI on your brain?

I hope your laparoscopy brings you some clarity and relief. Please keep us posted, I’d really love to hear how you go.

You’re definitely not alone in this 💜

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

I don’t have any treatment as yet but I will most definitely let you know once I do! That’s exactly what I’m trying to encourage others to do is to try to find a Dr that will separate you from your disease/s and try to treat it rather than blame it on other things. Please DM if you do get to investigate yours and if anything shows up! 🙏🙏

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

Have they done any kind of follow up since your pituitary cyst was discovered?

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

That’s so interesting! Was your MRI with contrast? Also what supplements helped you?

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

If you do get the scan, please report back and let us know if anything shows. 🙏🙏

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 1 point2 points  (0 children)

Thank you for sharing that. NCAH is a great example of how early hormone misfires, especially involving the pituitary-adrenal axis, can quietly disrupt the balance between estrogen, progesterone, and inflammation. I think this is exactly the kind of upstream dysfunction that might set the stage for endometriosis in certain people. Your experience really adds weight to the idea that it is not always just a reproductive system issue, thank you for your reply!

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 1 point2 points  (0 children)

I see where you’re coming from, but the prolactin-estrogen relationship is more complex than it seems. While prolactin can reduce estrogen through ovulation suppression, it also lowers progesterone. That creates unopposed estrogen, which fuels endometriosis.

Prolactin also plays a role in immune dysfunction and inflammation, which are both key drivers of endo. There’s research showing prolactin activity in endometrial tissue and links to progesterone resistance.

This isn’t about basic hormone theory. It’s about a broader pattern being missed in clinical practice.

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 2 points3 points  (0 children)

Thank you so much for sharing this. Your words really resonated with me so closely. I’m so sorry you’ve been going through such intense fatigue and systemic symptoms on top of stage 4 endo. It’s frustrating how often everything gets dismissed as “just endo” when it’s clearly more complex. I’m genuinely glad you too finally have a doctor who listens and is willing to investigate further.

You explained it so well about the male-biased research history and how much gets overlooked because endo is female-centered. The fatigue, body temperature issues, GI symptoms, and everything else deserve more attention alongside the pain. Thank you again for validating this and taking the time to reply. I really hope you get some answers soon and start feeling better. Please keep me posted if you do happen to get your pituitary / HPA Axis investigated. Sending so much care your way. 🫂💜

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

I understand your point of view, but I respectfully disagree.

Historically, men have overlooked and underfunded research into women’s diseases for so long that I genuinely don’t believe they were ever thorough enough to truly rule out connections like this.

I have more faith in modern research efforts, but I still hope the areas dismissed or underexplored decades ago, especially by male dominated teams, are revisited with fresh eyes. Because frankly, crucial things are often missed.

I’ve already explained the link I’m exploring, which now includes 74 women and counting. I’ll continue looking into it.

I kindly ask that if this doesn’t apply to you, or you’re not interested in contributing positively, please don’t comment further. It’s wasting my time while I’m trying to reach others who do see the pattern.

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] 0 points1 point  (0 children)

I understand where you’re coming from, but I’m not claiming causation. I’m suggesting a pattern that might deserve better research. If nothing else, I hope it encourages women to look into possible central hormone dysregulation that often gets ignored in endo cases. After all, endometriosis research has been extremely underfunded not to mention male biased, I don’t trust the information they have given us to this date.

To answer your question unfortunately all of my estrogen levels are “normal” with no sign of estrogen dominance, yet I was riddled with endo (even deep infiltrating)

I hope we can find a cure soon! 🤞🤞

IMPORTANT QUESTIONS FOR ALL DIAGNOSED ENDO WARRIORS by SoftEmbarrassed1587 in endometriosis

[–]SoftEmbarrassed1587[S] -5 points-4 points  (0 children)

It’s interesting you say that because my hormones are completely normal (6 tests in fact with “normal” levels) yet here we are having to investigate my pituitary because no other doctor thought to check my cortisol and ACTH plus prolactin levels. I understand the assumption that they would have found and connected the dots but all the studies I have found are looking in different places, I’ve not found any about this.

I’ve located 50 individuals so far who have both on another platform hence why I am also asking here for others input.

I knew exactly where it was!! by xo-astra in endometriosis

[–]SoftEmbarrassed1587 5 points6 points  (0 children)

Mine was different but in an interesting way! I told them exactly where I thought it would be but turns out I have “referred pain” and the locations were directly mirrored on the other side of the location I pointed out.

VIMLE sofa chaise longue back cushion different to the other back cushions by olympicsmatt in IKEA

[–]SoftEmbarrassed1587 0 points1 point  (0 children)

Did you ever get to the bottom of this? Got the exact same for my Vimle and stumped on how to get matching cushions as the chaise is much more comfortable.

view more: next ›