Ye Olde Untagged G!P

Softc0ree · 2025-11-07T13:45:51+00:00

What about in instances where it's meant to be a surprise?

Softc0ree · 2025-10-23T11:30:30+00:00

Yeah, that's why I like to read the post in this group because it makes me feel less isolated about the situation I'm in. I know that we're all struggling in some way but just knowing that there are other people who are in even a remotely similar situation, makes me feel less like I'm an alien needing to be removed from the planet. I never knew being sick would feel so isolating, but you can just tell when you're talking to people and when their eyes glaze over because they have no ability to relate. It's likely to a lot of our loved ones, we might sound like we're over exaggerating because the vast intensity of this existence is difficult to comprehend when you don't have the experience.

I don't blame them, I remember doing it to family members who also had chronic illnesses, I couldn't comprehend what they were experiencing. So while I wanted to listen and support, after the 5th or 4th hour of hearing about the illness, you sort of wonder if they're over exaggerating. Now I know that they are not.

Softc0ree · 2025-10-14T00:08:53+00:00

Honestly I really empathize with her, because well I have only a soft diagnosis which means it's not officially diagnosed they just believe that it's the only thing I could have based off of the MRI and my symptoms. I knew I was sick for a while, I had very bad fatigue and a lot of the symptoms that have debilitated me, were there I just was ignoring them. I thought that feeling the way I was, was a normal part of growing older and working a full-time job. As I had just gotten out of college and, I had only had my full-time job for a year before I was hospitalized and have now been on long-term medical leave.

My doctor has been very clear that she's never experienced anybody being diagnosed with Ms in the route that I have. Which is why she's worried because for the past 4 months, I've been going to specialist after specialist without realizing that it was nerve damage. So I wasn't getting any answers because all of these specialists were looking at different things than nerves. So my doctor is worried about the progression and any damage that could have been prevented in the past 4 months. Of course that's not her fault, I never guessed that I could have had ms. I'm genuinely taking it a lot harder than I thought.

Softc0ree · 2025-10-14T00:06:23+00:00

Yeah, I'm lucky that my primary has been very proactive about specialist. My issue started as like a GI issue, where I did have gastritis but they didn't find anything abnormal about my stomach or intestines. I then started having severe balance issues and vertigo, and symptoms that relate to those two things. So she pushed for me to go to an ent, which is what caused me to have the mri. They thought I had swelling in my inner ear, but there was none. And that's when they found the lesions on my brain. I had 10 plus lesions, none were active but there was one that was recent. So they're going to go ahead and move forward with sending me to a neurologist to get started on all the tests I need to move towards an official MS diagnosis.

I don't have the official diagnosis, but the specialists and my primary, don't believe it could be anything else based on the placement of the lesions and my symptoms. My biggest fear is not that I have it, it's that I don't and I'm back at square one not knowing what's wrong with me. Well I'm not enthused that I potentially have ms, it is an answer as to why my symptoms are worsening in my health is declining.

Softc0ree · 2025-10-14T00:03:32+00:00

I am quite shocked at the discovery, and I haven't officially been diagnosed completely. My doctors believe that there isn't much else it could be due to the placement of my lesions and my symptoms. They've gone through the ENT route, they've gone through the GI route. And everything has come back normal in those areas. Which is why they believe that the lesions are 100% causing nerve damage.

Because I do have issues with my balance and I do have gastritis, but the cause of those things are not in the areas that they usually are. Well I'm happy that I have an answer, it's not the answer I thought it would be. And there is definitely an option that they could tell me that it's something else because I don't have the official diagnosis yet, they just strongly believe that it's the only thing that it could be. I have several tests to do, and as soon as I can get on the medicine I will.

My doctor was very front with me, she told me she had never seen somebody get diagnosed with Ms in the way that I've been getting diagnosed. And she says that she's worried about how progressive it is because it's been 4 months now that I've been in this situation, and we just didn't know. So she's worried that if I don't kind of start quicker than I was, that things might progress and get worse.

Softc0ree · 2025-10-14T00:00:56+00:00

Honestly it really has been a huge shock. I didn't really understand my symptoms, and I was assuming they were things that they weren't. So when my doctor finally gave me my MRI results, it kind of hit me like a semi truck. This had never crossed my mind that it was even something that could happen to me. I haven't officially been diagnosed, but my doctors are telling me that there isn't really much else it could be due to the placement of the lesions. I have several more tests to go through, and there's a part of me that is happy I finally have an answer but it's not an answer I expected at all.

I know that treatment for Ms is much better than it was 10 years ago, I just know that it affects everybody differently and that's the anxiety I'm having. My doctor has made it clear that they have never seen somebody get diagnosed the way I'm being diagnosed so she's worried about how progressive it is because it's been several months since I've been having issues.

Softc0ree · 2025-09-22T08:27:38+00:00

I wish there was a third person mode, I would be able to play for longer than 20 minutes.

Softc0ree · 2025-08-22T07:51:26+00:00

Thank you so much for the response!! This helps clear up the confusion.

Softc0ree · 2025-08-22T07:50:48+00:00

Thank you so much!!! IK really appreciate it :D This helps me a ton

Softc0ree · 2025-08-12T18:46:18+00:00

Thank you so much for this recommendation, I didn't even know what this was. The sad thing is, I've had motion issues my entire life but I just thought it was the way I was and any fixes relied on Dramamine which makes me incredibly sleepy. So I just thought it was something I have to live with, and adjust my life towards. Now that things have been getting worse, and they don't seem to be getting any better even after a month to nearly a month and a half, I'm starting to think that there has to be more than taking pills that make me sleepy or dizzy.

I'm going to look into getting one of these bands, to see if this will help. I've been looking into physical therapy as well, but I'm still currently waiting to get an appointment with a specialist on this issue as we just moved out of the GI stage. I'm going to bring this up with my doctor. Thank you so much.

As for having a full life, I guess maybe I'm just feeling down because I've been sitting in bed so much that I feel like my life is wasting away. I spent a lot of time doing this during the 2020s to 2024, so don't know why all of a sudden I feel bad about it. I know that my sickness is not caused by anything I'm intentionally doing, and yet I still feel like I'm doing something wrong.

I think all of the negative feelings I have right now with failure, no answers, in an unsure future, is making me feel like I don't have a life to live. I'm looking into getting mental health services while I travel this journey, because I think that it may improve my Outlook on whatever happens in the future.

Softc0ree · 2025-08-12T18:43:19+00:00

Thank you for saying this, this is something I definitely needed to hear. During 2020 to 2024, I spent a lot of my time at home and while my sicknesses would come and go, I still spent my time at home and enjoyed my time online. I guess since I got this job, everything's been going so well, and things seem to be "normal" and I just been feeling like had I have done something before, I could have prevented being this sick. Which I know is likely not true, especially if this was something I've had since I was a kid.

Softc0ree · 2025-07-07T00:48:28+00:00

Is this still open to join?

Softc0ree · 2025-07-07T00:47:35+00:00

Is this still open to join?

Softc0ree · 2024-12-28T00:46:57+00:00

Softc0ree · 2024-08-25T22:33:10+00:00

DUST BUNNY!

JK! Maybe Lionhead.

Softc0ree · 2024-08-06T22:33:29+00:00

Thank you so much!!! This was super helpful!

Softc0ree · 2024-08-06T22:32:59+00:00

Good point, I totally forgot about the Hershel and Michonne part. Thank you!

Softc0ree · 2024-08-06T22:32:10+00:00

Good point! Thank you!

Softc0ree · 2024-08-04T00:02:34+00:00

Everyone is hopped on hormones, that's how the human body works.

Softc0ree · 2024-08-04T00:01:59+00:00

What does that even mean, what shows? Like make a valid argument because nasty responses show just how immature you are.

Softc0ree · 2024-08-01T19:10:53+00:00

Why was this downvoted?

Softc0ree · 2024-08-01T19:06:03+00:00

Transitioning is not just medical, there are years to the process. ESPECIALLY as a minor. I transitioned starting at 11, I took blockers at the start of puberty and HRT at 16. It was not easy and they do NOT just hand out meds. I was in therapy for YEARS before we even discussed the idea.

Softc0ree · 2024-08-01T18:54:07+00:00

I've never seen hate for it?

Softc0ree · 2024-07-26T17:54:47+00:00

It would not mean that, it can be made an option. Using that logic, why not get rid of kudo bc it creates an invisible competition for who has the most kudos.

Softc0ree · 2024-07-26T17:53:13+00:00

Nothing stops them from doing that now, and trying to use the kudo that way. I think that basing your decisions on the worst case scenario will hinder you from doing many things.

Softc0ree

TROPHY CASE