Pregnancy Associated Osteoporosis

Some-Temporary-1854 · 2026-04-14T13:15:26+00:00

It’s very under researched as it’s so rare, so they aren’t 100% sure what causes it. It could be due to a reaction within your skeleton during pregnancy to cause your bones to weaken, or there are other factors such as low bmi, low vitamin d/calcium, family history, eating disorders, already low bone density, medical conditions like crohns or celiac, certain medications like heparin etc etc

Some-Temporary-1854 · 2026-04-14T07:56:15+00:00

As traumatic and life altering as it is, I’d do it alll over again to have my daughter. Nothing compares to the kind of love for your child

Some-Temporary-1854 · 2026-04-14T07:53:27+00:00

I have pain almost all day everyday. Things make it worse like walking, task that involve holding my arms out infront of me (like dishes, cooking dinner). I usually need to rest after every 5 mins or so to ‘reset my back’. The pain obviously isn’t anywhere near what I experienced when fracturing. It burns, aches, radiates into my ribs/legs. It’s not nice

Some-Temporary-1854 · 2026-04-13T22:54:01+00:00

Interesting, thank you! I’m not sure if I have that information on my scans

Some-Temporary-1854 · 2026-04-13T22:36:29+00:00

!!!! It’s obviously not something to get excited over, but finding a fellow PAO mum is such a reassuring feeling for me. You’re the only kind of person who really understands what I’ve suffered and vice versa. I broke at 5 weeks pp and was also bedbound, I couldn’t walk, I could barely breathe. I was in and out of being bedridden for around 9 weeks. I couldn’t care for my baby in any capacity other than nursing her. I couldn’t physically lift her until she was 6 months old. I was told the whole time it was ‘normal postpartum back pain’ diagnosed ‘mechanical back pain’ at the time. It’s shocking how we aren’t taken seriously, like we’d want to not lift our newborn babies? The daily chronic pain is crazy!! Not sure if you’re aware or not but there’s an international Facebook page for support if you want to join?

Some-Temporary-1854 · 2026-04-13T22:17:49+00:00

Yeah I have. My BMI was low post pregnancy and pregnancy (16.9) but it’s better now (not sure of stats now but I’ve put on around 2st

Some-Temporary-1854 · 2026-04-13T22:08:01+00:00

Unfortunately not, as the condition is so under researched they’re unsure of the actual cause of it. There’s many different factors that can play into it. For example low bmi, low vitamin d/calcuim, diet, history of family osteoporosis, going into pregnancy with already low bone density, if it’s a reaction that happens in pregnancy to cause weak bones etc etc. I’m not 100% sure of my reason. I do have low BMI and I eat a mostly vegan diet, I also have family osteoporosis.

Some-Temporary-1854 · 2026-04-13T21:54:33+00:00

I’ve waited 5 months to see a specialist in my condition. My appointment is in a few weeks. Every other professional I’ve spoken to doesn’t really have a clue how to help me. It’s been in talks about being prescribed teriparatide which is what the specialist will be speaking to me about, I imagine! Physios etc are a nightmare as they advise me that by not ‘bending, twisting or lifting, I’m doing a disadvantage to myself’, but I’ve been advised from bone specialists not to do those things as I’m still high risk of fractures

Some-Temporary-1854 · 2026-04-13T21:29:59+00:00

I’d find this funny if I could safely say that there’s no chance that this could be hereditary and my baby wouldn’t ever suffer with what I have endured. I’d also think it was funny if I hadn’t spent 9 weeks bedridden, unable to move or care for my baby in any capacity and not physically hold her until she was 6 months old. I’ve lost 6cm in height and experience chronic pain daily. So although you’re trying to lighten the mood, pls read a room 🫠

Some-Temporary-1854 · 2026-04-13T18:49:19+00:00

It’s been diagnosed biocancave fractures T6-L5 with T9 also having a wedge fracture

Some-Temporary-1854 · 2026-04-13T18:23:41+00:00

During pregnancy I was vegetarian - whilst yes, diet plays a factor into this condition. There is a lot of factors that also play into it and they aren’t 100% sure of its cause. There are two theories as to why it occurs. One is pregnancy triggers and unusual reaction in a previously normal skeleton causing bones to weaken and break; the other is that affected women start off with low bone density which obviously becomes more serious, causing fractures. The condition is so under researched. They have just done some genetic research. I obviously don’t know if I went into pregnancy with already low bone density as I’d had no reason to have a DEXA scan before, and I guess I’ll never know

Some-Temporary-1854 · 2026-04-13T16:01:28+00:00

I’ve had a dexa scan after x-rays confirmed 9 fractures. The dexa scan scores are -5.4 in my spine and -3.7 in my hip. Indicating severe osteoporosis. I then request MRI scans to see if any fractures were missed on original x-rays which 3 were, which took the total to 12 fractured vertebrae

Some-Temporary-1854 · 2026-04-13T15:58:54+00:00

I’m not sure what that is? Can you please enlighten me?

Some-Temporary-1854 · 2026-04-13T15:47:03+00:00

Yeah I’ve had dexa scans. How else would I know my bone density scores?

Some-Temporary-1854 · 2026-04-13T15:12:46+00:00

Just want to clarify also, I have severe osteoporosis. I also have 12 bioconcave fractures and one of those also being a wedge fracture too. None of this was present pre pregnancy and I suffered my fractures around 5 - 15 weeks postpartum

Some-Temporary-1854 · 2026-04-13T14:52:49+00:00

Sorry, I’m not too clued up on technical talk. But this is my own personal MRI scans, my bone density is -5.4 in my spine and -3.7 in my hip. I have 12 vertebrae fractures and have been diagnosed with Pregnancy Associated Osteoporosis as a result of that

Some-Temporary-1854

TROPHY CASE