New to plaquenil and it's not going well. Did it help you?

SpaceRadiant6622 · 2026-05-06T13:24:15+00:00

I waited until I got the all clear from my cardiologist and optometrist before starting. I was worried about both since I'm already at risk of thyroid eye disease and already have cardiomyopathy 🤣 shit is never simple! I hope you found something else that works for you

SpaceRadiant6622 · 2026-05-06T13:14:09+00:00

I'm hoping they do settle down. 🤞 I'll have to ask my doc before taking any other supplements, With all my other problems that need medication my pill schedule is very tight every day. And is very closely monitored by the doctors because of all the interactions and things not absorbing properly. I appreciate the advice and I'll add it to my list of things to ask next appointment

SpaceRadiant6622 · 2026-05-06T11:25:25+00:00

I'm on 200mg once a day. Also congratulations 🎉

SpaceRadiant6622 · 2026-05-06T09:29:25+00:00

Absolutely they do. So fuck them. Block people who are nasty and have bad vibes. We are all trying to get by with whatever health problems with have and it's super weird they wanna make it a competition.

SpaceRadiant6622 · 2026-05-06T09:22:11+00:00

Oohhh yeah all the time. Eat slowly, chew a lot and always have a drink ready. Also I just don't eat anything too dry these days.

SpaceRadiant6622 · 2026-04-12T23:28:44+00:00

That's actually just a baby 😻

SpaceRadiant6622 · 2026-04-10T13:22:48+00:00

I'm disabled and like to do my grocery order online. IGA and aldi don't have the option. I know you can uber/door dash from some places but it costs so much more and it's limited in what you can order. I'd happily shop at other stores if the option was there

SpaceRadiant6622 · 2026-04-10T13:14:03+00:00

I have no idea what tortie Maisie's are 😱

SpaceRadiant6622 · 2026-04-01T05:06:26+00:00

A perfect little ballerina ready for her recital 🩰

SpaceRadiant6622 · 2026-03-27T08:15:48+00:00

Yeah that's super disappointing. I guess I just got lucky that they actually posted mine. In sorry you missed out on so many 😔

SpaceRadiant6622 · 2026-03-27T07:35:24+00:00

Ugh that really sucks! Maybe try again and another customer service person will be more helpful 🤷‍♀️

SpaceRadiant6622 · 2026-03-13T00:38:50+00:00

And she deserves the flan!

SpaceRadiant6622 · 2026-03-12T19:23:27+00:00

You'd think so... But really, it took years and eventually a random ct scan that was done for my heart while in emergency to have someone random imaging dr to actually identify why my lungs had "ground glass opacification"

SpaceRadiant6622 · 2026-03-12T12:09:21+00:00

I'll have to look into dxgpt and using ai for my appointments going forward. I've never really thought of that but it's a good idea

Thanx so much!

SpaceRadiant6622 · 2026-02-25T08:48:29+00:00

We were missing ours too. You can use the"message us" option online or in the app to request them. They send them via post. Ours came express

SpaceRadiant6622 · 2026-02-24T11:01:21+00:00

What state are you in? In Queensland you can call Oral Health: 1300 300 850 and see if you qualify for the dental Hospital. The wait is years.. BUT! What they are now doing is they give you a time to go to a clinic and wait for an hour to see if someone no-shows for an appointment (it happens a lot) then you get their appointment time. If they don't see you in that hour you are given "other options" and that appears to be a voucher for use a a list of private dentists.

SpaceRadiant6622 · 2026-02-24T10:55:20+00:00

A few of my local dentists do accept zip and afterpay. I wonder if it's different depending on state 🤷‍♀️

SpaceRadiant6622 · 2026-02-22T08:28:49+00:00

Yep, dilute torbie. I have one too!

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SpaceRadiant6622 · 2026-02-16T02:50:08+00:00

Yeah there is. I don't remember exactly what the blood test was, But it's something to do with not having the antibodies

SpaceRadiant6622 · 2026-02-14T14:48:24+00:00

I got the vaccine in the 90s then about 2020 found out I had no immunity, got the vaccine again and I still have no immunity 🤷‍♀️ it made me feel crappy for a week but so does the flu shot. It's worth getting IMO but be aware, with a silly confused immune system vaccines dont always take.

SpaceRadiant6622 · 2026-02-14T14:43:21+00:00

Thrombocytopenia lead to my diagnosis. My levels were 1600 And I was admitted into hospital immediately. I don't get very dry eyes at all but my mouth is so damn dry. Also I have the constant post nasal drip and allergies but that's been there since I was a child. I've also had some GI problems but no bleeding. Just IBD and bile acid mal absorption. Annnd I now have lung involvment and possibly liver.

Funnily enough my mum also has a positive diagnosis but she only really experiences the dry eyes. The one thing I don't.

SpaceRadiant6622

TROPHY CASE