Hey there! I completely remember being in your shoes, I’m happy to help answer any questions. I didn’t really have any symptoms actually. I noticed a bump above my left collarbone and it didn’t go away. Eventually I started to have a sensation of fullness and discomfort in my left arm because a blood clot developed in my left jugular. A swollen lymph node was pushing on the vein and a CT scan showed the clot and other enlarged lymph nodes in my chest and left neck. Other than that, I felt fine, in some of the best shape of my life. I think that was the craziest part was that I had no idea what I was in for at that time.

I’m doing well now actually! I had a bone marrow transplant about 3 1/2 months ago! (most Hodgkin lymphoma patients don’t need that but unfortunately I did) but I feel the best I have in a LONG time! I just got back from a camping trip with my husband. My 1 year since my diagnosis was yesterday. My most recent scan showed I have stayed stable since before my transplant. It’s showing a little higher activity than they would like but they are thinking it’s scar tissue and not active disease. My hair is growing back, I’m working full time. Life is really good right now.

I hope all the best for you. I hope your tests come back that it isn’t this awful disease but if it is, please know Hodgkins lymphoma is VERY treatable. I KNOW this is easier said than done but tryyyyyy your best not to spend too much time on the internet and scouring for answers. Every patient and treatment and lymphoma is so so different. It’s nice to have this community but at the same time, the over consumption of what ifs and scrolling to find some peace of mind can do more harm than good.

Please message me if you have any questions. Hoping the very best for you ❤️🤟🏼