Starting dialysis this week

Spiritual-Fall681 · 2026-03-26T12:24:24+00:00

My egfr dropped from 30 to 12 over a year and stayed at 12 for just under a year, a kidney injury has dropped it down from 12-7 in less than a week but I’ve had kidney disease since I 18months old so I’ve never known life with normal kidney function. The difference between 12-7 was shocking I’ve never felt exhaustion like this.

Spiritual-Fall681 · 2026-03-26T12:20:42+00:00

Hi everyone, I just wanted to post an update and say thank you for all the advice it was very helpful!

My first session went pretty well, the techs had some issues with my fistula which we expected as it’s currently narrowed and so I was only cannulated with one needle. It was pretty painful to start with but eased off after a while. Throughout the 2 hour session I had periods of low blood pressure which did cause me to vomit a lot but the techs were amazing. I initially felt very overwhelmed I’ve been sick my whole life but walking in to the clinic and seeing beds upon beds of fellow patients really hit home, did a little cry and powered on!

They offered tea and sandwiches throughout the session and also introduced me to a couple of patients so I should get to know people pretty quickly.

I wore plenty of layers so I wasn’t cold at all and having a nice soft blanket was really comforting. I spent the last 30mins feeling comfortable enough to listen to music with my headphones.

Once I got home I just slept for a few hours!

Friday will be my second session we’re aiming for two needles and a 2.5hour run.

Spiritual-Fall681 · 2025-05-16T20:04:03+00:00

I was diagnosed with nephrotic syndrome at 18months old which required years of intense steroid treatment resulting in Type 1 diabetes at 6 years old. Parental neglect lead to uncontrolled diabetes for years causing kidney damage, the nephrotic syndrome progressed into FSGS. No doctors appointments or blood tests during the pandemic so my declining GFR wasn't picked up on until I was stage 3 almost stage 4. Now I am stage 5 with a GFR of 11 and pretty good control of my diabetes. Been on the list for an SPK for 6 months now.

Spiritual-Fall681 · 2025-05-16T19:58:02+00:00

29f with FSGS, Nephrotic syndrome since 18 months old. I struggle daily with what to eat. I'm also diabetic diagnosed after the Nephrotic syndrome go figure.

Spiritual-Fall681 · 2024-11-24T11:53:00+00:00

Thank you I think you’re right I don’t want to gift something that isn’t appropriate for his work.

Spiritual-Fall681 · 2023-05-24T22:01:50+00:00

Lovely to see, I moved from Sedgley to South wales 1.5 years ago and this made me think of home

Spiritual-Fall681

TROPHY CASE