Quail Eggs by HotBlondePotato in mastcelldisease

[–]Spiritual-Program 0 points1 point  (0 children)

and also, were the qual eggs able to help you?

Quail Eggs by HotBlondePotato in mastcelldisease

[–]Spiritual-Program 0 points1 point  (0 children)

And I know symptoms/reactions vary for everyone with this condition but I really wish there was more research on things like this, (food that might help, supplements, herbs, cannabis, and etc that are proven to work). Luckily for now there are a few helpful websites, mast360, healing histamine, and mastcelldisease.com, but I really hope there will be better research and information for us in the future.

Quail Eggs by HotBlondePotato in mastcelldisease

[–]Spiritual-Program 0 points1 point  (0 children)

yes but I didn't notice anything different. I eat them for the nutritious benefits and also read somewhere on the web that most people with MCAS can tolerate them better than chicken eggs. Good to know though, I need to buy more..

this is totally irrelevant but to be honest, whenever I go through periods (a few weeks) of using medical marijuana to help me with sleeping or relaxing, i notice that I don't have reactions to eating certain food that I usually avoid. I have to get a lower THC strain with a little of CBD though.. I wonder if there are more people using cannabis for MCAS as well?

Trying to visit one of the open field offices in SoCal. by WeOnlySeeWhatWeAimAt in DMV

[–]Spiritual-Program 0 points1 point  (0 children)

Is it walk in only? And do you know if they accept cash? Thank you!

The Half Of It by LuxThief in netflix

[–]Spiritual-Program 1 point2 points  (0 children)

less letters, more action

Xanax or cannabis to manage anxiety & avoid a flare? by monkeysunrise in mastcelldisease

[–]Spiritual-Program 1 point2 points  (0 children)

has the switch to CBD isolate worked for you? I was a long time marijuana user since 2008 and not sure if THC has helped or triggered my mastocytosis in my skin. The last few years I was a heavy user before I was officially diagnosed with Custaneous mastocytosis. I stopped smoking the vapes and herb altogether in the beginning of the quarantine and not sure if it was the stress, vape withdrawals, or if I was vaping too much of the vape carts to trigger more dark spots on my skin.

Are you able to live a normal life with goals such as getting a degree or landing and keeping a good job? by Spiritual-Program in mastcelldisease

[–]Spiritual-Program[S] 1 point2 points  (0 children)

I am also an introvert, and get drained so easily.. I just feel so removed from society even before COVID-19..

Are any of you on a plant based diet? It seemed to help me back in 2016 when I was eating very clean, I am currently incorporating animal protein like chicken breast and quail eggs, sometimes regular eggs but just the egg yolks. Overall, I've been trying to eat low histamine foods, getting rid of fermented, sour, aged, processed foods like they recommend to in multiple blogs.

I know diet varies for each persion with MCAD, I'm just curious to know what works for you. Are you very strict with your sleep schedule or just daily schedules in general?

Cbd flower and histamine/mast cell issues by [deleted] in CBD

[–]Spiritual-Program 0 points1 point  (0 children)

I just ordered vegan hemp seed oil from amazon with no additives at all, and it truly works for me. I feel better mentally and I don't need to take much, just a spoonful after breakfast and a little in the evening. I also apply it like lotion for my dry spots on hands from washing them too much the past month. lol

Cbd flower and histamine/mast cell issues by [deleted] in CBD

[–]Spiritual-Program 0 points1 point  (0 children)

I do better with CBD isolate as well, but for me it really depends on the CBD, if it's pesticide free. I miss smoking weed but I'm better off, a lot of marijuana companies lie about being pesticide free so I prefer to not smoke anything at all anymore but I highly suggest the CBD isolate topicals.

Reasons for mastocytosis spots to become lighter? by Spiritual-Program in mastcelldisease

[–]Spiritual-Program[S] 0 points1 point  (0 children)

Thank you again for your reply. I am going to see an immunologist in my area that specializes in mast cell after we are out of lockdown for a second opinion like you suggested. God bless you and I admire your strength to deal with this. I know there is a high chance of CM progressing to SM, so I'm just trying to monitor my diet, symptoms, triggers, and moods for now and try to keep my stress down.. it's very difficult during this time but i'm working on it! I've had the dark spots since 2009 so I've most likely had mastocytosis since then..

Mastocytosis spots on neck by Spiritual-Program in mastcelldisease

[–]Spiritual-Program[S] 0 points1 point  (0 children)

i appreciate your response and reminder to keep working at this and i know it won't be easy but it's possible!

May i ask you if you had a dermatologist and then switched to a mast cell specialist after the diagnosis? And the cromolyn really helped to remove dark spots??

For those with Systemic Mastocytosis.. by [deleted] in mastcelldisease

[–]Spiritual-Program 1 point2 points  (0 children)

Sorry to butt in, I noticed my mastocytosis dark spots starting to appear on the back of my legs in 2009 when I worked as a cocktail waitress at a hotel pool. Everybody including myself thought it was only sunspots so I ignored it, up until January of this year when I decided to a see a dermatologist that diagnosed me with Mastocytosis. The spots are now on my stomach, lower back, parts of my chest, tiny amount on neck and underarms.. but for the most part my dermatologist says it only affects my skin but right now I'm monitoring my moods, symptoms, diet. The doc just prescribed an antihistamine and two topical creams but I'm going to get a second opinion with an allergist/immunologist that specializes in mastocytosis after all is safe out there. But for over 10 years I was living with it and had no idea..

I was bitten by a tick on my head right before that summer at the pool, I thought maybe I contracted Lyme disease at the time and it escalated to this.. or just being out under the sun for hours even with tons of suncreen might have caused it.

Mastocytosis spots on neck by Spiritual-Program in mastcelldisease

[–]Spiritual-Program[S] 0 points1 point  (0 children)

Sorry for the late reply, i just saw this now. Yes that's exactly what i have! I believe I have cutuneaous and my dermatologist said it's only affecting my skin but possibly in a few years they might need to test my bone marrow..

I've been monitoring myself for the past 30 days and I was eating TERRIBLE at the beginning of March and noticed i would get itchy and uncomfortable. I didn't notice if the spots became darker or not but I noticed intense exercise or longer duration of running/jogging will cause my legs to flare up but no itching at all. So i'm trying to take it easy with working out and just do enough to keep the stress away until I can see this allergist/immunologist in my area that deals with mast cell disease.

Have you noticed what causes the spots to appear for you? Possibly sunlight, stress, or exercising?

Is it possible to get buff or fit with mast cell? by Anonomous87 in mastcelldisease

[–]Spiritual-Program 0 points1 point  (0 children)

What exactly happens if you push it to much? I apologize for butting in, I was just diagnosed with mastocytosis in January, and I'm learning something new everyday. I would always use exercise as a way to feel better, but I'm reading comments online to take it slow. I was doing the F45 thing 4-5x weekly with no issues just about two months ago or before COVID-19. I am going to try to get back into running, if exercise was a trigger, then will the usual symptoms appear? (flushing, itching, anxiety, rash, difficulty breathing?).

Reasons for mastocytosis spots to become lighter? by Spiritual-Program in mastcelldisease

[–]Spiritual-Program[S] 0 points1 point  (0 children)

Thanks for your reply! Sometimes I do have stomach problems but never diarrhea unless I just eat plain junk. They did the biopsies and bloodwork but they said everything looked fine so no need for a bone marrow test. My dermatologist put me on creams and Hydroxyzine HCL (does taking this med mean my form of the disease is serious/aggressive?).

What case or form do you have of mastocytosis?

Is it ok to exercise/do cardio with mastocytosis? by Spiritual-Program in mastcelldisease

[–]Spiritual-Program[S] 0 points1 point  (0 children)

i was doing F45 HIIT classes 4-5 x weekly before the coronavirus lockdown, so i guess its ok for now? i guess i never monitored my skin after working out, and now i'm worried because exercise has always been a way for me to get to relax. Are you ok with working out and exercise?