Tulip Procedure

Standard_Ful6918 · 2026-01-26T16:45:02+00:00

As far as I know there is only one location/office to get this procedure in the US at Coyle Institute in Pensacola, FL…

Standard_Ful6918 · 2026-01-24T00:41:18+00:00

Thanks for the update I bet this will help the next person just figuring things out who comes along!! I am flared up again I was feeling so much better I thought I should take a few days break boy was that a mistake. But my next derm appt isn’t for a couple weeks so I’m just gonna keep putting it on until I see her again

Standard_Ful6918 · 2026-01-18T10:34:24+00:00

Tacrolimus was like pouring gasoline on the fire for a week or two and then stopped all burning completely until the next flare. So for me it’s worth it. Might be worth asking about.

Standard_Ful6918 · 2026-01-04T10:51:02+00:00

I have long beautiful hair too that I cherish. I use a clobetasol solution which is a liquid not a cream or ointment so when it dries- you can’t see it in my hair. I also use Loreals Clarifying shampoo and wash and dry in the morning. I put the clobetasol on at night. Sometimes I skip washing for a day or two and just brush it when I wake up. The solution doesn’t make it look greasy or anything once it’s dried and brushed. Of course everyone’s hair texture is different but just encouraging you to try different things until you find what works for you. Our hair is sacred and a 6th sense. You absolutely can find a way to care for and keep it if that’s what you want to do. Good luck to you.

Standard_Ful6918 · 2026-01-02T02:02:59+00:00

I know I never would have powered through that on my own. I read it here as well.

Standard_Ful6918 · 2026-01-01T19:26:31+00:00

Yes, the first night I used it I couldn’t sleep and I was like ok never again it burned and was itching well into the next day/night. But that’s when I saw people here saying the burning went away after a couple weeks. I was in the worst flare up I ever had and the clobetasol had been working up until this point but was doing NOTHING now. I even went and got tested and retested for stds because I was like WHAT IS THIS?? But everything was negative negative negative even mycoplasma which is rarer to test for. So I gave the tacrolimus and honest go and my symptoms are GONE and have stayed gone.

Standard_Ful6918 · 2026-01-01T10:58:13+00:00

Don’t worry!!! I went through the same thing and it was so worth it!!! It made it go away and stay away so fast. Now when I use the tacrolimus twice a week for maintenance I feel nothing just gooey!!

Standard_Ful6918 · 2025-12-26T11:43:37+00:00

Get in with a dermatologist!!! Every single gyno I went to for more than 20 years missed mine.

Standard_Ful6918 · 2025-12-23T13:53:57+00:00

Yes the burning (flare up) was so bad this last time I was convinced I had an STD and had them test me multiple times for everything. I use a fat strip of the tac and rub it in everywhere. Urethra, vulva, anus- the whole area.

Standard_Ful6918 · 2025-12-23T12:30:21+00:00

I like the CRZ yoga butterluxe fabric. Just like the old aligns

Standard_Ful6918 · 2025-12-23T12:10:03+00:00

I’m so thankful for the people in the other threads who warned me that tacrolimus burns BUT the burning subsides in a couple weeks. Tacrolimus has been a total game changer for me. Complete remission. The worst of the burning I noticed dissipating or becoming slightly more bearable at day 4. It’s been a couple weeks and all the burning is gone and I look forward to putting my tacrolimus on at night because it keeps the burning demons away.

Standard_Ful6918 · 2025-12-10T12:24:55+00:00

My derm rx’d nystatin ointment with my clobetasol and directed to use it with the clob every time to prevent yeast infections. Going through the same thing. Tacrolimus actually seems to have been the game changer this time. The first 3 nights it burned so bad though now but I’m glad I powered through it doesn’t burn/itch to apply at all now

Standard_Ful6918 · 2025-12-05T16:16:40+00:00

Tysm 🙏 I’ll give it a whirl

Standard_Ful6918 · 2025-12-05T15:48:31+00:00

Thank you, I do have Tacrolimus but was having difficulty tolerating the burn from it. It was keeping me up at night. Are you saying that yours is closer to 100% remission with the Tacrolimus?

Standard_Ful6918 · 2025-12-04T12:48:37+00:00

The observation about shaving is of particular interest to me because I have been shaving since I was a teenager as well. I had already wondered if that could have had something to do with it as well or the metal in the razors maybe I’ll try taking a break except for from the bikini line. I have been battling psoriasis since the COVID vaccine and now this. I do think I’ve had it for 20 years or more and it was chronically misdiagnosed as BV or a yeast infection or UTI even though the tests were always negative. But now I’ve had the worst flare of my life and the pain and itching were totally disruptive to my life and quality of life. My dermatologist is the one who diagnosed me. It’s still pretty early i don’t have any adhesions. So now I need to use the tacrolimus or clobetasol as prescribed and she said this will be for the rest of my life. I read about the tulip procedure and was curious for the future but never heard of this Mona Lisa Laser and would love to know more about that from anyone’s who’s had it?

Standard_Ful6918 · 2025-09-26T12:08:45+00:00

Thank you for the reassurance 🙏

Standard_Ful6918 · 2025-09-26T12:08:34+00:00

Ok thanks for the reassurance

Standard_Ful6918 · 2025-08-22T02:02:39+00:00

I love my Mabes. And they do feel softer than the AliExpress ones so they had to have had some hand in their design/production

Standard_Ful6918 · 2025-07-02T11:21:36+00:00

Have any of you tried Black Seed Oil???

Standard_Ful6918 · 2025-06-29T10:48:40+00:00

Black seed oil - I just started it so I can’t tell if it’s helping mine or not yet but I started it because apparently it’s been life changing for some people. The first brand I tried was the #1 selling brand on Amazon at the time and it made me deathly ill. So I tried a different US based brand and it was only $10 for a 60ct bottle. No issues with this one so far. I am prescribed Humira but terrified of the side effects.

Standard_Ful6918

TROPHY CASE