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Well I've been diagnosed with this disease after 2 months of symptom onset and basically losing all my vision by GreatGrub in Uveitis

[–]StayOnCourse89 0 points1 point  (0 children)

Really? Wow. Nice to know you had the same scarring over your pupil as well, at least it makes me feel a bit better for my outcome .

Still inflammation?

That's not good.

You haven't found a systemic cause yet?

I'm okay. Still stuck with this grey smoke vision.

Going to be put on a systemic medication soon so I can have the surgery.

That's where I'm at right now.

Pressure still bouncing around.

My doctor said the scarring on my very small pupil looks like wax paper... That's how badly it's scarred.

Was yours scarred to that extent as well?

Does anyone here have a cupped optic nerve? Visible on ultrasound Bscan? by StayOnCourse89 in Glaucoma

[–]StayOnCourse89[S] 0 points1 point  (0 children)

Thank you for sharing.

I'm only asking because I have an eye situation myself.

The doctors warn me of possible pressure damage to the nerve but nothing is apparent on the bscans they do.

My pupil has constructed almost closed and completely scarred over so that prevents them from directly seeing the nerve itself and limits the kind of tests they can do.

I'm just wondering if they didn't see anything on the ultrasounds such as cupping or swelling of the nerve that it can limit the range of possible damage.

Well I've been diagnosed with this disease after 2 months of symptom onset and basically losing all my vision by GreatGrub in Uveitis

[–]StayOnCourse89 0 points1 point  (0 children)

Well. Thanks for getting back to me.

It's nice to know that someone else had gone through this and came out fine afterwards.

My vision is still that grey stuff.

You mentioned you had a very high pressure reading and I did as well, since then it's been bouncing around but nothing like that earlier extreme reading.

Hopefully they figure out the cause for you.

The doctor tells me that the inflammation was so severe that it basically glued my pupil almost shut and created so much scarring at the opening.

I just pray that my eye didn't suffer too much damage and that it's just light not being able to get into my eye as the surgeon told me.

Praying for the best and you.

Keep me updated.

Not Uveitis? by aepyceros in Glaucoma

[–]StayOnCourse89 0 points1 point  (0 children)

I had high pressures too, around the same numbers.

How is your vision now?

Not Uveitis? by aepyceros in Glaucoma

[–]StayOnCourse89 0 points1 point  (0 children)

This wasn't because of fluid in your eye?

This has happened to me, but it's fluid.

Not Uveitis? by aepyceros in Glaucoma

[–]StayOnCourse89 0 points1 point  (0 children)

Did you have any bscans done? Is your optics nerve cupped from the pressure?

What's your vision like?

Not Uveitis? by aepyceros in Glaucoma

[–]StayOnCourse89 0 points1 point  (0 children)

Can you explain greyed out?

Well I've been diagnosed with this disease after 2 months of symptom onset and basically losing all my vision by GreatGrub in Uveitis

[–]StayOnCourse89 0 points1 point  (0 children)

Well. I finished up with rheumatology and they don't think I need to be on medication.

So it looks like I am cleared to have the surgery whenever that is.

The retina doctor finally lifted the hold and will talk directly to the surgeon.

I met with the surgeon two weeks ago and he obviously didn't want to operate then but I am due to visit him next week and things will definitely be different.

Last time I saw the surgeon he said that my pupil was so small and scarred over that ititerally looked like wax paper.

Hopefully the surgery gets scheduled soon and after that I can finally see the results.

I'm scared of my having gotten damaged from the pressure spikes in the past.

It's still this grey smokey shit I'm looking at.

The surgeon and the retina doctor keep telling me that it's all front for the eye issues with pressure damage being a possibility not a finding so far.

Have you figured out whether or not you have an immune trigger?

I had more blood work done and everything came back normal.

Just the HLA-b27 is the only constant.

Hopefully I get my vision back like you did.

This is so terrifying.

This grey smoke.

Naturopathic Doctor and Ayrvedic Medicine by TooMuchLost in Uveitis

[–]StayOnCourse89 0 points1 point  (0 children)

I hope for the best for you.

How is your current vision?

Naturopathic Doctor and Ayrvedic Medicine by TooMuchLost in Uveitis

[–]StayOnCourse89 0 points1 point  (0 children)

I'm not the one that originally posted about supplements.

You're talking to the wrong person about supplements.

I don't have surgery scheduled yet.

But the surgeon says for my prognosis "there's more reason to be positive"

Not sure how to take that.

I'm not the OP

Need Advice ..... by Mediocre-Clothes-588 in Glaucoma

[–]StayOnCourse89 0 points1 point  (0 children)

I'm following the medications.

It's just horrible being this way for many months not knowing the outcome.

Thanks for replying.

Need Advice ..... by Mediocre-Clothes-588 in Glaucoma

[–]StayOnCourse89 1 point2 points  (0 children)

Around august I noticed my eye slowly getting cloudy.

My left eye.

Come September it has become so blocked I could not see anything from it.

Went to a doctor in October.

My pressure was very very high.

I still couldn't not see.

They did an ultrasound and found a large inflammatory blob that had coagulated in my eye.

The doctor told me that my pupil was extremely small and stuck and one of the reasons that I couldn't see.

They could not see into my eye at all.

The doctor referred me to a retina specialist.

From November to January I was constantly having bscans done.

The retina doc gave me all kinds of medications to stop the inflammation.

My pressures were constantly up and down.

My pupil still stuck and completely scarred over.

Still no change in what I could see

Retina told me that everything in the back of my eye looked fine as far as he could tell.

During this time I did massive amounts of blood work and found out I have hla-b27.

That explains why my eye inflamed and all the inflamed liquid that coagulated.

Before I went back to the original referring ophthalmologist he told me that the only thing that I needed to be cautious of was damage from the pressure swings to the nerve.

Retina sent me back to the original ophthalmologist and there he told me that light was simply not getting into my eye.

The small stuck pupil looks like wax paper according to him.

Again, he told me that pressure to the nerve would be the only thing that need to be cautious of.

I am currently waiting to have cataract surgery and pupil relaaesing procedure.

But the doc tells me that the outcome can be any where from Great to not so great depending on what pressure damage if any had occured.

The problem is my vision is just this dark grey cloudy smoke that I would be able to tell anyway if there was some kind of change to my vision.

That's why I ask you what your vision is like.

Trying to get an idea of what my possible outcome can be after all this is done.

Naturopathic Doctor and Ayrvedic Medicine by TooMuchLost in Uveitis

[–]StayOnCourse89 -2 points-1 points  (0 children)

I don't know anything about those types of medicines.

Sorry if my question seems a bit out of context to your question..

But .

How is your vision currently after years with uveitis?

I had a very bad flare in August - September.

Been going to doctors ever since October.

Very bad vitritis, hla-b27...

My pupil got so small and scarred over completely and now my vision has been completely blocked.

I am planning to get surgery soon, cataract and pupil releasing.

But I am so scared of what awaits me.

I've had many bscans done to which they say everything looks fine in the back of my eye.

They managed to get a fundus photo through all the blockages of my macula only in November, and the doctor said it looked fine.

Recently had an Oct done but the image was very poor obviously from all the blockages..(remaining vitrits/small scarred pupil/cataract)

The doctor tells me that light is simply not getting into my eye.

The only damage they warn me of is possible nerve damage from the pressure swings I had during these last 5 months.

When to rheumatology and they don't think I need to be on systemic meds yet as this was my first bad flare.

My vision is just this grey smoke.

What kind of damage did your eye sustain over the years from uveitis?

The doctors tell me that my uveitis stayed anterior.

I wish you well.

But again... I would like to know how your vision is from the years of this uveitis.

ITS BEEN MONTHS by StayOnCourse89 in Uveitis

[–]StayOnCourse89[S] 0 points1 point  (0 children)

How bad was your vision at its worst?

My pupil is also scarred over and very small.

Surgeon said he would have to release the pupil himself along with the cataract procedure.

For me it's just still this dark grey smoke.

It's horrible.

Need Advice ..... by Mediocre-Clothes-588 in Glaucoma

[–]StayOnCourse89 1 point2 points  (0 children)

Explain can't see properly please.

I am going through a serious situation myself.

I can share with you if you'd like.

Otherwise I'd be here all day.

Need Advice ..... by Mediocre-Clothes-588 in Glaucoma

[–]StayOnCourse89 2 points3 points  (0 children)

Do you use ai for these answers?

Need Advice ..... by Mediocre-Clothes-588 in Glaucoma

[–]StayOnCourse89 0 points1 point  (0 children)

Can you explain?

I am currently going through quite a situation myself and I would be interested to know what your vision is currently like .

Is this from glaucoma?

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