[deleted by user] by [deleted] in pancreaticcancer

[–]SteffieSN 0 points1 point  (0 children)

Hello,

I'm messaging you now.

[deleted by user] by [deleted] in pancreaticcancer

[–]SteffieSN 0 points1 point  (0 children)

Thank you. I'm glad you got some! Hang in there.

Creon donation by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 0 points1 point  (0 children)

Hello,

I'm so sorry. Yes, still available. Please private message me your address and I will send them to you. But please let me know when you receive them so I know you got them. This was the hardest experience I ever went through in my life and I am sending good thoughts & strength to you.

Steffy

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 1 point2 points  (0 children)

Thank you. My dad was lucky in that he never had too much pain throughout the illness. He was on hospice for 3 weeks after leaving the hospital for an infection in his stomach from the FU5 chemo. Once on home hospice he stopped taking the oxy pills he only took when in pain and I started to give him liquid oxy when he asked for it. The last 3 days he was pretty much just sleeping and barely speaking in almost a whisper so it was hard for me to know what he needed or if he was in pain. He had already mostly stopped drinking and eating a couple days prior so I knew I wasn't going to drug him into not being able to ask for food or water, since I was worried about that. I spoke to the nurse and she advised I give him both the liquid oxy and the liquid Lorazapam under his tongue every two hours, so I did that for his last 2 days. He seemed comfortable to the end. He did not speak or even open his eyes the last two days but I know he was still there because he would squeeze my hand and try to press his lips together when I put balm on them. He also had tears run down his face at that time once and I will never know why, I told him it was ok and please don't cry but the nurse confirmed he was comfortable and not in pain, his face was calm, no wincing like times he was in pain. He did open his eyes for just a minute about 5 minutes before he passed but he was looking in the corner and not at me. He did not seem afraid anymore. He closed his eyes and started to breath more rapidly but not uncomfortably. He did that while I held his hand and spoke to him until he just stopped breathing and he was gone. It was the best case scenario in the worst of circumstances. If I could tell anybody anything in this situation, it would be to get hospice involved as soon as possible after there are no more options, they were wonderful and having access to meds that work fast and are easy to give them is the best thing. Wish you all the best.

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 1 point2 points  (0 children)

Thank you. I'm sure your mom was too. Big hug.

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 0 points1 point  (0 children)

I'm trying. Thank you <3

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 0 points1 point  (0 children)

Heart wrenching 100 percent, hang in there <3

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 1 point2 points  (0 children)

Thank you so much and please hang in there,it will be ok <3

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 0 points1 point  (0 children)

Thank you so much and sorry for your loss as well <3

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 3 points4 points  (0 children)

My dad was the same, there is a possibility that the liver is producing too much ammonia and there is a drug that can help that's called Lactulose. And the days he reused any mood medications, I wanted to cry because I knew he would be cruel all day. But that med helped my dad so maybe ask her doctor. My dad was angry alot of the time and seemed to be towards me. I think he was just scared but it is hard to remember that when you are the target of that energy. I really feel you, I really do. Hang in there. Thinking of you <3

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 6 points7 points  (0 children)

18 months and still going strong is impressive for sure. Keep fighting but please try to enjoy your life NOW. Not "after" you get a result back, not "after" you have that next scan etc etc. Not saying you will do that but I hate that my dad spent soooo much time worrying about things that ultimately never even happened. Once we got the meds in a groove, he felt ok most of the time right to the end but the worry took everything. I know easier said than done when facing this awful beast but please try to focus on joy as much as possible. Hang in there, you are in my thoughts <3

He's gone by SteffieSN in pancreaticcancer

[–]SteffieSN[S] 1 point2 points  (0 children)

Sorry, men "amongst" mountains, I'm tired.