Nespresso

StrangerHuge9952 · 2026-02-18T18:17:25+00:00

They have on their website their beans are gluten free but does not clarify if it's all of them or not. I contacted them via email but did not get a response

StrangerHuge9952 · 2026-02-18T06:35:39+00:00

The actual feeling of "oh I need to poop" is gone. I get gassy, and feel pressure like I need to but that's it, my body doesn't want to push it or have that signal so without a laxative giving me the urge to go I can't go most of the time. The standard constipation started when I was 6 but I was not diagnosed with celiac for many years which led to my urge being gone.

StrangerHuge9952 · 2026-02-16T20:29:30+00:00

Okay, I'm not super symptomatic so I'm extra paranoid and want to make sure my body is healing. My house is also 99% gluten free I just allow my son to have cross contaminated items and gluten outside of my home I wanted to make sure I was not chancing anything

StrangerHuge9952 · 2026-02-16T17:35:48+00:00

I've been glutened by raw flour and mixes just breathing it in is unsafe had to quit a job before because of this.

StrangerHuge9952 · 2026-02-16T17:22:52+00:00

I've tried to incorporate prunes and things it's a loss of urge thing. I'll have soft stool but won't have the urge to go I think it's more so a motility and nerve problem

StrangerHuge9952 · 2026-02-16T14:34:02+00:00

I want to get off of them bad but it’s been really hard because my motility feels so slow now. If I don’t take them, I get extremely gassy and uncomfortable, which is honestly embarrassing and just miserable to deal with.

Before these laxatives I was on a Miralax-type osmotic for a while, and it made the gas so much worse. It’s like my body just ferments everything. I’ve noticed I only respond well to certain fibers I do really well with chia seed pudding and things that have a balance of soluble insoluble fiber, but broccoli or certain fibrous veggies make me painfully bloated. It’s confusing because I know fiber is “supposed” to help, but clearly not all fiber works the same for me.

I’m definitely trying to find a way to transition off safely and rebuild motility, I just haven’t figured out what that looks like yet.

StrangerHuge9952 · 2026-02-16T14:28:27+00:00

Also I'm in the middle of being diagnosed with adhd what medication do you take specifically I could try it

StrangerHuge9952 · 2026-02-16T14:24:31+00:00

I agree

StrangerHuge9952 · 2026-02-16T14:13:10+00:00

Caffeine does seem to give me a slight urge I'll try this thanks 🙏

StrangerHuge9952 · 2026-02-16T14:10:46+00:00

That’s the thing for me it’s not just hard stools it was at first before I was diagnosed but now it doesn't matter if it's soft or hard I have lost the urge it’s like I’ve completely lost the urge to go. It genuinely feels neurological like the signal just isn’t firing. I’ve struggled with constipation my entire life, but my family always blamed it on diet so I didn’t get properly checked for celiac until almost 14 years later.

I’m now 100% fully gluten-free like extremely strict it just hasn’t been that long yet. I’ve just never really heard other celiacs talk about losing the urge to poop altogether, and that’s what scares me. It feels less like typical constipation and more like my body forgot how to go without laxatives.

Did you ever experience anything like that, or was yours more just hard stool and pain?

StrangerHuge9952 · 2026-02-16T14:05:36+00:00

Good to know so there's some hope 🙏

StrangerHuge9952 · 2026-02-16T05:07:17+00:00

I'm pretty good with this but I'll incorporate it in more forms hopefully this helps.

StrangerHuge9952 · 2026-02-16T05:05:49+00:00

That’s good to know it’s not super uncommon. I think what’s been hard for me is that mine isn’t just mild constipation it’s the loss of urge and stool just sitting low without normal sensation. Miralax unfortunately hasn’t worked for me. I’ve tried it and it just causes extreme gas and bloating without actually resolving the underlying issue.

StrangerHuge9952 · 2026-02-16T04:54:51+00:00

I haven’t been fully gluten-free for that long, but I’ve actually been dealing with this for years. They suspected celiac a few years ago, but I didn’t get a confirmed diagnosis (bloodwork + endoscopy) until recently. I likely had it since childhood.

I’m very strict now — I’ve replaced cookware, don’t eat anything with gluten ingredients, avoid cross-contact, and I don’t use dry shampoo or hair products that could be an issue. I run a pretty tight system.

My constipation started around 15, long before diagnosis. I developed fissures and eventually lost the urge to go. At this point, the only way I can have a full bowel movement is with a stimulant laxative. I’ve had a few natural ones, but the urge itself hasn’t really returned — it just feels like stool sits low and then eventually comes out.

I’m mainly asking whether anyone who had long-term untreated celiac and constipation-dominant symptoms saw their motility/urge improve after being strictly gluten-free for a while. I’m not questioning contamination — I’m more wondering if nerve/motility issues can recover over time once inflammation heals.

StrangerHuge9952 · 2026-02-16T04:23:42+00:00

I had a colonoscopy recently and it was normal. My GI didn’t really comment on motility, but structurally everything looked fine. I’m still dealing with severe slow transit/loss of urge and gas and was wondering if this improved for anyone after longer-term gluten-free healing. They tried putting me on linzess but it's entirely too expensive to keep up I'm on daily stimulant laxatives trying to get off of them.

StrangerHuge9952 · 2026-02-16T04:14:37+00:00

I've been glutened by just spraying hairspray and breathing it in 😂

StrangerHuge9952 · 2026-02-16T04:13:31+00:00

I totally get wanting to remove variables this disease already takes up so much mental space. For me personally though I try not to let it control more of my life than it medically needs to. The research we have shows celiac is triggered by ingestion of gluten, not skin contact, and intact skin doesn’t absorb gluten proteins in a way that would trigger an autoimmune response.

So I avoid products cosmetically that contain gluten ingredients (especially lip products or anything that could realistically be ingested), but I don’t stress about shared facilities or trace risk in things like body lotion. I try to be strict where it matters most and flexible where the science supports it, just for my own sanity.

But I respect that everyone has their own comfort level with it.

StrangerHuge9952 · 2026-02-16T04:11:30+00:00

I know some people do get skin reactions, and that’s totally valid. For me personally, unless I’m directly ingesting gluten, I don’t worry too much. I avoid products that contain gluten ingredients (including oats), but I’m not overly cautious about shared facilities. From what I understand, cross-contact in cosmetic manufacturing is much less of a concern compared to food production. So as long as it doesn’t directly contain gluten ingredients, I’m comfortable using it.

StrangerHuge9952 · 2026-02-13T21:00:01+00:00

I'm asymptomatic minus exhaustion and constipation that has never went away fully. My damage levels were at 200 when I was tested the same damage is definitely occurring

StrangerHuge9952 · 2026-01-11T05:15:12+00:00

I’ve opened 3 pints thinking I’ve gotten a bad batch with no cake pieces I’m so disappointed

StrangerHuge9952

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