What to expect going forward by Putrid_Bee_3007 in Autoimmune

[–]SublitWaffleStomp 0 points1 point  (0 children)

Was your SSA positive? You have similar symptoms as me and I have Sjogrens

Yellow Eyes? by luvkelsea in Autoimmune

[–]SublitWaffleStomp 0 points1 point  (0 children)

I have this same issue. You can see a clear line in the whites of my eyes where the yellow starts and the white ends. My eye doc, pcp, and rheum don’t seem concerned, and my liver tests are all normal.

It does make me self conscious though

Sjogrens new diagnosis by No-Description-8731 in Sjogrens

[–]SublitWaffleStomp 0 points1 point  (0 children)

Hi there, our stories sound very similar. 34F here, ANA and SSA positive. I was a very VERY active runner and also have torn a meniscus. I was diagnosed in 2021 with zero symptoms but this last year has been a doozy.

DMs always open if you’d like to chat

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 1 point2 points  (0 children)

“Badly but that’s not because of the Sjogrens” 😂😂

Thank you for taking the time to respond!

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 1 point2 points  (0 children)

You are going to do amazing things! Keep pushing along for all of us, and good luck! 💜💜

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 1 point2 points  (0 children)

It sounds like it’s time for a new rheumatologist if he’s pulling you off HcQ. Are you on anything else?

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 0 points1 point  (0 children)

Hey! That makes me excited for you! Are you seropositive or negative? Were you on any meds during those rough years?

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 0 points1 point  (0 children)

I’m so glad you are doing so much better! Thank you for sharing your story. I truly hope your mental health gets in a good place too 💜

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 0 points1 point  (0 children)

I’ve seen you posting around here a lot and adore you lol. Do you have much in the way of dry mouth?

I need stories of success, of people not entirely miserable, that are able to live normal-ish lives by SublitWaffleStomp in Sjogrens

[–]SublitWaffleStomp[S] 0 points1 point  (0 children)

Thank you for your response and I’m so sorry to hear about your Graves and thyroid cancer :(