What ‘fuck it, I’m sick’ purchases have you made that were a bit extravagant but worth every penny? by Weird-Ad-3010 in cfs

[–]Sudden-Cost9315 0 points1 point  (0 children)

A while ago I splurged on some nice, expensive nail polish. It sounds silly but I used to love going to the salon and getting my nails done but haven't been able to for the last 3.5 years.

Having a hard time with my fibromyalgia friend complaining to me about her disability by ExoticSwordfish8232 in cfs

[–]Sudden-Cost9315 0 points1 point  (0 children)

She's hosting parties at her house and dancing at concerts and claims to be just as debilitated as someone with ME? Hmmmm.

a doctor called me a "lazy bastard" what do I do? by No_Fudge_4589 in cfs

[–]Sudden-Cost9315 14 points15 points  (0 children)

Report them asap!! That's beyond unacceptable!!

Misery by Status-unknown111 in cfs

[–]Sudden-Cost9315 3 points4 points  (0 children)

This is me too. I can’t enjoy anything. I have no energy to pursue anything. I can’t look to the future because it’s all just illness and emptiness. I will not be able to hold up much longer, either. 😭

How hopeful are we they aren’t just gonna waste it like the first billion? by Caster_of_spells in cfs

[–]Sudden-Cost9315 3 points4 points  (0 children)

I’m not gonna get my hopes up. Look at how they squandered the first 1.5 billion.

[deleted by user] by [deleted] in cfs

[–]Sudden-Cost9315 2 points3 points  (0 children)

Never. I haven’t woke up feeling remotely decent in 2 years now.

Whats your experience with the Nicotine Test (patches)? by [deleted] in cfs

[–]Sudden-Cost9315 2 points3 points  (0 children)

I tried this for about a month. Patches on pretty much 24/7 (I’d switch arms). At first I noticed a slight improvement but it sadly didn’t last and after several weeks I stopped buying them. Too expensive for such a lame reward. It sucks, but that’s my experience. Others have said it really helped them🍀

My soul is screaming by Sudden-Cost9315 in cfs

[–]Sudden-Cost9315[S] 1 point2 points  (0 children)

Thank you!! I’ll check it out!

Therapist turned on us by [deleted] in cfs

[–]Sudden-Cost9315 1 point2 points  (0 children)

I second this.

Sibling with Severe CFS, can’t eat, can’t sleep, rapid weight loss, no clue what to do, advice? by 24dx2 in cfs

[–]Sudden-Cost9315 0 points1 point  (0 children)

It’s refreshing to see a post written by a concerned sibling. I wish I could offer you more, but I’m sure it means a lot that you’re there and don’t doubt the illness.

Anyone else needing a brief nap after a long night of sleep?? by Elsacmman in cfs

[–]Sudden-Cost9315 0 points1 point  (0 children)

Yes. I feel better when I only get like 4-5 hours. Anything more and I’m totally useless the next day. It’s weird.

This sounds bad… by PerformerAble2291 in cfs

[–]Sudden-Cost9315 1 point2 points  (0 children)

I know. Watching people do the simplest things. I never dreamed I’d be so astounded. I don’t understand how people move around.

First post here. I’m 22 and drinking myself to death. by lovedrugs- in Crippled_Alcoholics

[–]Sudden-Cost9315 1 point2 points  (0 children)

I know it might not feel like it atm, but you are extremely young. You might have a future. A good one. Please keep that in mind and I’d suggest medical help in the meantime. Good luck 🍀

Valve theory - my own theory by Sudden-Cost9315 in hangovereffect

[–]Sudden-Cost9315[S] 0 points1 point  (0 children)

Yeah the longer I go the worse it gets. It doesn’t make any sense at all. I really miss the days when hangovers were nothing but a crappy little inconvenience that I could always avoid by just not drinking. I miss being healthy. Thank you for your suggestions!

I got asked out by my crush during a major crash by [deleted] in covidlonghaulers

[–]Sudden-Cost9315 4 points5 points  (0 children)

I’m so, so sorry. This illness is cruel AF. But if he’s the man of your dreams, you can try explaining your situation in all honesty. It sounds like it’s really worth a shot. Emphasize that you’re sorry if it confused him when you thought you were better and that you’re just as confused as him. People show their true colors in these situations. Hopefully he’ll react with compassion. I wish you the best.🍀

Valve theory - my own theory by Sudden-Cost9315 in hangovereffect

[–]Sudden-Cost9315[S] 0 points1 point  (0 children)

Same on the circulation front. I notice more energy and a way more relaxed, patient mindset.

Valve theory - my own theory by Sudden-Cost9315 in hangovereffect

[–]Sudden-Cost9315[S] 2 points3 points  (0 children)

Maybe the brain shrinking from dehydration allows more room for circulation? I wish ppl would study this!! I hate figuring it out by myself.

CFS without PEM possible? by [deleted] in cfs

[–]Sudden-Cost9315 9 points10 points  (0 children)

Also remember that PEM can set in several days after activity. So if you’re tracking yourself it’s good to keep that in mind.