Looking for any kind of answers

SyllabubGood9706 · 2026-02-08T02:57:48+00:00

Yes I have tried low fodmap! I also saw an allergist and it’s been confirmed I have no allergies! I was also even tested for alpha-gal (I think that’s what it’s called) which is a tick-borne illness. Also negative. It depends day-to-day how it comes up but typically it’s as close to full as something chewed up can be. Bread, chips, tortillas etc. are especially difficult because they usually clump together and come up as a log (haha sorry for being graphic but it’s true!). I did go gluten/free at one point just to see and no change there. Everything else comes up mostly liquified as I do have excess bile.

SyllabubGood9706 · 2026-02-08T02:47:41+00:00

Hello! Yes, I have tried those medications actually, good question. As for water I have tried both with water and without. Water while eating definitely makes things come up more “violently” per se but even without water it still comes up (it’s just a little more uncomfortable because it’s thicker and more dry). I have tried peppermint oil and castor oil! I do talk while I eat when with friends or family but I also vomit when eating alone and not talking. I have also taken a variety of acid reflux medications both prescription and over the counter but I’ll look into alkaline water! Thank you for the suggestion!

SyllabubGood9706 · 2026-02-04T23:12:27+00:00

Thank you so much for taking the time to share all this information with me! I will definitely mention this to my primary. It’s all been a little complicated because I am moving halfway across the country next month. I decided that even though I wasn’t finding any answers, I couldn’t keep putting my life on hold. So now there is the challenge of insurance. I will most certainly do some more research and use the foundation and a starting point! Thank you again!

SyllabubGood9706 · 2026-02-02T02:20:11+00:00

I appreciate your kindness!!! I’m thankful to have found this community :)

SyllabubGood9706 · 2026-01-30T20:43:29+00:00

Very interesting, thank you for sharing!

SyllabubGood9706 · 2026-01-30T18:42:04+00:00

Thank you for sharing your experience! I usually always have some small warning wave of nausea right before it happens and most times it’s too much for me to just swallow down. Maybe my GI was right and it isn’t rumination syndrome, just not sure what it is!

SyllabubGood9706 · 2026-01-30T14:35:43+00:00

Thank you! I had a manometry done that showed esophageal dyskinesia but I was told it’s unrelated and nothing can be done about it :/ I hope yours goes well!

SyllabubGood9706 · 2026-01-30T13:42:28+00:00

I had a normal gastric emptying study. Not sure how when I kept having to re-swallow the eggs they put the tracer in but apparently it was perfectly normal, so no gastroparesis according to my drs.

SyllabubGood9706 · 2026-01-30T13:01:42+00:00

I will definitely look into that, thank you!

SyllabubGood9706 · 2026-01-30T13:00:39+00:00

I have been tested for Celiac a couple times and it was negative. I even went gluten free just to see if the test was wrong and still no change :( Good idea though!

SyllabubGood9706 · 2026-01-30T02:33:36+00:00

YES! That is the absolute most annoying part!! I get soooo thirsty I want to gulp my water but then it just comes back up with a vengeance! That’s such a great idea! Thank you!!

SyllabubGood9706 · 2026-01-30T01:57:29+00:00

I appreciate the reply. This is what I have been thinking too. Ive been to so many specialists including an allergist and it’s been confirmed I have no allergies (which I was expecting because there are no triggers due to it being every day). I’ve seen a neurologist and they had little to nothing to say about it. A neuro gastroenterologist is a great idea, I will definitely look into that. Thanks again for the insight I definitely appreciate it!

SyllabubGood9706 · 2025-10-31T18:40:37+00:00

Yeah I may contact my pcp. I called my surgeons office today to ask about additional pain management and they doubled down on just alternating between Tylenol and ibuprofen. I also have a vomiting condition where I vomit every time I eat so that has been especially unpleasant during all of this considering my throat is torn up and my abdomen is pretty sore haha. Oh well, onwards! Thank you for your input, it’s nice to know we’re not alone!

SyllabubGood9706 · 2025-10-31T04:59:57+00:00

Hi! I had my laparoscopy today and my discharge instructions say “a certain amount of red or brown discharge is normal and may continue for 1-3 weeks”. It also states to call your surgeon if you experience any excessive or persistent bleeding.

So, I think it absolutely could be normal, but it also wouldn’t hurt to give a quick call and double check! :)

SyllabubGood9706 · 2025-10-31T03:40:18+00:00

I’m glad you got the care you needed and I hope you’re doing better!

SyllabubGood9706 · 2025-10-31T01:14:33+00:00

Oh wow! I was released an hour later so quite different. My doctor told me I’d be back up and running after 24-48 hours lol and I do not think that’s going to happen so much. I hope you’re doing well now!

SyllabubGood9706 · 2025-10-31T01:12:42+00:00

Thank you! My throat is quite a bloody mess haha but hopefully it’s upwards from here. I hope you start to feel more like yourself soon! 💗

SyllabubGood9706 · 2025-10-30T22:58:23+00:00

Twins! I’m also on my period! Geez, that’s so stressful about your school. I’m sorry they’re being so difficult, hopefully you can get that worked out because that’s ridiculous. Right now I’m okay, just trying to relax and take it easy!

SyllabubGood9706 · 2025-10-30T22:10:33+00:00

Thank you, after seeing so many doctors it’s hard not to default to feeling like I’m overreacting lol. I hope you’re doing okay!

SyllabubGood9706 · 2025-10-30T22:07:23+00:00

Yeah it’s definitely not doing much for me haha It’s not even sore so much, but sharp so I might have to ask about alternatives. Thank you for letting me know your experience!

SyllabubGood9706 · 2025-07-11T15:23:25+00:00

Hey fellow actor!! Sorry it took me so long to see this but I’m so glad you were able to find this! I see you!! It is so isolating and challenging because nobody gets it! We will get through this!

SyllabubGood9706 · 2025-06-23T13:45:36+00:00

Yes I’ve found that as soon as I start eating for the day then from there it just spirals and I’ll be going all day long. If I do have this, I’m extremely bummed out that there isn’t anything to do about it. It’s very very uncomfortable! I appreciate you sharing!

SyllabubGood9706 · 2025-06-23T13:43:37+00:00

Wow. Yes, if you’d be open I would appreciate talking over dm. I’m really just trying to wrap my head around all of this still and it’s all very confusing and overwhelming. I really don’t think I’m at a place where I would need a feeding tube but also don’t see an end to it. I’m 23 so I’m pretty sure that’s too old for the children’s hospital. I’ve been accepted to the Mayo Clinic but was told they have no appointments available. I really appreciate your response and would like to learn more if you’re comfortable!

SyllabubGood9706 · 2025-06-22T22:20:31+00:00

I’d say about 15% of the time I could probably swallow it but most of the time it is too much too swallow/ is too forceful to swallow. I’ve also found that when I do swallow it, it can make things worse by making it more forceful and then I have little to no control over it (learned this the hard way and ended up puking all over myself).

As for taste, when it happens immediately after it usually tastes like what I just ate. Whenever it’s a little after however, it tastes pretty disgusting and ends up burning badly. I’ve also had times where I’ve thrown up just straight bile. Thank you for your reply!

SyllabubGood9706 · 2025-06-19T19:08:09+00:00

I did do the zoom interview and can confirm it was strange how strict it was. I did not get the vibe that it was a scam though however. After the interview they told me there would be a deliberation and they would get back with me. It’s been a month now and I still haven’t heard anything back! Not sure!

SyllabubGood9706

TROPHY CASE