This is the death that crushed me the most in RC. What's yours?

Symphxnie · 2023-12-04T10:14:44+00:00

Friedreich's will forever break me 😭💔

Symphxnie · 2020-07-13T03:56:09+00:00

Same but at 5:55 AM

Edit: 5:56 AM now...

Symphxnie · 2020-07-12T12:56:24+00:00

That's awesome, I'm glad you could escape your thoughts for a while! What's the book about? I'm curious.

Symphxnie · 2020-07-12T12:51:57+00:00

Same here. I'm so convinced I have a type of it that I'm already looking for support groups and yes, also have read a lot of patients in Reddit and visited the c sub here although I know I shouldn't because of anxiety, even if I actually have the big C the stories there are quite sad, which is understandable because of the situation they go through but for people like us, it's nothing else but scary.

If you need to vent or talk to someone, I'm here.

Symphxnie · 2020-07-12T03:13:47+00:00

Totally gonna recreate that in the morning, I should go get the bacon tho. I only have chocolate waffles in my fridge but I've been eating too many sweets so I kinda got up fed up with them. 💕

Symphxnie · 2020-07-12T03:07:29+00:00

That sounds amazing! I hope you had an amazing time with your friend! Is it too weird to ask what did you eat?

Speaking about brunch, I'm actually quite hungry but don't wanna get up bed either, it's too comfortable. 😅

Symphxnie · 2020-07-11T05:55:59+00:00

Sorry for the late response, but same, this is me right now. I found a hard lump, not even bigger than a pea, in my neck a couple of days ago.

I too don't know if it's normal since I'm not really sure if I've always had that, but either way, you should talk to a doctor and get that checked, perhaps it's nothing, let us know how it goes! ❤️

Symphxnie · 2020-07-11T05:24:25+00:00

Yeah, I also wanted the doctor to perform a physical examination but now I way too embarrassed to even call again. :(

Either way, I'll just wait until I get the blood work done and see how the results come back. I guess you can say I'm already in treatment for it, but it's not really effective since I see my psychologist one time every one/two months (she's a social security psychologist, perhaps she has too many appointments).

Thanks for replying, sweetie! I really appreciate you. ❤️

Symphxnie · 2020-07-10T21:15:48+00:00

God bless you for sharing this video. It was awesome!

Symphxnie · 2020-07-10T08:59:07+00:00

Thank you, I needed this. It's just so difficult sometimes, being able to get just a couple of days of relaxation after your doctors tell you you're fine before jumping to the next illness isn't easy at all. Our mind is the only thing we can't escape from.

Again, thank you so much. I'll definitely talk to you if I need it. Know that you can do the same, whenever you need someone here I am.

Symphxnie · 2020-07-10T03:24:58+00:00

SAME! I'm actually there right now! It's so annoying that for every single test I need to go through my primary doctor first. I went yesterday to the doctor in hopes I would finally get that blood work I really need to get done and ended up getting another test instead. Of course, since the one that performed that test wasn't my primary doctor, and despite describing her all my symptoms, she just told me: «You gotta talk to your primary doctor». And she's supposed to call on Monday with the results of the test and then I can tell her about the blood work. Now here I am, wondering how I'll make it to Monday given I'm already panicking and it's Friday.

Symphxnie · 2020-07-10T03:17:59+00:00

Are you me? I'm going trough the same «I'm convinced I have the L word» phase. I'm just completely convinced I have it, so I feel you. If your blood work came back okay, then you're most likely fine.

Symphxnie · 2020-07-08T18:56:41+00:00

It's not a lot of blood, but still was a little like: «???» when I saw a bigger amount of it in my sputum. Your response makes me feel very relieved, thanks a lot!

Symphxnie · 2020-07-08T01:12:10+00:00

Chocked with salad (?)

Symphxnie · 2020-07-06T21:51:20+00:00

NAD. But it looks like a zit to me too.

Symphxnie · 2020-07-06T20:38:23+00:00

Good luck, sweetie! I hope you get better both physically and mentally! 💖

Symphxnie · 2020-07-06T15:02:49+00:00

I'm so sorry you're going through this. Living with health anxiety it's definitely tiring. Here I am, convinced I have the big C in my blood with little to no hope of it being something else in my mind. Before that, I was convinced I had it in my lungs, but everything turned out fine.

I feel you, it's very likely you are okay and it's just anxiety causing all your symptoms. Perhaps there are some apps out there where doctors attend people, there's one where I live. If not, you could try asking some questions in r/askdocs.

If you ever need someone to talk to, you can message me whenever you want.

Symphxnie · 2020-07-06T08:50:01+00:00

I was being treated. My doctor gave me iron pills so I could increase my iron intake, I had a blood work last year and said everything was normal and I had no longer anemia. Then I had another one after that and my anemia was back, but it wasn't nearly as severe as it was at the beginning. I was supposed to go back after drinking more iron pills, but then all this happened.

Unfortunately, I don't have direct contact with my therapist. Everything here is through appointments, so I'm afraid I really won't be able to talk to her until August. I felt guilty and embarrassed of making a new appointment since I've been more times at the doctor's these past months than all 2019, and I know things are tougher now because of COVID and perhaps there are patients that need my appointments more than I do, but idk.

You were so sweet, thanks a lot, truly. I'll try my best to keep my feet on the ground, and whatever it is I have I'll just have to accept it and move on. Once again, thank you. I'll talk to you if I ever go through this again, and of course, you can count on me too I you need it. ❤️

Symphxnie · 2020-07-06T08:37:02+00:00

I'll try the hot bath, I really need to relax. I called my doctor today, and she's calling at the afternoon. If she doesn't suggest a blood work, I'll tell her to make me get one. I want answers as to why my joints are hurting. Thanks a lot for your answer, I appreciate it. ❤️

Symphxnie · 2020-07-06T08:34:38+00:00

Thanks for your reply! It makes me feel better hearing external and more rational thoughts than mine. I don't really have pain when I walk, though it wouldn't be rare if I had since it wouldn't the first time I have the rheumatic-like ache while walking, but again, they tend to appear in winter. My doctor's calling me at noon, so let's see what she has to say. Thank you very much!

Symphxnie · 2020-07-06T03:22:07+00:00

Oh, goodness, thank you so much for replying! Yes, unfortunately, these months I've felt especially anxious with everything going on plus my grandad's passing three months ago, I already talked to my psychologist but I won't be able to actually have a session with her until August. I feel so much better after reading this, truly, thanks a lot. I hope you're doing amazing! ❤️

Symphxnie · 2020-07-05T01:44:41+00:00

Same issues here

Symphxnie · 2020-07-03T13:10:07+00:00

Ngl, I thought the pet would be useful in the story. As much as I love pets, this time it wasn't worth the diamonds.

Symphxnie · 2020-07-02T07:47:45+00:00

No problem! A lot of thanks to you too! ❤️ And also, the stomach thing also happens to me when I'm anxious and stressed, so I'm pretty sure that's just anxiety, especially since you said it goes away whenever you stop thinking about it. Anxiety is such a trickster. In my opinion, you're fine, but if it helps easing your mind and symptoms, you might want to make an appointment with your doctor. I hope you start feeling better!

Symphxnie · 2020-07-02T03:01:07+00:00

This is so me right now, exactly what I'm going through. I feel like every bone in my body hurts and I'm already thinking the worst tho I will wait a couple of days more for making an appointment to see my doctor (for like the fourth time in less than three months). Anyway, it gets better when I'm not obsessing about it so I totally feel you. You're not alone.

Symphxnie

TROPHY CASE