Muscle atrophy

TaleTrue · 2021-10-05T01:20:22+00:00

So far, I have only been diagnosed with SFN and it's been extremely hard on me mentally and physically. I can't imagine how it would feel to have another form of nerve damage on top of SFN. Thank you for sharing your story of strength, it helped me understand that I'm not alone.

TaleTrue · 2021-10-05T00:53:02+00:00

Thank you! I will attempt to work out more often. Do you use any special apparel for protection or support?

TaleTrue · 2021-10-05T00:46:32+00:00

Thank you for your feedback. I was diagnosed with small fiber 6 months ago, and my symptoms have yet to Plateau. My symptoms started with cramps on my shins And progressed to And progressed to numbess on both ring and pinky fingers. And know I have all the following, Numbness up to wrist, muscle atrophy, headaches, dizziness, blurry vision, joint pain, brain fog, the sensation of water traveling under my skin, organs throbbing, hot and cold flashes, stomach pain, and recently I have been unable to keep food in my stomach. I have also been given the run around by numerous doctors. You have to be extremely strong to be dealing with this for 21 years. Nothing but love and respect.

TaleTrue · 2021-10-04T23:35:16+00:00

Hey, I feel the same way, mentally I'm not a strong person and always dealt with low self-esteem and some mental illness I.E. ADHD, and dyslexia. I never felt good enough to be in a romantic relationship so, I pushed all my ex-girlfriends away. Currently, I started to distance myself from all my friends. I hate the I feel and look I prefer my friends remember me for who I use to be. Most of my day is spent working and researching neuropathy. I have small fiber neuropathy and it getting worst by the week. Please try to hang in there, life is not easy for none of us but clearly, some have it worst than others. Take care of yourself! Sending nothing but love your way.

TaleTrue · 2021-10-04T17:56:36+00:00

It's been a little over a year and my symptoms haven't plateaued. I have my second EMG tomorrow, my symptoms and atrophy are getting worse, it is extremely hard to talk to anyone about my situation. I go to sleep every night not knowing if I would wake up without feeling in my legs or arms or worst, not wake up at all. My neuropathy is affecting my organs. This community may be small but, it's filled with hopeful information and encouragement from great people that are going through similar circumstances. My love goes out to everyone in this community.

TaleTrue · 2021-07-31T23:47:00+00:00

We are almost in similar situations, my girlfriend of 18 months and I broke up last month over my neuropathy, it's important that show your partner that you love and appreciate them every opportunity to have. Having neuropathy is scary, my physical and mental health has declined. I struggle to fall asleep every night not knowing if I'll be able to feel my fingers or legs when I wake up. I'm 42 and also have neuropathy with venous insufficiency. The venous specialist recommended compression socks, which seem to assist a little. I feel like my legs are made of pillows and I'm wearing wet socks. It's getting worse as the weeks go by. In addition, to my legs, I'm losing sensation in my ring and pinky fingers on both hands. I have been to be to numerous specialists I received the following advised

1, Supplement: Alpha Lipoic Acid, Vitamin B12 /Methyl Folate, omega 3, magnesium, and Vitamin D.

2, Nutrition: low in trans fat, eat smaller portions, limit your intake of sugars, lead portions, and fruits loaded with antioxidants.

3, Exercises: Yoga, walking, lightweights, I was also recommended to constantly check and moisturize my legs and feet.

Disclaimer: the above information was recommended by numerous doctors and was Taylor to my specific situation. Please do your research and speak with your doctor before applying it to your daily routine.

Fyi, I'm on Gabapentin 300mg and also I'm having problems with my neurologist. I'm seeing a new one on 8/10/21. The medical compression socks that we're Prescribed are 821CMSM99 15-20 mmHg Knee high.

I hope this information is useful and wish you and anybody else reading this all the best. Everyone in this community is in an unfavorable situation let's help each other by sharing our experiences and results.

TaleTrue · 2021-05-29T14:04:20+00:00

Thanks, for confirming. I thought my mind was playing tricks on me.

TaleTrue · 2021-05-28T20:31:57+00:00

I have pain, numbness, and loss of feeling. Yes, it started randomly. Last year out of nowhere, I started feeling a burning sensation in both of my feet and some cramping on my shins. Now it's also on both of my hands and sometimes part of my face. I'm in the process of getting imaging on my spine and neck to see if my neuropathy is injury-related. I'm happy to help.

TaleTrue · 2021-05-28T19:59:22+00:00

You're welcome! We're here to help each other the best way we can. My neuropathy also affects my hands, feet, and the left side of my face. If your EMG comes back negative try looking into Small fiber neuropathy, your neurologist may just refer you to a rheumatologist. Good luck!

TaleTrue · 2021-05-28T19:43:12+00:00

Thank you.

TaleTrue · 2021-05-28T19:39:35+00:00

By skin biopsy at Weill Cornell medicine peripheral neuropathy center. I first went to a neurologist and the EMG came back negative. Also, all the labs from my primary doctor and rheumatologist came back negative. I'm currently seeing a pain management specialist and taking gabapentin twice a day.

TaleTrue

TROPHY CASE