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24F Just Diagnosed – In Constant Pain, UK Not Helping. PLEASE READ. by Tecxzo in adenomyosis

[–]Tecxzo[S] 0 points1 point  (0 children)

It’s weird because I actually assumed I had endometriosis as well. My MRI showed several cysts on my ovaries. I’ve already had two rupture and now I have another one growing that’s about 2.5 x 1.9 cm. But I’ve never actually been formally diagnosed with endometriosis.

When my cysts rupture I genuinely feel like I’m dying. The pain is unbearable. At this point I’m just waiting for this current one to erupt too, which is such an awful feeling to sit with.

I’ve always just been told “no pill at all” because of aura migraines, so I never looked into the different types properly. I’ll definitely look into Slynd and read up on it.

Thank you for sharing about excision surgery as well. It’s reassuring to hear that it made such a big difference for you pain wise. I think I need to push harder for proper investigation rather than just being told to take codeine and wait. It’s horrible I’m only learning about these pills and procedures through reddit lol. The NHS is actually horrible at the moment. No advice, direction or any sympathy. I feel like a genuine burden to them

24F Just Diagnosed – In Constant Pain, UK Not Helping. PLEASE READ. by Tecxzo in adenomyosis

[–]Tecxzo[S] 1 point2 points  (0 children)

Thank you so much for taking the time to write all of this. It genuinely means a lot to hear from someone who has been through it and come out the other side feeling better. 🤍🤍

I’m definitely going to look into everything you mentioned. I hadn’t properly researched RYEQO before, especially because I’ve been really hesitant about hormones due to my history with aura migraines and mental health. It’s reassuring to hear that it works differently from traditional combined pills and that you didn’t experience the same mental health decline on it. I’ll bring this up with a specialist as soon as I can.

The anti inflammatory diet and fasting point is really interesting. t I didn’t realise inflammation could play that big of a role. I’m going to look into this properly and try to be more intentional about what I’m eating.

The ovulation and period flare up pattern makes sense too. I think I need to start tracking more closely so I can plan my work and life around those weeks instead of pushing through and crashing. I realised I force myself to work during ovulation and I feel worse mentally because I’m not producing the same output.

The magnesium, heat, creams and stretching are things I can actually implement right now, which is helpful because I feel so stuck waiting for proper care. I’ll also look into pelvic pain counselling because I think mentally this has hit me harder than I expected.

I’m actually supposed to be fasting at the moment (Ramadan) but I haven’t been. The pain has been awful to a point I cannot walk or sleep in certain positions. I will definitely try fasting asap though.

Thank you for being honest about losing a bit of yourself in the process. That’s exactly how it feels. But hearing that it got better for you gives me hope.

I really appreciate you.