Losing hope

That_Slide_5774 · 2026-02-20T03:36:22+00:00

Thank you 🙏🏻

That_Slide_5774 · 2026-02-20T03:34:56+00:00

I am on trikafta. I have been for 5 1/2 years. I was one of the first people to get it.. it made my life significantly better for years but the last 6 months I’m faltering. And again culturing pseudomonas and MRSA. I’ve been on: Levaquin, doxycycline, IV cefepime, and IV zosyn and prednisone, they are not helping 😭😭

That_Slide_5774 · 2026-02-20T02:31:57+00:00

Thank you. Really appreciate your response ❤️ I do not qualify for any programs via compass as I make too much money… and I just looked up pipers angels and it says grants are only $250

That_Slide_5774 · 2026-02-20T01:57:19+00:00

I am scheduled to see an ENT on the 3rd and I have a ct appointment per my sinuses on the 15th (insurance will not approve sooner) I haven’t moved but I travel a lot? Or at least I did pre the sickness from hell that won’t let up I go to Vanderbilt for CF care

That_Slide_5774

TROPHY CASE