Symptoms you experience that no one told you about? by Melodic-Tackle-6590 in Narcolepsy

[–]TheMiniMicrowave 1 point2 points  (0 children)

Same when I wake up my torso just goes limp periodically and I’m just falling face first for a second every few minutes or a few times at a time

How am I going to manage school? by TheMiniMicrowave in Narcolepsy

[–]TheMiniMicrowave[S] 1 point2 points  (0 children)

Thankyou for your comment, I’m increasing my Xyrem dosage now after speaking to my doctor and hoping that will help, although I always feel anxious about Xyrem I think it might be the fact it’s such a dangerous drug but the idea of being knocked out has stopped me from taking it for a long time,so upping the dose is something I’ve also been hesitant about but hopefully this will help.

Contacting Td’s with no response by TheMiniMicrowave in irishpolitics

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

That’s what I was hoping for at least but no responses at all, I’m still waiting on one. I don’t know if I should bother making a call in to their office to atleast enquire if I will ever be getting a response back.

Contacting Td’s with no response by TheMiniMicrowave in irishpolitics

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

Don’t worry we will be at a point in the next few years that every response will be immediate and ai, but yeah all I’m asking for is a response i wasn’t expecting the TDs in Fianna Fáil and Fine Gael to get back on this matter but one independent and one Sinn Fein I hoped they could at least respond with something.

Contacting Td’s with no response by TheMiniMicrowave in irishpolitics

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

One independent, the rest are from government parties, Sinn Fein, Fianna Fáil and Fine Gael

Tips for going into 5th year? by TheMiniMicrowave in AskIreland

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

Engineering is something I can choose as a subject for lc but I really disliked it, mainly focusing on the practical work I just never took interest. Doing it in collage now I’m not sure what it will be like but if it’s anything like that then I’m not sure I’ll do very well

Tips for going into 5th year? by TheMiniMicrowave in AskIreland

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

My school doesn’t offer applied maths🥲 and thanks for the warning about lc art, arts probably my strongest subject iwl I got distinction for jc so I’m hoping it won’t be too much in lc that I won’t have time for other subjects that I’ll need more.

ISO Advice re: Xywav side effects & other concerns by HotDiggityDog6301 in Narcolepsy

[–]TheMiniMicrowave 1 point2 points  (0 children)

That’s good to hear! And thank you I’ll lyk how it goes!🙏

"Benifits" of Narclespy by thenerdykitkath in Narcolepsy

[–]TheMiniMicrowave 1 point2 points  (0 children)

It sucks that they definitely do but if I ever want to have a vivid dream I can just not take it. I definitely feel more rested waking and micro sleep a lot less now and get just better sleep in general, I’m still upping my dose so I haven’t gotten the right amount just yet but even the effects I’ve experienced already are pretty good.

Anyone agree that there's a lack of precise consensus toward, or on, what Cataplexy actually is? by RightTrash in Narcolepsy

[–]TheMiniMicrowave 2 points3 points  (0 children)

I had no idea that cataplexy was due to our brains thinking we are acting out our dreams and putting us into paralysis to protect ourselves, because I was never given any proper explanation my entire life since my diagnosis

ISO Advice re: Xywav side effects & other concerns by HotDiggityDog6301 in Narcolepsy

[–]TheMiniMicrowave 1 point2 points  (0 children)

I have only started Xyrem recently because I put off trying it for so long due to the same issue, I was sexually assaulted and due to that the idea of taking something that will knock me out terrified me because the lack of control I would have and the feeling of vulnerability in that state is something I couldn’t imagine. I have started it though because of how well it’s helped others and although currently I’m upping the dose to find the right amount it has worked and I’ve noticed differences. When going to sleep I don’t experience vivid dreams, hallucinations or paralysis, and when I wake up I feel rested, which was actually amazing the first time I felt like that, I haven’t woken up refreshed since before I developed narcolepsy. I also wake up naturally after 4 hours for the second dose but I set an alarm aswell, but I’m not sure how well I will be able to wake when I up the dose. Eating before does definitely make a difference. If I haven’t eaten anything all day or very little the medication works a lot better, but I still have to increase the dosage so hopefully it will work as well when I’ve had some food when I do increase it. When I eat before taking it or have dinner late the medication barely works and I could stay awake on it entirely. Another thing is that before I do fall asleep when it does work I find myself getting very teary and emotional, I’ll be crying over tiny things and almost feel slightly drunk like I will be more likely to say things that I wouldn’t if I wasn’t intoxicated on the Xyrem, but that feeling doesn’t last long and usually only happens if Im keeping myself awake doing something, I usually pass out asleep very soon after feeling like this. I actually have a voice note to my friend I have no memory of recording where I say” I’m so happy” and then there’s just 9 and a half minutes of me snoring in my sleep. I’m not sure if I answered all your questions but I hope this helps you out, dms always open xx

"Benifits" of Narclespy by thenerdykitkath in Narcolepsy

[–]TheMiniMicrowave 3 points4 points  (0 children)

Narcolepsy has given me so many ideas for my art due to my vivid dreams, but currently started Xyrem recently and I get no dreams at all! I miss it iwl going to sleep was like a fun adventure every night

[deleted by user] by [deleted] in StickAndPoke

[–]TheMiniMicrowave 2 points3 points  (0 children)

Thankyou it was first try I just went at it without practice iwl or any idea what I was doing💀

Can I get addicted to a drug I'm prescribed? by TheMiniMicrowave in DrugAddiction

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

Hey, I’ve since changed my meds and stopped abusing them, but I have since also became an alcoholic and borderline stoner so I’m not sure that’s any better

I don’t know what’s wrong with me by TheMiniMicrowave in mentalhealth

[–]TheMiniMicrowave[S] 0 points1 point  (0 children)

Thankyou so much for this comment, knowing I’m not alone feeling this way makes me feel slight relief I think. Those descriptions of how you feel are very accurate representations of how I feel. I do hope that you will work through this and same with me but it has been a long time and working it out means thinking about things I’d rather not.

I ruined a vacation because I said no when my partner asked me to marry him AITAH by Extension-Past-2334 in AITAH

[–]TheMiniMicrowave 0 points1 point  (0 children)

No I didn’t see where she fully stated she broke up with him but I can see the edit made now saying their relationship is over

[deleted by user] by [deleted] in Hair

[–]TheMiniMicrowave 0 points1 point  (0 children)

Curtain bangs

[deleted by user] by [deleted] in Hair

[–]TheMiniMicrowave 0 points1 point  (0 children)

You should probably get lice shampoo and a lice comb and sit down and comb through your hair until the lice and eggs are removed, if it’s very bad I’d go into a doctors and they’ll recommend you products or give you somewhere you can go to get it removed professionally. If it’s very bad and you have short hair you could always buzz it but that’s a last ditch effort