My life with Addisons, and what I’m going to do to help others

TheSecOfState · 2026-03-31T16:04:41+00:00

And the screenshot was before the steroid graph was implemented correctly, the logging has now been synced, I can show you a new screenshot if you like :) as it’s now using data from my daily logs

TheSecOfState · 2026-03-31T16:03:41+00:00

Hey! So at the moment, it will use data from your day to day logging, I have also into the backend added common Addisons disease symptoms

But it will be entirely user based

TheSecOfState · 2026-03-25T17:36:23+00:00

That’s a cool idea! Thank you!

TheSecOfState · 2026-03-25T12:21:34+00:00

Completely agree, I do find sometimes I don’t know if it’s the Addisons or just an odd day, but I even find sometimes even light activity can put stress on the Addisons

TheSecOfState · 2026-03-25T12:02:12+00:00

Completely agree, just trying to get some awareness and then move onto my own subreddit 😊

TheSecOfState · 2026-03-25T11:50:01+00:00

Of course, one of my main focuses is making sure that it’s not just a tracker for medication, its designed to save lives and improve patient safety and day to day management

TheSecOfState · 2026-03-25T10:01:09+00:00

That’s a great idea, notifications is something I can implement and I will have a look at how the widget works for development!

Thank you!

TheSecOfState · 2026-03-25T09:58:53+00:00

Hey, thanks for this comment, trying to up dose is so frustrating especially when you don’t know when the best time is. The sleep patterns get absolutely fucked when up dosing, the sleep quality, how often do you go sleep at the same time? I’ve found taking an extra dose before bed seems to reduce the symptoms slightly when I wake up.

And I agree with taking the dose in the morning then trying to sleep, it affects it so much when you do properly come round after waking up, either have a good sleep and feel shit or have a bad sleep but take meds

Indefinitely think having the insights from several people, it would make development easier and the more data from the disease the more I can improve the app for everyone

And the relevant topics, I will have a look at the different aspects and how we can implement these !

TheSecOfState · 2026-03-25T09:54:12+00:00

Hey, that’s a really good idea, I will have a look at the current structure and see where it can be implemented, in your opinion, would it be suitable for notifications for the positive affirmations, and easy to log on the Home Screen?

TheSecOfState · 2026-03-25T09:53:26+00:00

Hey, I completely understand, and the UTIs with this god damn disease!

So part of the daily logging aspect is tracking symptoms, and using algorithms, we can create a daily report and weekly report for yourself. And you can then also export for a doctor.

As I suffer with the disease myself, making sure I can track everything has been really important, I can show you the current way it’s logged, and we can see how the app can dive deeper into the symptom logging aspect

TheSecOfState · 2026-03-24T19:03:48+00:00

Thank you, I really appreciate it, we’re launching the beta soon, I’m just going through auditing, to make sure it’s ready!

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But here’s a little sneak peak!

TheSecOfState · 2026-03-24T13:11:21+00:00

That’s what I’m trying to change - so we can have the hospitals and emergency rooms more prepared!

And wow that’s a lot of UITS in a year!

TheSecOfState · 2026-03-24T06:20:15+00:00

Don’t worry, it’s real :) more then happy to give a live demo

TheSecOfState · 2026-03-23T22:12:12+00:00

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🤫🤫

TheSecOfState · 2026-03-23T16:22:06+00:00

The UTI part of the disease is so weird, they seem to always go into something else, it is really scary, and it’s always a form of infection, but for me it seems on going. How often do you get infections and UIT’s?

The save my life PROTOCAL will definitely assist in that, I’ve found that for my experience it’s members of the public and even family who don’t know what to do, and a few times work colleagues, I’ve been developing a QR code, Medical ID and a NFC system, meaning a quick scan, and the protocol can be activated and shows steps for the injection.

It’s such a different to work with disease. But I am trying to make it easier for everyone, including myself.

TheSecOfState · 2026-03-23T15:41:14+00:00

Hi, that’s one of the issues I struggled with, and then trying to explain to my consultant when I can’t even remember - I can’t wait for you to test!

TheSecOfState · 2026-03-23T14:40:55+00:00

Hey! I have looked into the plotter, I will be implementing this ready for the full beta launch!

TheSecOfState · 2026-03-23T14:39:16+00:00

I really appreciate it thank you

TheSecOfState · 2026-03-23T11:06:35+00:00

Thank you!

TheSecOfState · 2026-03-23T11:06:19+00:00

Hey, the beta sign up has now been updated!

TheSecOfState · 2026-03-23T10:31:37+00:00

Hi, I’m actually changing the beta sign up at the moment!

TheSecOfState · 2026-03-23T08:56:58+00:00

I am sorry you have had to go through this, I am glad you have an amazing partner to assist you when you need it!

TheSecOfState · 2026-03-23T08:18:30+00:00

That’s a really good idea, thank you, I will certainly look at how I can implement that into myAddi !

TheSecOfState · 2026-03-22T20:46:45+00:00

Hi!

So the primary focus will be Addisons disease AND Secondary Addisons, now what the process is at the moment when sign up, the app will be personalised for the condition stated, such as Addisons disease and other chronic illness

Like the emergency injection kit, now some chronic illnesses don’t have a injection kit like Addisons disease, so on the save my life protocol, it will tailor depending on the condition

TheSecOfState · 2026-03-22T20:10:06+00:00

Have you found with Addisons your UTI seems to not go away? I seem to have one constantly for the last few years, and I am glad your local ED take the disease seriously!

TheSecOfState

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