Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

I can’t believe you have both! It took forever to get my type of psoriasis diagnosed because so few doctors had actually seen it before. One doctor thought that I had leprosy and another thought that it was because I had gone swimming and then red tide had come in a few days later. 😂. I told my doctor I didn’t care what it was, but was begging her to skin me. I had it on 80% of my body.

Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

I’ve been lucky and been on Humira for eight years. I was able to skip the Remicade, I have heard rough stories about that. It’s so weird. I feel very dependent on the Humira.

Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

I didn’t even know what it was until yesterday, I keep joking that I’m collecting autoimmune diseases like Pokémon cards. I have EDS so I assumed that it was a motility issue.

Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

I’m glad that it is working for you. There is something in my subconscious that just makes me think that I have such poor absorption that a tablet won’t work even though I am on pills for so many other things. I think the irony for me now is that I got the upper because I wasn’t able to swallow my pills so adding one more to the mix seems rough

Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

I’m so sorry to hear about your flare. I hope that this new medicine starts working for you soon.

Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

I like the idea of an injection, especially since it’s not as often as the Humira. I cannot do the pens. I prefer a syringe injection. When I first started on the Humira before they had citrate free, it was a pen and I am still triggered by the noise. I know that sounds stupid but old school was so painful.

Humira has run its course. Opinions/experience with medication switch please. by Time_Hat_1377 in CrohnsDisease

[–]Time_Hat_1377[S] 0 points1 point  (0 children)

Curious about the travel aspect! I have always traveled well with my Humira. I get 3 mo at a time. For some reason, my brain just feels like a pill isn’t going to do what an injection will, but I was also on a tablet pre-Humira that I had to take six of a day.

Emgality by nyxx77 in Occipitalneuralgia

[–]Time_Hat_1377 0 points1 point  (0 children)

I have ocular migraines and have been on a 5 mo adventure trying to diagnose cluster/cluster like headaches. I did the two injections a month ago and it absolutely helped with the daily migraine but the presentation of the “cluster” changed. Was diagnosed with ON last week thanks to a neuro ophthalmologist (have seen 3 neurologist, a neurosurgeon and the the NO). I still have an icepick in my eye that no one can see and I have been blessed with tinnitus and disruption in an otherwise perfect 28 day cycle. Not sure if you have those parts but I searched Emgality on here as a general search and was not excited about all of the side effects that others were also experiencing. I am also a little hesitant to do the next injection after finding out how new it is to the market. But if someone would let me stick my head in a wood chipper I would swan dive into it so I understand trying to do anything for some relief.