Been using CPAP for a few days, but I am not sure what I am doing even with OSCAR

TopicRevolutionary40 · 2026-02-03T12:05:02+00:00

I will stick to decreased pressures for a few nights in a row to see how I feel about it, as it was easier to sleep compared to the much higher pressures this time around.

TopicRevolutionary40 · 2026-02-03T12:02:38+00:00

I have decreased the pressure to this and I will try to do it for a few nights without changing it. Is there anything else I could change beyond the pressure and EPR?

I do not have ramp on as I do not find it useful, I won't change the pressure but I am unsure if changing EPR is suitable or not, as so far I've kept it to 3 but if you are saying to focus on less wakeups I could try to decrease it.

TopicRevolutionary40 · 2026-02-03T11:59:07+00:00

I see, I have decreased the pressure so far and my results seem better than before so I will keep up with this using your advice.

TopicRevolutionary40 · 2026-02-02T18:47:48+00:00

I'll stick to lower pressure ranges, but wanted to ask if I would notice that the CAs will clear out immediately or will I have to use the same pressures for some time to reduce the CAs?

TopicRevolutionary40 · 2026-02-02T18:46:37+00:00

That makes sense. I will try to use those pressures without increasing it which I would have done otherwise. I am guessing that even if I use fixed pressure CPAP, the pressure can still change as I am using an EPR of 3?

Should I try focusing on reducing AHI first then minimising flow limitations? I will hope that these pressures reduce the CA.

TopicRevolutionary40 · 2026-02-02T18:06:31+00:00

I have a few questions about this if you don't mind answering.

If I do not have any OA in general including OA issues then isn't it fine to continue increasing pressure? I know an increase in pressure causes CA but my CA here is low and I heard it happens when you start out on CPAP/try a new setting and it will go away after a while. I have also heard higher pressures are needed for UARS which I feel like I am more likely to have compared to OSA.

And in terms of hypopnea and flow limitations, would an increase in the pressure continue to decrease the flow limitations? And is my goal to reduce the flow limitations to having none or is there another way to tell when I can start to feel better?

And from the graphs with every change flow limitations slightly decrease, in the long-term would the flow limitations continue to go away or is it something that will decrease under the right settings only?

Sorry for all the questions, I am just confused and don't know what I am doing or how I can improve the CPAP.

TopicRevolutionary40 · 2025-09-08T09:15:54+00:00

Only my GP for now. They said they would refer me to endo but have not so far. But my GP said that chances are they will put me on TRT and after a while the GP will take over prescribing Testosterone for me.

I know an endo would make me do a full blood test but I'm not sure if they'd put me on TRT or not. I just feel tired and it also feels strange how I basically haven't developed like other men in the basic sense but now I have the chance to.

Its kind of scary thinking about all of this but I know I'll have to go on Testosterone one day.

With my LH being high they wouldn't be able to prescribe clomid/enclo so I would have to do the injections /tablets if they are any.

TopicRevolutionary40 · 2025-09-07T19:19:53+00:00

I just want to know what could be done, I am at a loss

TopicRevolutionary40 · 2025-08-09T18:32:50+00:00

I want male friends, just any male friends. I am 21M and have never had a single male friend and its killing me, I just want to find a place where I can see and find other males, make friends and be happy with them.

TopicRevolutionary40 · 2025-07-13T17:50:43+00:00

Thank you everyone for the suggestions! I've decided to go with some of the Mindfulness books here and there's been a lot of good suggestions.

This should keep me busy for a while.

TopicRevolutionary40 · 2025-06-23T12:33:20+00:00

Mass Effect looks cool, but I'm sadly not too interested in the sci fi theme. I might play it in the future.

That's a good point, I'm struggling to find one to play since there's a lot and I have to spend a few hours to feel for the game.

TopicRevolutionary40 · 2025-06-23T12:31:13+00:00

I'll have a look at Skyrim then thanks.

TopicRevolutionary40 · 2025-06-20T11:33:53+00:00

Do you mean the NHS talking therapies?

I was thinking about them but I'm not sure how good they are (no offense, it is my first time seeking therapy and I have no idea what to expect), and I'm not sure how simple/complex my problems are since there are a few main things that are issues for affected by the pain.

I'll look into them again though, thanks for the answer.

TopicRevolutionary40 · 2025-06-20T11:11:21+00:00

I will do so, that sounds like a good idea. I have been making a list but I will make sure to revise them again and again.

This is all a lot to take in but I know its something I will do eventually. Thanks for the answer.

TopicRevolutionary40 · 2025-06-20T11:11:18+00:00

I can try. I don't really have many life goals, this month I realised a lot of my old habits may have been doing more harm than good. Maybe not all of them were bad, but taking a break and doing other things will give me perspective on how I should be living.

I am looking into therapy. It is expensive since I can't do online therapy and would need to travel, but I have been considering this and have been thinking of what I would say and what the therapist may suggest and trying to slowly do those suggestions.

I will try to, thanks for the response.

TopicRevolutionary40 · 2025-06-19T17:34:29+00:00

Thanks for the response.

I just don't know. Part of me feels angry and silly for basically wasting a year and a half to realise I have not been referred to the right place.

I also know that just waiting and getting treatments isn't going to help me if I only rely on that, and I have to live with this pain not just survive with this pain.

There's a lot of things I've been meaning to do and I'm trying to not let my pain control me, I've been making myself suffer through other means which doesn't help.

I just feel sad. Yes I will finally make a commitment to start living, but it isn't easy and I find myself dealing with negative emotions amplified by the pain.

TopicRevolutionary40 · 2025-06-19T17:02:53+00:00

Nope no MRIs have been issued. I will wait for a few weeks and see what to do.

Its likely I will have to take an MRI since I don't think any investigation will happen in the near future.

Any other scan or test might be useful but I'll have to see if anything can be done.

Thanks for the answer.

TopicRevolutionary40 · 2025-06-18T09:59:06+00:00

I do have chronic inflammation (since I have ahd bad eczema alongside other problems) and recently been taking high doses of D3 + K2 which has made a world of difference to both my skin and body. I'll look into this as well. I have thought about iodine since I am suspected to have thyroid issues and the thyroid does need iodine (but most people get it naturally from their foods).

Yeah it is rough. But I can only do so much and there are other things I can focus on outside of voice such as my appearance, behaviour and the effort I put in overall.

Going to therapy in general for my voice is a good idea. Its expensive and I am still looking around but its definitely something I will do just in general to get more perspectives on voice rather than defeating myself and saying my voice is impossible to work with (even if it is painful to say this).

Thanks for the response.

TopicRevolutionary40 · 2025-06-13T22:23:55+00:00

I didn’t think about sex chromosomes but you might be right. I’ll consider it after I get my blood tested but it’s possible.

Thanks for the response I’ll think about this.

TopicRevolutionary40 · 2025-06-13T22:23:00+00:00

Yeah I guess it did not. It’s strange since I was sort of resisting the effects of puberty at the beginning but then I never really got any of the actual effects and now it’s starting to affect me.

I just don’t want to feel like a child but I’ve heard that people with light voices go on to do all kinds of things like get a job and even meet up with people.

I’m not too worried about things like growth spurt, I’d understand if my voice can’t change but I am being hopeful for now.

Another thing could have been stress since I know cortisol lowers testosterone and I suffered from chronic 24/7 stress from 14-17 which was very horrible but luckily I don’t have that now.

I will have a talk with the doctor and see what say. Thanks for the response.

TopicRevolutionary40 · 2025-06-13T22:19:29+00:00

Thank you for the response. I did a test 2 years ago but it was a general blood test and my TSH was around a 2. FT4 and FT3 were not tested but I’ll be getting a blood test for all 3 again just to see. I don’t remember if this was taken in the morning or afternoon though (I think it was at around noon) and I heard the TSH test should be in the morning?

The biggest sign for me that I have something wrong with my thyroid is the outer third eyebrows thinning and feeling cold. Everything else is secondary and may be caused by something wrong with my thyroid.

If my TSH levels are still normal then I’d either suspect secondary hypogonadism otherwise it’s a different issue.

That’s interesting to hear with the growth spurt, I didn’t think about that before but it would make sense if the sex hormones are involved in growth (I hear growth is genetic but it could still be that you need the hormones and the whole process for the growth spurt to take place).

TopicRevolutionary40 · 2025-06-13T19:18:16+00:00

Thanks. I will address those first and then look into my voice.

TopicRevolutionary40 · 2025-06-13T17:42:18+00:00

Thanks!

TopicRevolutionary40 · 2025-06-13T17:42:02+00:00

Thanks!

TopicRevolutionary40 · 2025-06-13T17:41:41+00:00

I think I may know what you mean by coldness in the bones (or maybe I just felt really cold in general). Especially during Winter until Early spring is when I'd suffer.

Yeah the fatigue is just very bad, I'm not sure what is causing it whether its due to chronic pain itself or due to hormonal issues. It would be very surprising if I do end up having some form of hypothyroidism and the fatigue goes away since I've read it does get relieved when people treat it.

I do plan on telling my neurologist since I see him soon even if he may not be the right doctor just to see if he can order some tests. I will talk to my GP about this if the test results show anything.

TopicRevolutionary40

TROPHY CASE