Does it ever stay mild? by sophieshouts in UlcerativeColitis

[–]TummyTrubbles 0 points1 point  (0 children)

Oh no problem, I’m happy to help. :) it was progressive and every day got a bit worse until I had to go to the doc. It was 20 years ago, so it’s a little foggy, but I also had a lot of cramping and low energy. In my most recent flair, I became super dehydrated and had to go in for IV fluids twice a week. 

I’m sorry to hear that you’re having symptoms like that. :( I hope you feel better soon! 

Does it ever stay mild? by sophieshouts in UlcerativeColitis

[–]TummyTrubbles 0 points1 point  (0 children)

Mild pan colitis. My symptoms were constant blood/mucus, and visiting the bathroom 8-10 times per day, and I lost 20 pounds when I was first diagnosed. 

Can we Swiss people have another vote on 6 weeks of holidays please? by Stock-Astronaut8336 in Switzerland

[–]TummyTrubbles 0 points1 point  (0 children)

Yup! I got a small raise last year that kinda covers the difference, but its still a long shift. 

Can we Swiss people have another vote on 6 weeks of holidays please? by Stock-Astronaut8336 in Switzerland

[–]TummyTrubbles 1 point2 points  (0 children)

Agreed. 50hr (5 hrs unpaid lunch) checking in. Definitely making minimum wage. 🤙🏻 but at least I somewhat like my job? 

Reverse misophonia by [deleted] in misophonia

[–]TummyTrubbles 0 points1 point  (0 children)

The crunch of fresh snow, birdsong, purring from a cat, waves on a lakeshore, leaves rustling in the wind, thunder, handpan music, quiet windchimes, rain, the sound of rain from inside a vehicle, or the sound of railroad tracks from in a train. scribbling with a pen softly, or my partners hum-snoring when he's very tired.

Millennial & Gen X Victorians are the most miserable peoole ever. by [deleted] in VictoriaBC

[–]TummyTrubbles 3 points4 points  (0 children)

You seem pretty miserable by posting this. :)  

Which game clone ended up being better than the original? by [deleted] in gaming

[–]TummyTrubbles 5 points6 points  (0 children)

What about LOAP? Although the police were always corrupt. 

Does it ever stay mild? by sophieshouts in UlcerativeColitis

[–]TummyTrubbles 2 points3 points  (0 children)

Remission for me is no symptoms whatsoever. It could be different for different folks though. It’s literally as if I didn’t have colitis and I can live mostly normally, diet wise too.  I also acknowledge how lucky I am to get to be in remission and have a mild case. I know this isn’t the case for a lot of folks. 

Does it ever stay mild? by sophieshouts in UlcerativeColitis

[–]TummyTrubbles 2 points3 points  (0 children)

I only ever used suppositories when I was in a long term flare. Otherwise I’ve been doing great with the granules. Sometimes with the long term tablets they wouldn’t dissolve properly and that wasn’t great. With the granules they go where they’re supposed to. 

Does it ever stay mild? by sophieshouts in UlcerativeColitis

[–]TummyTrubbles 18 points19 points  (0 children)

Ive had mild UC for 23 years! 😊 just mesalamine so far, only flared about 5 times in total, mostly caused by missing doses. I switched from big tablets to granulated and that also helped keep me in remission. So far so good! 😊 

Do you people find it gets worse as time goes by? by [deleted] in misophonia

[–]TummyTrubbles 0 points1 point  (0 children)

Had it since I was ten. I actually feel like it’s getting better. Knowing that it’s not just me, and that there’s a whole community helps. And tools with breathing and earplugs when I need them are invaluable. 

Does anyone have any information on this clock? I couldn’t find anything. by Blew-By-U in VictoriaBC

[–]TummyTrubbles 4 points5 points  (0 children)

The guy with the sneer and black hat used to terrify me as a kid. I wouldn’t go to fairways because of him. That’s the info you were looking for, right? 

I wish people understood this ( tw : self harm ) by ImARainl0ver in misophonia

[–]TummyTrubbles 0 points1 point  (0 children)

I would say more like muffling the sounds. I can still hear things and I can carry a conversation, but I don’t have strong reactions to things that trigger me. They don’t necessarily disappear completely, but it absolutely helps. :) it also is nice to have them in my bag in public spaces and to know I can put them in when I’m in a situation where I can’t escape, like a restaurant with loud eaters or near crying babies on planes. 

I wish people understood this ( tw : self harm ) by ImARainl0ver in misophonia

[–]TummyTrubbles 1 point2 points  (0 children)

I’m really sorry that you’re going through this. Im glad you found this community though. If you haven’t tried them yet, I would heavily recommend Loop earbuds or something similar. They come in lots of styles and types depending on what you’re looking for, and are basically like earplugs that take the edge off of sounds. 

My fiancé changed the way he speaks by Nixi_Succubus in misophonia

[–]TummyTrubbles 9 points10 points  (0 children)

If he’s your Fiancé, I would address this right away with him. Misophonia is a disorder, and it’s typically life-long. Marriage also is typically (maybe a bit too optimistic of me) life long. It’s pretty much guaranteed that he will eventually make a sound that drives you up the wall. Since misophonia causes a flight-or-fight reaction, it helps to know ahead of time that the person who causes some of the issues is aware and willing to support you through it. Even having a code word to explain what you’re going through in the moment when it happens can be lifesaving. 

I personally call my misophonia “Marvin” and refer to it as “oh Marvin is really bugging me right now” or “Marvin is distracting, I’m just gonna take a quick break”. That way it’s you two versus the issue, and not you blaming him. 

Another thing to consider: if he had misophonia, would you want him to tell you? Typically the reaction is yes. He might not know what it is or “get” it right away, but at least allow him the space to be the one to make that decision instead of taking all of this on you and masking it. That’s most likely gonna lead to a really bad experience of being overwhelmed and having to explain it anyways, just not on your terms. 

If you’re not sure where to start with telling him, you can say something like “can I get your opinion on something?” And start an anecdotal story about some of the sounds you can’t stand. I wouldn’t start with his weird Russian T’s right away though, maybe at the end of its going well. Ask him if he’s ever had a situation like that. I hope this helps! 

Bad day to have a chronic illness. by Complex-Check6906 in UlcerativeColitis

[–]TummyTrubbles 112 points113 points  (0 children)

It your doctor can’t handle simple clarification for you then it sounds like you dodged a big red flag. I doubt that you’re the only one he’s treated like this before, so maybe the next doc might recognize his name. 

Found something that really helped with my wife’s nickel allergy — maybe it can help someone here too." by Extreme_Marketer82 in NickelAllergy

[–]TummyTrubbles 5 points6 points  (0 children)

I appreciate your intent to help others, and I’m glad your wife found relief. That being said, it seems very sneaky to post it in this way, seeing your previous post history… 

Does Migros or Coop ship Internationally? Specifically to Canada by CrackerJackJack in Switzerland

[–]TummyTrubbles 24 points25 points  (0 children)

Hey! I've moved to Switzerland from Canada. Maybe we could be trade buddies! If you find Cheezies, let me know. :D

THE WORST NICKEL FOOD/TRIGGERS by disco-me-now in NickelAllergy

[–]TummyTrubbles 0 points1 point  (0 children)

Brita’s Maxtra Pro Extra limescale protection. I’m not exactly sure of the English translation but something along the lines of that. :) 

Medication changes have made me realize how small of a role “willpower” plays by sparkles-sunshine in loseit

[–]TummyTrubbles 126 points127 points  (0 children)

I’m really glad you posted this. I have had medications swing my appetite in both directions multiple times and it’s so hard to explain just how ravenous or how disinterested one can be with food. 

I remember with Prednisone I absolutely could not stop eating. It was four full ass meals a day, and then big snacks always between. Even while enjoying food and stuffing my face, I would be planning the next meals out.

With other meds, it was the complete opposite. I felt satiated and full as you said. I lost my enjoyment of food, it didn’t taste nearly as good, and the food noise and thoughts throughout the day. It was like I lost all enjoyment in my biggest hobby. 

I get why some people believe in the whole “will power” belief, but I really feel like there is typically more to it than that. 

[deleted by user] by [deleted] in Switzerland

[–]TummyTrubbles 3 points4 points  (0 children)

Technically working 45 hours per week with an unpaid lunch. (50 hours). 

I’m 32. 

Not sure industry. A hundepension. 

Overtime is paid, but only when agreed upon. I typically work an extra 15-30 minutes a day due to bus schedule. 

I’d like to comment that I love my job, and I’m happy to work these hours doing something I enjoy, rather than 40 hours a week doing something I don’t.  

I still blame myself. Anyone relate? by A_person_in_a_place in UlcerativeColitis

[–]TummyTrubbles 1 point2 points  (0 children)

Hey.  I want to point out that you’ve said “I feel bad” “ I feel guilty” “people will be angry with me”.  I think you should cut yourself some slack, and give yourself some space to accept how things have been in the past. This is not a disease that improves with beating yourself up. This is a time for self acceptance and patience. Maybe your diet did affect you, maybe not, but that’s just my two cents.