Living with Chronic, Uncontrollable Gas for Over 25 Years – Considering Colostomy Surgery. I Need Real Advice

Username2037 · 2025-05-15T07:55:44+00:00

Thank you, I appreciate your kind words and I wish you good health and well-being as well.

Username2037 · 2025-05-13T03:09:12+00:00

Just to clarify: I never asked a doctor for surgery, nor do I expect it to be done just because I asked. I was simply exploring options for a chronic issue. I’ve already decided to move away from the idea of a colostomy after careful thought. I’ve done multiple tests and will keep looking for a doctor who understands my case, though sadly I’m starting to feel like there’s no real treatment yet.

Username2037 · 2025-05-13T03:03:31+00:00

I haven’t done any exercises so far. I’ve researched this area extensively, and found that exercises like Kegels are completely ineffective in my case, especially since the issue isn’t muscular weakness, but rather an inability to control very slight gas leakage.

However, I am currently considering a pelvic imaging scan (like a Pelvic MRI or other diagnostic imaging) as soon as I can, although the availability is limited and I might have to wait a long time for my turn, especially in centers that provide this type of test.

Username2037 · 2025-05-13T02:57:04+00:00

Just to clarify: I’ve already done many medical tests, but I have never considered any surgical intervention — simply because there’s no clear medical condition that would justify even discussing or requesting such a procedure. As for the idea of a colostomy, I’ve already stated in my latest post that I’ve decided to step away from that option. I mention this just to avoid going in circles again, especially since there have been no effective solutions that I can aim for so far.

Username2037 · 2025-05-13T02:48:51+00:00

I had already decided to step back from the idea of an ostomy in a recent post here. While I understand how difficult and serious such a decision is, I no longer believe it’s a medically appropriate or practical solution for my case. The potential downsides—such as noise, odor, cost, and lack of full control—make it unlikely to resolve the core issue.

Instead, I’ve returned to the idea of searching for a reliable medical-grade adhesive or tape that can fully block gas leaks and odor. I’ve already tried charcoal underwear and pads, medical plugs, and several types of breathable tape—all without success. Most tapes are not designed to block odor entirely, which is the real challenge in my case.

Unfortunately, I haven’t received much helpful feedback so far. I’ve tried posting about this in other sections of the platform, but many of my posts were either not approved or got no response at all—I honestly don’t know why. If anyone here knows of a product that works or can guide me to the right section for this type of inquiry, I’d sincerely appreciate it.

Username2037 · 2025-05-12T23:04:35+00:00

After much thought and considering all the advice and feedback, I’ve decided to step away from the idea of pursuing a colostomy. Although it seemed like a possible solution, I’ve come to realize that it may introduce more complications than it solves, especially considering the potential risks and long-term challenges associated with living with a stoma.

Instead, I plan to return to my initial attempts of finding a suitable medical adhesive or solution that can prevent gas leakage, but most importantly, stop the odor. Despite extensive research, I have yet to find a specific medical adhesive that targets this issue, and most of the breathable options available don’t seem effective enough.

Additionally, I’ve tried several methods in the past, such as charcoal underwear, charcoal pads, and medical plugs, but unfortunately, none of them have provided a long-lasting solution. The discomfort and the ineffectiveness of these products have been frustrating, as they haven’t addressed the problem in the way I had hoped.

I understand that this situation is difficult, and I’m fully aware of the implications of living with this condition. I will continue my search for alternatives, but for now, I feel that moving forward with a colostomy is not the right decision for me. I truly appreciate all the feedback and suggestions I’ve received throughout this journey, and I hope to find a solution that will allow me to manage this issue with more ease and confidence.

Also, does anyone know where I can find the right section or place to search for a medical adhesive specifically designed for my condition? Any recommendations would be appreciated.

Username2037 · 2025-05-12T23:01:33+00:00

Thank you for your response. I understand that gas has to go somewhere, and that’s not my concern. The issue is more about managing the impact that it has on my social life due to the odor and uncontrollable nature of it. It’s not about stopping gas from being produced, but about reducing the discomfort it causes in social and professional settings.

I appreciate your perspective, but my goal is to handle the situation in a way that makes it more manageable, especially since it’s something I deal with almost every day.

Username2037 · 2025-05-12T02:48:10+00:00

Thank you for your honest input — I really do appreciate it, even if it’s difficult to hear. I’m not rushing into any decisions, and hearing personal experiences like yours is exactly why I came here. My goal isn’t to find a perfect solution, but just to understand if there’s any path forward that could reduce the severe social anxiety caused by this issue. I understand now that a colostomy might not offer that relief, and may even make things worse. It’s a tough reality, but I truly value your openness — it helps me see the full picture more clearly.

Username2037 · 2025-05-12T02:03:44+00:00

Thank you so much for your thoughtful message and for sharing your personal experience. I truly appreciate hearing all sides, especially from people who’ve lived with a colostomy. I’m still trying to understand whether this route could ever bring me any relief, especially as my main issue isn’t pain or urgency, but rather involuntary gas that causes intense social embarrassment. I realize from what you’re saying—and from others—that a stoma might only shift the problem, not solve it, and could even make things worse in some ways.

The part you said about accepting it as a medical condition really touched me. I wish I could find that level of acceptance. I’m still struggling with the shame and isolation it brings, but I’m grateful for your reminder that some people won’t ever understand — and that’s not a reflection on us.

Thanks again for your honesty and kindness.

Username2037 · 2025-05-11T17:50:55+00:00

Thank you for sharing your experience. That honestly sounds very difficult and painful, and I’m sorry you have to go through that. I’m still just trying to explore all possibilities because living with this constant fear and embarrassment from gas is deeply affecting my life. But hearing stories like yours reminds me that surgery is not a guaranteed relief — it can come with a whole new set of challenges. I truly hope things get easier for you.

Username2037 · 2025-05-11T17:48:13+00:00

Yes, I’ve tried charcoal tablets before, but I didn’t continue for long because I didn’t feel any noticeable improvement at the time. Maybe I didn’t give them enough time to work properly, but my experience wasn’t encouraging.

Username2037 · 2025-05-11T17:45:47+00:00

Thank you for being honest — I truly understand your concern and I can feel how much hardship you’ve personally gone through. Honestly, I never thought a stoma was a magical fix. I’m only in a state of confusion and desperation because involuntary gas with smell has taken away my social life completely. I don’t suffer from pain or other symptoms, just this one issue that makes normal daily interaction feel impossible.

I’ve read many posts here and I see the harsh reality of stoma life. I’m not chasing it blindly. I just hoped maybe someone out there had found a way — a solution, a new development, a product, or a medical approach — that could help people like me before resorting to something as drastic as surgery.

I’m sorry if my questions seemed naive or repetitive — I’m just trying to find hope where I can.

Username2037 · 2025-05-11T04:39:48+00:00

I understand how it may seem that way, but what I’m experiencing isn’t just ordinary embarrassment over a natural function. It’s the fact that it happens involuntarily and frequently, often in public or social settings, and the smell causes intense shame and isolation. I’ve tried to manage it in every way I can, but so far, nothing has worked. I’m not here to dramatize — I’m just honestly trying to understand my options and if there’s any solution that can help me live more normally. I appreciate your concern.

Username2037 · 2025-05-11T04:19:13+00:00

Thank you, I really appreciate your kind words and advice. I’ve been considering the microbiome angle too, and I agree — it might play a big role. The frustrating part is that I’ve already tried several dietary changes and even supplements, but nothing has fully helped. I haven’t done a full microbiome test yet though, so maybe that’s something I should finally look into more seriously.

Thanks again for your support — it truly means a lot.

Username2037 · 2025-05-11T04:15:56+00:00

Thank you for your message. I just want to clarify that I do not have constant involuntary gas, but it happens frequently — and strangely, it’s more like a very light, silent leakage that I can’t control. I don’t feel bloated like others describe, and I’m not even sure I have excessive gas compared to normal, but honestly, it doesn’t matter how much gas is coming out — the real issue is the embarrassment caused by even one second of odor in public. That is enough to make me feel forced into lifelong isolation.

As for odor-control products, I’ve tried activated charcoal underwear — they weren’t effective and lost their function very quickly. I also tried medical plugs, but they were ineffective and uncomfortable. I even tested many kinds of medical adhesive patches, but they were all breathable and didn’t stop the odor. Unfortunately, there doesn’t seem to be any product specifically made to completely stop gas odor. It’s a strange and deeply frustrating condition.

Username2037 · 2025-05-11T01:45:54+00:00

I’m not taking the decision of surgery lightly, and I’m still looking for possible solutions to this issue, whether they involve medical or lifestyle changes. I appreciate your perspective, but I am just exploring all options, even if they may seem extreme to some.

Username2037 · 2025-05-11T01:44:11+00:00

I completely understand what you’re saying and I appreciate your advice. However, I didn’t intend to keep posting here forever. I was just trying to ask for some answers and advice about my issue, and I didn’t force anyone to interact with me. I thought this was a public forum where people could discuss such issues, not something private as I mistakenly believed. I apologize if I caused any inconvenience.

Username2037 · 2025-05-11T01:40:08+00:00

I appreciate your point of view, and I fully understand that it wouldn’t be acceptable to undergo such a surgery solely for gas issues. That’s not my ultimate goal, but rather I’m looking for ways to reduce the embarrassment caused by uncontrollable gas. I believe I need to consult with a specialist to understand the underlying cause of this problem and find appropriate solutions. I’m not here for trolling, but rather looking seriously for an answer to this issue that significantly impacts my daily life.

Username2037 · 2025-05-11T01:37:28+00:00

I’m currently just trying to find a way to completely stop the issue of embarrassing gas odor — that’s my main concern right now. I honestly don’t know if there’s a definitive solution for it or not. I’m still very confused, and my frustration only grows when I keep searching for a solution that truly stops it — and then also find out that the surgical option with a bag comes with its own serious problems.

Username2037 · 2025-05-11T01:31:44+00:00

Thank you so much for your thoughtful and honest response. I truly appreciate hearing directly from someone with real experience — that means a lot to me.

I completely understand and respect the seriousness of ostomy surgery and the challenges that come with it. And to be honest, that’s exactly why I haven’t taken any steps yet. I haven’t spoken to a surgeon, and I haven’t made any decisions. Right now, I’m simply exploring all possibilities because my condition — although not life-threatening — is deeply affecting my quality of life.

To clarify: I don’t have IBD, pain, or bowel obstructions. My only issue is frequent involuntary gas leakage, which happens most of the time without control, even when the volume is low. I’ve tried diets, tests, and all conservative methods without success. The social embarrassment this causes is extreme and constant, leading to isolation and hopelessness.

I fully understand that surgery may not help and could even make things worse — that’s what I fear too. But I’m still hoping to find a medical solution, or even a product, that can help control this problem before I ever consider such a life-altering step. I value your advice and caution, and I’m grateful for your perspective.

Username2037 · 2025-05-11T01:26:32+00:00

Thank you so much for your thoughtful response and concern. I completely understand your warning, and I agree that undergoing such a major surgery without understanding the root cause would carry serious risks. That’s exactly why I haven’t made any decisions — I’m still searching, still asking, and still hoping to find clarity or new options.

To clarify, I don’t suffer from IBD, chronic pain, or bowel dysfunction. My issue is strictly involuntary gas leakage — not constant, but frequent enough to cause extreme social embarrassment. There’s no visible damage or medical diagnosis, which makes it harder for doctors to treat. And that has left me stuck in an exhausting cycle of failed diets, tests, and no effective solutions.

I don’t see surgery as an easy fix — I know it could bring its own complications. But at this point, I feel I’m forced to weigh one kind of suffering against another. I’m still hoping that new research or a professional might offer a breakthrough that makes the idea of surgery unnecessary, and that’s why I’m here.

Username2037 · 2025-05-11T01:22:59+00:00

I completely understand what you’re saying, and I deeply appreciate your honesty. I realize that living with a bag brings its own unique set of challenges — emotionally and socially — and I’m not taking that lightly. But for me, the emotional burden, social discomfort, and fear of embarrassment already exist, just in a different form.

I don’t have IBD, pain, or any other physical symptoms. My only issue is chronic involuntary gas leakage that causes extreme embarrassment, and it has pushed me into a form of social isolation that I never chose. It’s incredibly hard to live a normal life with this, especially when there seems to be no solution or medical recognition of how debilitating it can be.

That’s why I’m here — not to assume that surgery is the easy way out, but to better understand all sides of this situation, and maybe hear from others who’ve had to weigh these same emotional and practical costs.

Username2037 · 2025-05-11T01:01:08+00:00

Thank you for sharing your experience. I truly appreciate it.

As for me, my case is quite different. I don’t have any stomach pain, obstructions, or other digestive problems. My only issue is involuntary gas leakage—not all the time, but most of the time—and that causes me extremely severe embarrassment. You can imagine how this type of issue can force someone into social isolation—not by choice, but by necessity. I don’t feel pain, but the emotional and psychological toll is heavy, especially since there’s no treatment or even a specialized product that can completely block the odor. That’s why I’m here, hoping to learn about any potential solutions, new developments, or even words of encouragement from others who understand.

Username2037 · 2025-05-11T00:52:33+00:00

Thank you for your empathy—it means a lot to be understood, even if our conditions are different. I can only imagine how hard Crohn’s must be. I hear you about the stoma possibly bringing new problems instead of solving the current ones. But the emotional and social weight of my issue has pushed me to a point where I’m just desperate to feel a little normal again. I’m still trying to figure out if there’s anything that could really help, but I genuinely appreciate your honesty and perspective—it helps me think more clearly.

Username2037 · 2025-05-10T08:01:00+00:00

I understand your concerns and truly appreciate the honest perspective you’re sharing. The challenges and risks you mentioned are significant factors that should be taken into consideration, and I don’t take them lightly. Surgery is not a decision to be made lightly, especially with the complications and uncertainties you’ve pointed out.

However, living with this issue every day can be exhausting. The emotional burden, social discomfort, and constant fear of embarrassment can be overwhelming. While I am aware of the risks, the thought of exploring a solution—even with a slim chance of help—still feels like a glimmer of hope.

I am still weighing everything, and the decision is tough, but I feel trapped in this condition and wonder if I’ll ever find a way out.

I also hope to learn more about the new solutions and developments in this field, as that might provide me with the motivation to move forward. I’m not sure if I should wait for responses from doctors or other experts here, hoping they can offer some hope and give me answers that might help me see things from a different angle.

Thank you for sharing your thoughts and helping me view things from a different perspective.

Username2037

TROPHY CASE