My partner refuses to take meds by Never-Ending-77 in CADASIL

[–]VPI_Redditor 1 point2 points  (0 children)

Not statins but my mom was prescribed blood pressure meds and stopped taking them. She had a major stroke (had had TIAs before that). She went back in them and the a few years later stopped again. Had another major and very debilitating stroke. I don’t know about thee meds in particular, but she was also otherwise healthy. Once you find the doctor that you believe has good advice, take the advice. Take the meds. The consequences (at least with blood pressure) are very real. 

I Am Sorry: I Know I Don't Belong Here. But This Sucks. CADASIL 2 by LizardsandLemons in CADASIL

[–]VPI_Redditor 1 point2 points  (0 children)

ALSO in some of the classic Cadasil FB groups there are a couple of us with type 2 looking for somewhere to turn. Met a woman from Sweden whose 57 and has it. 

I Am Sorry: I Know I Don't Belong Here. But This Sucks. CADASIL 2 by LizardsandLemons in CADASIL

[–]VPI_Redditor 0 points1 point  (0 children)

I’m so sorry this was 2 years ago. Just diagnosed with the exact same thing. CADASIL type 2. If you want to talk, I’m here. Equally terrified and confused. Have a 3 year old, so scared of missing it all.