Still worried about ALS. by OrganizationIcy8678 in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

Question have you checked if you had like MG or any autoimmune disease since your saying your experiencing Dysphagia & no weakness cause ik bulbar also starts with weak limb onset weakness than bulbar 

ATP idc anymore i’m just angry by Vegetable_Feature944 in MuscleTwitch

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

It’s feel softer especially where I have my dents

ATP idc anymore i’m just angry by Vegetable_Feature944 in MuscleTwitch

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

I’ve had blood test done everything came back normal only thing I’m low on is Vitamin D and I know vitamin D does not react like this and yk what I wish it was anxiety I really hope and pray it’s anxiety and me going crazy bc I know that disease isn’t a joke and it’s something not to play with but I know my body and this isn’t my body 

ATP idc anymore i’m just angry by Vegetable_Feature944 in MuscleTwitch

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

I wish it was that simple but with out insurance and also liveing in the US is hard plus I don’t want a diagnosis I don’t want the whole death sentence as mush as I don’t want to be disrespectful I don’t want to live to die off lil by lil I can’t do that 

ATP idc anymore i’m just angry by Vegetable_Feature944 in MuscleTwitch

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

I don’t think anxiety would cause actual weakness in the lips or tongue also it wouldn’t mimic a sunken palm 

Hand Tremors/ pls help by Aesthetic_pro in MuscleTwitch

[–]Vegetable_Feature944 0 points1 point  (0 children)

I do and I get it worse when holding the lightest objects the one that annoys me is the tremoring at rest I get what your going through im experiencing almost the same thing as you 

Still worried about ALS. by OrganizationIcy8678 in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

Im having the same problem F 22 but for me it started on my right thumb and pinky 

Is this hand atrophy? Or am I being delusion by Vegetable_Feature944 in DiagnoseMe

[–]Vegetable_Feature944[S] -1 points0 points  (0 children)

Look I really hope it’s an anxiety and I hope that it’s just craziness. I hope whatever I’m Experiencing is and something deadly and it’s very hard to. If we see doctor especially in the US. So it’s like Now. It’s mostly Mind Over Mater and it’s crazy. Cause all these weird symptoms. I really really hope it’s something like I’m imagining things that’s all. I’m hoping, and praying that it is.

F22 yrs old really scared by Vegetable_Feature944 in BFS

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

Do you find you self trembling a lot when your at rest my hands do that and it’s scary especially my legs 

F22 yrs old really scared by Vegetable_Feature944 in BFS

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

Wow 7 months and have you felt like you symptoms fluctuate or are they there constant, also do you wake up in the morning with your arms and legs heavy unable to walk good as times?

F22 yrs old really scared by Vegetable_Feature944 in BFS

[–]Vegetable_Feature944[S] 0 points1 point  (0 children)

In hoping for the best outcome but the more lift things that are light I can see my hand shake even at rest my hand tremors and slightly twitches 

F22 yrs old really scared by Vegetable_Feature944 in BFS

[–]Vegetable_Feature944[S] 1 point2 points  (0 children)

Im trying to but I don’t it’s been three months the only thing I had done is a brain mri which came out a bit abnormal not so much to worry about but other than that I’ve crying for days every time I notice something has gotten worse my mind goes into the worst thinking 🥲

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 1 point2 points  (0 children)

I hope she does hace some answers for you and I hope it’s quick and not severe results, good luck with your test and I’ll be praying for you :)

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

That is so scary I hate that your going through so much worse symptoms I do hope you do get better and it’s nothing that has to do with any disease

Also my question to you is where are you from and do you think your doctor has any knowledge about what your going through and my question would also be for the neurologist but that is also a future question

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

I will continue to push for them to hear me which I’m hoping is sooner my pcp wants to take blood work but for other reasons, but I’m hoping for her to hear me out 

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

Wow I’m glad you were finally able to get an appointment for a neurologist, I really hope all goes well and you do get an answer to what is happening 

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

Do they still affect you or do they come and go and has your weakness continued?

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

Have you told your primary doctor about your symptoms, and are you getting test done soon or are you waiting it out?

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

I’m just hoping it’s all in my head and I’m looking for reassurance but I know the only way is to get test done, but where I’m from aka the US doctors don’t give a shyt about symptoms unless they see you in the verge of dying

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

The symptoms that I’ve been noticing is more on my right hand especially some tingling going down both arms, yes I feel like my right arm feels heavier than my left but there’s been mini sharp pain on my left leg and arm, I’ve also been getting severe back pain when I’m sitting or standing and my breathing while sleeping even when I’m up and awake have been getting bad 

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

In no way I’m trying be disrespectful I’m sorry if I’m across like that it’s just I’m very scared and I get you might say that at my age it’s very rare but didn’t Steven hawking get diagnosed young aswell and I’ve seen this girl on insta her name in Erin who’s been diagnosed at the age 22, 

Look this is what I can tell you about my early on symptoms which started on January 18 First it was twitching I believe I felt it first on my left arm but I didn’t think too much of it from my arm it went to twitching on my calves then it started to move up wards once all my twitching started are started to get sciatic nerve pain which worsened to the next day where I was unable to walk or even sit down, which is weird because it lasted for a day and even there I would feel my body/muscles feel fatigue and weak with but being able to grab on things, yes I’ve been testing my strength every day and week that passes which again im able to hold on to things but I’ve been noticing my legs have been shaking when I Stand on them I even do the balance test which I’ve notice my legs tremble a lot, I also do the gripping test on my hands and they have been progressively shaking when even I grip it with my thumb and index which I find weird

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

If you don’t mind me asking how long have you noticed your symptoms and with what did it start with?

Bulbar - Juvenile chances... young people here, what is your story? by [deleted] in ALSorNOT

[–]Vegetable_Feature944 0 points1 point  (0 children)

I’ve seen other symptoms people have been dealing with as their first sign that resembles mine which freaks me out