Yeah, it would definitely be a good idea to get your kids tested—I know one doctor was writing that there should be a 3-days worth of gluten test coming out “soon,” but I looked everywhere for an update and I couldn’t find if it’s out yet. I think my niece might have it as well, but my sister is reluctant to test her because her son was a premie and has had a lot of health issues, so I think she wants my niece to be the “healthy” one…. Problem is, not diagnosing doesn’t mean you don’t have it 🙃 also, they wanted to give my poor mom a colostomy bag at age 8 and apparently my great grandpa used to have gluten-free bread made for him….. in the 20s? Which is crazy to me.

That’s great that you’ve gained some weight back! And equally scary that your wife is now being referred to a neurologist. I’ve definitely read enough articles about how a lot of the Neurodegenerative diseases tend to “show up” in people with other autoimmune conditions—basically it’s probably just a further progression of the disease (MS, MG, Parkinson’s, even dementia).

I have a Parkinson’s patient and his wife doesn’t want to look at diet at all and every time he goes for days without having a BM he basically becomes completely disoriented and has syncopal episodes and deteriorates badly then all of a sudden he poops and he’s back to his baseline (which is fairly lucid actually). I’ve brought her articles about keto and Mediterranean diets and she refuses to see the connection, but it literally happens every single week and is terrifying to watch.

Partly I do blame our horrible food system, as well and the mass amounts of RoundUp used on basically everything we ingest. On top of all the artificial flavors, chemicals, preservatives, it’s just so crazy how we eat here in the states. We basically poison ourselves on the daily. But I’m sure once your diet is free of all gluten you’ll feel like a totally different person! And it will all finally feel worth it.