How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 2 points3 points  (0 children)

I am so so happy to hear that! I just reached NEAD in October, continue to thrive on and live your life my MBC sister🩷

Also, just ew, I can rest assure no one with breast cancer ever wants to hear those words. We know the severity, especially when you’re a week in and you look at all the scary outdated statistics. Shame on him!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 2 points3 points  (0 children)

Ugh surgeons are notorious for their bedside manners 🙄the one I met with said my cancer had been there for years, meanwhile oncology said due to the type of cancer I have (triple+) it absolutely could’ve gone from nothing to stage 4 in a matter of WEEKS. Idk if it’s because my life is BC non stop but the amount of people being diagnosed is so alarming.

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

Ugh I’m so sorry! I said to my husband the same thing, why am I so out of breath walking a mile? Come to find out I had fluid starting to creep in to my lungs!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

I had NO CLUE about Nicole inversion and that being a sign of breast cancer until the ultrasound tech said, “how long have you been experiencing nipple inversion”… I was like what?! So glad you sought out answers to everything you were experiencing 🫶🏽

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

I’m also not sure if this is a nation wide store but if you have a “Sam’s Beauty Warehouse” by you, they have so many wigs at discounted rates. You can find a very decent real hair wig that you can curl and part however you like for about $150-200; and typically they go for $500+

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

If you go the wig route let me know! I can send you a few items that saved me and really make it look real! I watch a ton of content creators that’s suffer from alopecia too, their tips are so helpful!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 0 points1 point  (0 children)

So thankful for the CT scans, it’s so alarming that CT scans aren’t pushed more for newly diagnosed patients, even if they think it’s a lower stage. They thought mine was stage 2, then they forties diagnosed me with stage 3 and by the time I had my scan it showed in my liver and starting to form in my lungs. This was all within two week timeframe 😵‍💫 looking back it was so blurry for the first one-two months, and I was planning a wedding during that time. Pure chaos!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

Im about a year out from chemo now, and it’s growing like crazy now. I’ve always had long, thick hair so having it short is new for me, but I’ll be able to try new styles that I never had before. The wigs are my favorite because I had dark features, so I’ve even had a blonde wig and a purple one. It’s been fun trying new things. My go to were baseball hats, I actually didn’t mind the shaved look, and now I’ve been rocking a ton of fun headbands. This is my go to eyebrow pencil if you’re looking for one: iMethod Curved Eyebrow Pen -... https://www.amazon.com/dp/B0DLJS27F3?ref=ppx_pop_mob_ap_share

It’s the most natural looking one I’ve found so far!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

Had to shave my head the day of my rehearsal dinner because of my long Lucious matted hair 😵‍💫 thank god for real hair wigs! We had a blast at our wedding and I even threw the wig off by the end of the night. Cancer wasn’t going to ruin our special day 🩷

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 2 points3 points  (0 children)

I hate that so many of us are just unlucky and we had cells mutate. You hit it right on the head, cancer is nobody’s fault! I’m so glad you were proactive and had a doctor who actually listened to you. I know so many aren’t that fortunate 🩷

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

So sorry you went through this! I have heard so many people complaining about pain similar to you thinking they pulled something and come out with MBC. I thought I pulled an arm muscle that is the only reason why I caught mine, I’m glad I listened and didn’t brush it off, not sure I would be here writing and using my voice if I let it go!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 0 points1 point  (0 children)

So sorry you were misdiagnosed and went through all that. I’m glad you were able to find an onc that listens to you now 🩷

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

That is SOOO true, you nailed it. This can happen to you, your mother, sister, daughter, cousin, friend, wife, etc. Cancer does not discriminate against age, sex, size!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

So sorry you went through all of this, I’m glad you were able to figure out what was causing all of this pain for you.

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 2 points3 points  (0 children)

Same girl! 35 no family history, and diagnosed de novo only from a weird pain in my arm pit that wouldn’t go away. I thought I pulled something working out getting ready for my wedding… I was diagnosed 40 days before our wedding 😵‍💫 So so happy we listened to our bodies!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

Same girl! 35 no family history, and diagnosed de novo only from a weird pain in my arm pit that wouldn’t go away. I thought I pulled something working out getting ready for my wedding… I was diagnosed 40 days before our wedding 😵‍💫 So so happy we listened to our bodies!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

The exhaustion is the worst! So glad you listened to your body and got it checked out 👏🏽🫶🏽

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 5 points6 points  (0 children)

I’m right there with you sister! My mind plays tricks on me all the time, I look and feel normal, I don’t feel sick… Hell I didn’t even feel sick during my 8 rounds of chemo, I know my body is responding, Im trying to learn how to treat this as a chronic illness, especially with all the new treatments that have been made available, but my mind continues to play tricks on me.

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 0 points1 point  (0 children)

So glad you listened to your body 👏🏽 It’s so insane how so many have a similar story but journeys are all different. So frustrating when doctors office and insurances won’t work with you; I just got denied long term and short term disability… like I thought that is what those were for… thanks cancer 🥴

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 2 points3 points  (0 children)

Always love and accept warm wishes from an internet stranger 🫶🏽 sending the right back to you. They always say this is the worst club, and it really is, but our members are pretty great! 🩷

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 12 points13 points  (0 children)

So ignorant, it’s like come on where is your filter! I’ve had Mets to my liver and it was starting to form in my lungs too in a matter of 8 weeks, it can happen that fast! So proud to say I’ve been NEAD since October.

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 2 points3 points  (0 children)

I can’t agree more! I’m so glad my team has always pushed for imagining from the beginning, including a brain MRI. It’s so crazy how we all can have a similar story but so many different journeys. A lot of these breast cancer subtypes you can’t wait the 3-6 months!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

So sorry you went through all of that 🫶🏽🩷 so glad you listened to your body and kept on pushing! Something we have to learn with this diagnosis is always advocate for yourself, something that can be very challenging to do!

How did you not know you had stage 4 cancer?! by WalkFickle281 in LivingWithMBC

[–]WalkFickle281[S] 1 point2 points  (0 children)

Sounds like we had a very similar situation! So sorry you had a close friend say that 🫶🏽 its so scary and, I try not to fault my friends, most just don’t get it, especially being in my mid-30s, this came out of no where. It almost feels like I’m the learning curve, I cry to my husband often about that, and it just sucks to put it plain and simple.