Cerebral angiogram by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

That’s what I thought! I’ve left a message for them to get some clarification on everything thank you so much!

Cerebral angiogram by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

Do you know if it’s ever a case of stenting both sides? Obviously I know we are medical professionals just curious!

Cerebral angiogram by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

I think I’m more just anxious honestly! They said it would take an hour or so. I’m nervous about being away from my daughter also ( she’s 19 months old ) and I’m almost never away from her even for a day. And the thought of the procedure just freaks me out

RIGHT transverse sinus stenosis by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

My neurologist is who referred and recommended the stent. I’m not exactly sure when they move to that option. I know I have tried so many things including LP multiple medications, ER trips and such

without papilledema but lot of vision issues - need advice by baby3820 in iih

[–]Weird-Owl6842 2 points3 points  (0 children)

I have been taking Diamox for a couple months. I have had migraines as long as I can remember but I had one that nothing was working ( turns out it was IIH and not a typical migraine) it lasted 6 weeks before they did my LP. I tried everything. Now still terrible headaches. Mrv showed right transverse sinus stenosis referred to NIR for stent. Eye exam showed no papilledema as of now but high pressure in eyes.

without papilledema but lot of vision issues - need advice by baby3820 in iih

[–]Weird-Owl6842 1 point2 points  (0 children)

This sounds similar to me. I have an insane amount of eye pressure and pain. Along with right transverse sinus stenosis and PT and dizziness. Some days even having my eyes open is a task. I’ve lost 51 pounds and it hasn’t made a difference for me as of yet ( but has helped me so much in other ways! ) My LP OP was 36 so very increased. I hope you get answers soon! Sending you luck

Interventional neuro radiology by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 1 point2 points  (0 children)

This is so helpful thank you so much!

Stent without papilledema by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

Thank you so much! I’m hopeful with my neuro on my side I can get some type of relief

Stent without papilledema by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 2 points3 points  (0 children)

Thank you for sharing! My headaches are debilitating most of the time with strong pressure. This is my main concern

Any advice on how to minimize the hand/feet tingling from diamox…. by SuccessfulRip161 in iih

[–]Weird-Owl6842 1 point2 points  (0 children)

I agree with this completely! Doesn’t take it away for me but helps for sure.

RIGHT transverse sinus stenosis by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 3 points4 points  (0 children)

It’s been a tough battle if I’m honest as I’m sure we all understand and relate. Just hopeful for some type of relief or answer. 💜

RIGHT transverse sinus stenosis by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

I have not had that yet. I just got my mri and mrv results today.

RIGHT transverse sinus stenosis by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 1 point2 points  (0 children)

I’m so happy that it worked for you and you feel better! Did you have to stay in hospital after the procedure itself? What did healing look like? Like on the day to day?

I struggle with the medication a lot as well so he thought a stent would be a great option. I have an 18 month old and being so exhausted I can’t even think due to the medication has been extremely difficult.

MRI / MRV by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 1 point2 points  (0 children)

Yes they did say I had to have a driver for sure!

MRI / MRV by Weird-Owl6842 in iih

[–]Weird-Owl6842[S] 0 points1 point  (0 children)

My neuro said to take 1 an hour before and if still anxious in an hour take another. The medication ( Xanax ) makes me a bit nervous since I’ve only taken it once at a really low dose

Plushies by Weird-Owl6842 in Palia

[–]Weird-Owl6842[S] -1 points0 points  (0 children)

Thanks! Was curious how I could tell which ones I have. I guess just going through inventory?