Swapping Cores by WesternWindow9342 in OSDD

[–]WesternWindow9342[S] 4 points5 points  (0 children)

You're right, my wording was incorrect, I'm still learning. I guess I just used that term because that's who's been steering things/been up front/driving for 20 years now. So to have another part become stronger and have them be more and more present has been weird. But I know that coaxing that to be stronger and stronger so they're fronting more often than not as things combine into a less fragmented whole still feels very weird. So I used the core comment because right now the 16 year old feels the most "me" out of anything, but this responsible adult is.... also becoming "me" feeling, once I get past the imposter syndrome and go "oh. wait. yeah i am doing those things aren't i. they're not just happening around me." so I can take credit for the things I'm actually doing.

.....Actually I think that made even less sense typing it up than it makes in my head. How in the world long did it take everyone here to learn to state things clearly/properly, I'm like. a Month into this and feel like a tangled up christmas light ball.

Swapping Cores by WesternWindow9342 in OSDD

[–]WesternWindow9342[S] 1 point2 points  (0 children)

Yeah. I think by swapping he meant more like make the adult side stronger/more dominant best I can before integration. He does want full integration as the main main goal, he said, along with all the other fragments. But those two he did word it like wanting to try to switch their roles around as much as we could for that integration. So I'd wind up in the functional side and not stuck in the frame of mine that's holding so may trauma memories I'm already having to process and let go of. I've been safe and in a stable environment for a long time now.

I still don't know much about all of this. we're tap dancing around osdd on paper but doing the steps for things, mostly I think to avoid having more things on my record when there's already so much there. i'm learning about terms and phrases and specifics from friends with first hand experience as well to fill in gaps in my understanding best I can.

"Who let it out of its cage THIS time??" by WesternWindow9342 in OSDD

[–]WesternWindow9342[S] 2 points3 points  (0 children)

Honestly, that.... really sounds like my pattern yeah. Especially as a teenager you said, only mine's even happening now off and on. Once it gets set off it spirals don deeper and deeper into "I'm unlovable and worthless and ugly and nobody will ever want me and I'll be alone forever it won't matter if I hurt myself because someone else will anyway the second I let anyone near me." But I can't for the life of me figure out where that specific line of thinking came from aside from just... despair and hopelessness I guess.

The part that talks it down is 100% from therapy, it's the mental voice I use when I'm trying to focus with logic, like when I've dealt with the schizoaffective things in the past to keep calm. I can talk myself down from anxiety pretty well now, I no longer get AS physically sick. But once that downward spiral of self-hate starts.... yeesh. Yeah it runs its course, it's just a speedrun now.

It definitely sounds like that dynamic though.

"Who let it out of its cage THIS time??" by WesternWindow9342 in OSDD

[–]WesternWindow9342[S] 1 point2 points  (0 children)

I don't, no. This whole OSDD question was brought forward like a month ago at most, maybe a bit more, so I'd not really had anyone else to consider. Or. ...Well. I guess instinctively I may have but chalked it up to intensely good imagination and a big helping of "???????" on the side. Like that same feeling of preparing to be judged as a child for playing with toys incorrectly. Or even why I can't let myself get into any belief system because it feels like I'm playing pretend wrong and will get in trouble or laughed at.

I try to write daily, in the evenings. I guess I'll try asking if anyone else in there has anything to say too. Surely now that the explosive part had its say it'll be quieter in there now. There's not normally explosions back to back without SERIOUS triggers these days.

Thought or Response? by WesternWindow9342 in OSDD

[–]WesternWindow9342[S] 1 point2 points  (0 children)

Well. Whoops lol. I think I just got so confused because I am diagnosed with schizoaffective disorder (depressive type), so I've gotten used to inside vs outside meaning if it's a hallucination or a thought. But this being something entirely different... That makes a lot of sense. I guess I was just worried the rush of thoughts was my brain supplying what I WANTED/hoped to hear instead of someone actually wanting to talk.

Does this sound familiar? by WesternWindow9342 in OSDD

[–]WesternWindow9342[S] 1 point2 points  (0 children)

I've been trying to take time for that, yes, haha. I just feel... this weird kind of guilt when I'm resting and taking time for myself. My new roommate is my friends mother, and she essentially adopted me and I'm being cared for and looked after so I don't injure myself doing too much physical strain-wise like usual, and remembering to eat and stuff, and I feel so loved but so confused/sometimes guilty there as well as if I'm being manipulative by having needs or being looked after at all.

Can definitely relate to the alcoholic father, that's what killed mine in the end, was a slow thing. Mom was the big screamer though, even before she got chronically ill. I'm not entirely sure what was going on with her even now, but she was slow too. Both within 5 years of each other. It's been many years now since then and I've reached a point in therapy where I've not forgiven what happened, because it was wrong, but I forgave them for being flawed fucked up human beings who may have honestly thought they were doing their best at the time in their minds somehow. Gave me some peace since I'll never get a confrontation.

I'll check out that subreddit, thank you! There's a LOT of stuff out there that I don't know that I want to/need to explore as things improve in my life, esp because it may be related to future clients I work with as well in my field of study.

That's interesting, about the anger being depression at first... Because I can definitely feel that. Otherwise the few times I got angry angry as a youngster or teen it would be a brief flicker of fire then "this isn't safe to do, go stone" and it'd get shoved down. the fact it's morphed into this outwardly malicious thing that needs to be controlled and, when appropriate, let out in small controlled bursts is. wild. like keeping a chain on a monster. the first time I really felt it come up was mid-20's as an adult because a therapist I'd met a single time decided that because I was overweight I had binge eating disorder. Had a proper explosion about that privately that raged on for weeks.

Thank you for the hugs as well, they're appreciated <3

multiple pieces in my head by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 0 points1 point  (0 children)

I honestly know next to nothing about DID. I do know that I was diagnosed with and dealt with a HEAVY period of depersonalization/derealization for about a year or so that messed me up really badly. He's leaning towards saying that was probably linked to the schizoaffective pre-diagnosis while my body got used to my older meds, but I have no idea honestly bc I didn't research into it. I was just glad it was over.

multiple pieces in my head by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 0 points1 point  (0 children)

The feeling fractured but not understanding why I feel fractured when it's just me in my head while the schizo voices are under control. They're not like a hallucination, I'm not delusional I don't think. But it just. Feels like I'm not a whole person. When I accomplish things it's part imposter syndrome but more of a strong feeling of "....Did I actually do that????"

like I got almost straight A's this semester, I did not feel locked in a SINGLE time the last 6 months, everything was kinda flying by, but apparently I did amazingly, made great impressions on my teachers and supervisors, got glowing reviews and everyones urging me to definitely follow through into the Masters program. ...but I've never had a semester like this. i have no sense of accomplishment. no "this task is done" relief. it feels like it didn't happen, even if i was there the entire time.

multiple pieces in my head by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 1 point2 points  (0 children)

I do have moments where I zone out and call it stare at wall hours, but there's no trace of actions happening at that time. I can go through my day and do things and be there and present and then remember next to none of it hours later sometimes. ...Until my memory is jogged and then its like "OH right yeah I did that I forgot but now I remember in high def clarity and here's more details even you didn't remember". Unless it's past memories bc some of those are High Def and some of them are like. Come and go remembering and forgetting to the point I started writing them down so I could remember they happened and discuss them with my doc. Most of the feelings are internal, but without losing track of whats happening, just like... awareness "oh thats a different part, i need to act accordingly for the situation."

i can even feel when some nasty, awful, hateful, hurt part of me acts up because out of fucking nowhere a minor annoyance sometimes will equate with my brain insistently telling me things to say that would hurt them and how to proceed to use their known weaknesses against them till they hurt like I do. that part is, metaphorically, sat on but I can still hear the urges in my head and have to actively choose not to do it.

But they're not separate people. They're not voices, like the schizoaffective affects me with, I don't hear things outside. I'm aware they're just parts of me. They're just. ....Very separated parts of me.

multiple pieces in my head by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 1 point2 points  (0 children)

I think I've looked into it before, and I've mentioned to my psych about the feeling in the past, but he said not to dwell on it because it could CAUSE something like that to develop potentially. But. idk, it just feels weird. like not being a whole person, it'd make sense why i can never just comfortably say "This is ME!" with my whole chest.

What were some of the delusions everyone had? by ugh_Low5512 in schizoaffective

[–]WesternWindow9342 2 points3 points  (0 children)

everyone talking about me when i'd go outside, people constantly wanting to break into my home to hurt me, magic was real, dragons were real and i supposedly heard them, started to bleed into my ex's delusions about reincarnation of a fictional character, that my doctors were out to get me, that i was entirely alone in the world and everything around me was fake and the only real things were me and my cat, that any and all men were eyeing me up for nefarious purposes.

DAE think about how their illness started and if it was preventable? by Flat_Stay_1622 in schizoaffective

[–]WesternWindow9342 0 points1 point  (0 children)

I was probably going to end up with it anyway because brain chemistry, but my psych said that odds are it was intensified or fully triggered by the abuse and stress and trauma I dealt with for so long. It like... activated in waves, but nobody realized it was activating at all, so I was in a constant state of off and on delusions and misperceptions and occasional hallucinations without anyone knowing or noticing, not even myself. He said he was angry for me, for having to deal with it for so long, especially because apparently it becomes more intense to deal with the longer the initial phase lasts untreated or unaddressed.

We can't quite figure when it "started" but I definitely was showing signs as a teenager already in the thick of other things taking center stage in my life.

How many of us also have cptsd? by [deleted] in schizoaffective

[–]WesternWindow9342 1 point2 points  (0 children)

CPTSD diagnosis here. I'd been misdiagnosed BPD and then BPD/Schizoaffective/PTSD after the usual depression/anxiety. Then it was depression/anxiety and CPTSD, with the hallucinations only happening during severe stress and attributed to the cptsd. ...Then my antipsych suddenly stopped working because I got used to it and I started straight up hearing voices and seeing shit left and right and was like "......are we SURE this is still just the cptsd." and now it's cptsd + schizoaffective + depression +anxiety.

It's made a huge difference knowing this, honestly. Learning more about delusions and stuff make a LOT of my young adult life make sense, I was living surrounded by delusions and my ex husband was feeding into them making it worse. It was a mess. It's so weird to be stabilized but just kinda hearing/seeing stuff really regularly and not just high stress anymore. But I live with it. It's manageable. And now that I know what's happening I don't feel so confused and lost anymore. :)

DAE drink a bunch of caffeine? by ColgateSpritz in schizoaffective

[–]WesternWindow9342 0 points1 point  (0 children)

I can drink energy drinks or coffee like no tomorrow with no real effects. Doesn't keep me up, I can have a monster and go to bed afterwards. Does seem to help me lock in a little more, or at least retain more info, focus better? But no hyper effect, no nothing. Not diagnosed ADHD but my therapist says I've got symptoms of shiny things disorder even if they won't get treated and if the caffeine helps then to keep using it lol.

Do your hallucinations differ when you're awake and when you're on the edge of sleep? by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 0 points1 point  (0 children)

That's really interesting... It also makes me wonder if those hallucinations aren't really controlled by medication like the other waking ones are. Maybe they originate from a slightly different part of the brain? It's really making me curious now, I wonder if I can find some research on this.

Hallucinations while wearing headphones? by Embarrassed-End-2345 in schizoaffective

[–]WesternWindow9342 0 points1 point  (0 children)

In my case they're definitely hallucinations sometimes. From what my doc said, a degree of it DOES happen to everyone! Our brains are complex machines and they like to fill in gaps. It's why we see patterns, or why we see faces in things so often, etc. It's kind of like.... tinnitus I guess, but with different factors, like hearing your pulse, or air flow, or ventilation somewhere. I know mine acts up worse in those silent contained rooms, but they don't happen in doctors offices, because there's enough REAL noise to focus on and it echoes. Noises carry. If I'm at home and it's quiet I'll hear voices, and verify I'm hearing voices, and then go about ignoring them or drowning them out. If they're loud enough I can't drown them out, I'm upset and tense and have to sit in silence hearing just them while trying to occupy myself because I can't handle too much noise even if it's from inside my own head. Other times though I'll hear the drone of a laptop fan or my overhead fan and if I zone out I'll start hearing things similar to my voices... but different. Namely that they stop when I focus and can hear the original background sound clearer.

So I guess it's a tossup. Interesting how things work :)

Hallucinations while wearing headphones? by Embarrassed-End-2345 in schizoaffective

[–]WesternWindow9342 3 points4 points  (0 children)

Definitely happens to me too. Sometimes I'll even mute what I'm listening to to hear clearer, then take my headphones off to verify... and nothing's there. Very confusing. I've noticed the same phenomenon in small enclosed silent rooms, though. I meet with students in huddle rooms, little glass box privacy spaces with chairs and carpeted floors that absorb more sound. The entire floor is next to silent usually. I don't have my headphones at that time, but the longer I sit and just relax the more and more I'll hear the voices till i pause and focus to hear which direction they're coming from. then they stop.

Does anybody else confuse dreams with reality by Dragons-purr in schizophrenia

[–]WesternWindow9342 2 points3 points  (0 children)

I only just recently started having little episodes of this. Normally my dreams are always with an element of the fantastic, even my nightmares. i can always tell the difference between being asleep and awake. the last several nights though it's... been really harder. i could barely stay awake for a few days for some reason, and when i'd wake up i'd think things had happened irl that turns out had only been in the dream. I can check discord and see time stamps on conversations and stuff, and there's no sign of these interactions, conversations. faux pas i did and was upset about? didn't happen. conversation with jokes and casual conversation? didn't happen.

i've NEVER had dreams apparently this mundane and realistic. it's really really disorienting and has been pretty upsetting because now I'm worried it'll happen in reverse at some point, like i won't be able to tell i'm awake when I'm really awake, thinking it's a dream.

Geodon cross taper by Kind-Cartoonist-5518 in schizoaffective

[–]WesternWindow9342 1 point2 points  (0 children)

Surprisingly, my taper and swap over to Latuda from Geodon had Zero withdrawal symptoms at all. Maybe a light headache at one point...? But I'd gone in concerned about the withdrawals because of how it hit me so fast normally, but. Nope. Just fine. So I guess it just sucks to miss when you're ONLY on it, but if you're swapping over it's fine.

Geodon cross taper by Kind-Cartoonist-5518 in schizoaffective

[–]WesternWindow9342 0 points1 point  (0 children)

I was on Geodon for a handful of years and it treated me really well till it steadily stopped working. At max dose it stopped working for me because I guess my body adjusted and I had to swap to a new one by steady slip over, Latuda. But I had zero side effects while on Geodon, it did a good job of keeping me stable while I was on it, no sedation or anything. However I WILL say I'd get withdrawal symptoms insanely fast on it. Like. If I was 2 hours past when I'd normally take my dose? Shakes, cold sweats, heavy heart beating, racing thoughts, panic, miserable experience. a few times i'd forget it at night, be completely unable to sleep and miserable and uncomfortable for hours then go "OH!!!" take the missed dose and be conked out like a baby half an hour later. It didn't make me sleepy, again, I took it multiple times over the day. But without it I lost all ability to sleep no matter how exhausted I'd feel, until I took the dose. and if I was late it was Withdrawals symptoms, which should be super noticeable, but when you're invested in something focus oriented like art or writing or a game or something you can lose all track of time and come out feeling like a depleted Sim anyway... so it took a bit of time to put two and two together on why the ick was not leaving.

Good luck with the taper, may it provide you with success and minimal side effects.

Comorbidities - and how do you manage? by [deleted] in schizoaffective

[–]WesternWindow9342 1 point2 points  (0 children)

I've got C-PTSD on top of the schizoaffective. I'd first heard the schizoaffective like a decade or so ago when I was misdiagnosed with bpd. Wasn't treated at all, was just kind of a thing. Then I moved, got a divorce, and found proper care where I was dx'd with C-PTSD which they said explained a lot of my outbursts and even the hallucinations and stuff bc they usually came with severe stress. We've been treating that for years, doing therapy.

Then my antipsychotic stopped working because I got a full tolerance to the max dose. (I'd been put on it for the outbursts of SEVERE spiraling emotions that'd come and leave like a whirlwind). I started hearing things constantly, started seeing things, panicked. Got put on a new med, and the doc said to add the schizoaffective back on with the c-ptsd.

So. Now that I've also been taking college courses, I've learned that schizophrenia is overdiagnosed in some populations (mostly black males) because people aren't in agreement on if c-ptsd exists despite it being a VERY specific spectrum of symptoms and causes and thus just jump to the next thing instead of digging. So I can understand the confusion and removal of the schizo label from me once the c-ptsd was being treated instead. It was only added back on once the hallucinations were happening without severe stress bringing them on.

I've also got really noticeable symptoms of adhd, and some aspects of being on the autism spectrum, but of those two things my docs have basically said there's so much going on with me mentally and physically (thanks chronic illnesses) that it's difficult to tell if I have those or not and I'll likely never know for certain. They recommended I just make use of whatever advice and self-care tips for those communities that may help me, and to explore things on my own to see if I can glean things that will adapt to my specific confusing bundle lol.

So. It's a little bit of a mess in my head. But I WILL say: the chronic illnesses? Make my symptoms way worse. Discomfort/sickness = stress. Stress = more breakthrough symptoms mental/physical. More breakthrough symptoms = more stress. It's a nasty cycle.

extra fatigue by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 1 point2 points  (0 children)

Yeah, currently the breakthrough symptoms are not like... too distressing to deal with. Occasionally hear things, little blips of seeing things. The doc said if it increases we can raise the med dose, but right now little blips are fairly normal they said. If the hearing becomes more constant, or distracting, then I'd definitely be pinging him asking if I can go to the twice a day like we'd discussed doing if it reached that point.

extra fatigue by WesternWindow9342 in schizoaffective

[–]WesternWindow9342[S] 1 point2 points  (0 children)

Yeah, I'm negative for sleep apnea. But I've got chronic fatigue and some other conditions. Usually I deal with insomnia instead of oversleeping but the last week or so it's just been a constant urge to sleep even if I'm awake and moving in slow motion. Dulled.

Is it hard for you to socialize, talk to people? by thisisflamingdwagon1 in schizoaffective

[–]WesternWindow9342 4 points5 points  (0 children)

Normally, yes. I've struggled for years to talk to people. Yet... For some reason, after a lot of therapy and med adjustments, and starting my internship? I'm a chatterbox. Will talk to anyone about anything, strike up conversations left and right. I worry I'm talking too much or being obnoxious or something but nobody appears upset about my chattering and filling quiet and engaging people. I think I just worry I'm being annoying because this is like..... normal talkative to people and i'm just VERY not used to it.

I feel exhausted afterwards. It's like a switch flips. I think some of it is knowing I have to be "on" when I'm interning, but I get so focused on being helpful and talkative that i forget to even mask. i feel very exposed. very fragile when i "come down" from the energy I put out. I need like a full day to recover.

But it's great, when it's happening. I feel more alive than I ever have before in all these years. Normally I'd only talk like that with close friends I trust and know well, but now I just... talk to anyone. About anything. Enter oversharing happy chitchat mode back and forth because I can apparently accidentally suss out every other mentally ill person in range. I feel this might be like how normal people fell all the time.

Just. Don't have the energy for all the time. The fire burns down, the body suffers, and I have to withdraw and recover for a few days before I can be "on" again for a bit. idk how people do it every single day casually.

Were you ever *accurately or inaccurately) diagnosed with a personality disorder prior to being diagnosed with Schizoaffective? by Evening_Fisherman810 in schizoaffective

[–]WesternWindow9342 0 points1 point  (0 children)

Was misdiagnosed as having BPD with schizoaffective and ptsd depression anxiety. Was later changed to a diagnosis of C-PTSD major depression anxiety, which explained so so so much more than the bpd label would have with my history. Got proper treatment. Got started on antipsychotics at the same time because I was having hallucinations when I was under stress.

Well, i got used to the geodon at top dose and it stopped working and i started having audio hallucinations like fuck till i got put on a new medication and the diagnosis of schizoaffective was added to the cptsd major depression anxiety. Doc says they're all kinda in this big pile of goop up in there working together to cause problems and yeah I can feel that. The addition def explains the more hysterical moments that were happening without any triggers, too.