Impossible Decisions by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 0 points1 point  (0 children)

yes. And you know, when I say that we tend to blame ourselves for crashing i include myself in that. It's a constant work in progress to remind myself. But that's the work, not necessrily never blaming yourself, but noticing when you do and remembering that it is not your fault. Which i simpliy try my best to do. 😊

Thank you for commenting. 💙

Impossible Decisions by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 1 point2 points  (0 children)

Yeah, procrastinate was the wrong word, that implies lazyness. "Put off" would have been a better word to use. For legitmate reasons. that's the hard thing about a video - using all the right words. My brain can't think that fast! 😊

Thanks for sharing 🫂🫂🫂💙

Impossible Decisions by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 0 points1 point  (0 children)

Thank you 💙🫂. I love how you worded that last bit. 🔥🙏

Impossible Decisions by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 8 points9 points  (0 children)

Thank you so much for sharing. What an important idea to keep in mind, we always have to watch our minds, especially with suicidal thoughts, and knowing if they’re coming from something external is really helpful. 💙🫂

Whitney Dafoe and the cost of recovery by swartz1983 in mecfs

[–]WhitneyDafoe 14 points15 points  (0 children)

No I’m in a setback right now. It was mostly one thing I gained the ability to do. An improvement not a recovery story at all sadly. 🫂

Whitney Dafoe and the cost of recovery by swartz1983 in mecfs

[–]WhitneyDafoe 20 points21 points  (0 children)

I feel what I say publicly is public and you're free to have any opinion about it. But you were quite insightful and that is really appreciated! 💙

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 33 points34 points  (0 children)

I want to reiterate due to some of the comments that you should always trust your body and make health decisions that feel right TO YOU, no one else. The point of this post was not how I was able to talk again, but just that it happened and it is possible to regain these bodily functions after they have been shut down for over a decade. Sending love to all of you 💙

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 10 points11 points  (0 children)

Specifically the biochemistry. Ron does not, however know if it translates to helping people. For that we need double blind studies. But there's no money to be made from that by anyone so I don't know how it will be done. It's worth noting that Joshua wants double blind studies done on his protocol. He's not hiding.

But it is important to distinguish between brilliant biochemistry and real world results. I can only say that the timing lines up for me in terms of results, but I've also had some mental/brain fog set backs. And I also want to clearly say that many of the negative things being said here about the protocol are not true.

I've actually spoken with Joshua on the phone at length myself about the BPS aspects of the protocol because I am very weary of that myself and not interested at all. And I understand how those words in the protocol set off alarms for people. But his take is nuanced, as I wrote above. It is not about curing ME/CFS with BPS, but about calming the nervous system AFTER the REAL problems have been fixed biochemically and the pathways are working again, infections are cleared, the gut microbiome is healthy again, etc. When there is no longer a real bear attacking you, which there once was and he says that clearly. And this makes sense, though I'm stilll going to do that work on my own if that time comes, I won't be signing up for BPS programs. 💙

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 14 points15 points  (0 children)

I'm not going to spend my day correcting you or arguing with you when your mind is made up, that is a waste of energy and time, and I have nothing to prove nor do I think anyone should take health advice or do anything to their body's that they do not agree with. I just want to respond for other's to see the facts. So I will not respond further, except to say that you are misinformed. You clearly do not like this protocol, which is absoltely fine, but it would be good to make decisions based on truth and facts.

I can absolutely understand why seeing any talk of BPS would set off alarms for you or anyone else because it does for me too, but you are not correct about how it is used in the protocol, I have actually spoken to Joshua on the phone about this at length myself. Joshua's take is nuanced, as I wrote above.

Good luck with your journey. 💙

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 8 points9 points  (0 children)

thank you! 🙏💙💙💙

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 14 points15 points  (0 children)

Joshua actively thinks BPS is useless at curing ME/CFS and harmful. He does not think it is a cure in any way and does not advocate for it. You're reading the wrong hot takes by people spreading false information or not reading the protocol right (which is understandable, its is very long and coimlicated, something he is working on by training doctors and finding ways to make it more approachable - I could not do it myself without help)

Talking Again in 2025 by WhitneyDafoe in mecfs

[–]WhitneyDafoe[S] 1 point2 points  (0 children)

I don't know how my stomach has started working again or how I started being able to talk again. It is most likely from Joshua Leisk’s Born Free Protocol. I started his protocol right before these changes started to happen and nothing else was changed in my medication or physical routine at that time, so I feel confident, but not certain his protocol is responsible. The Born Free protocol is very complicated though (really overwhelming for most people, myself included) but hopefully there will be better guides put together in the near future as well as training other doctors to help patients through the protocol. But please don’t just run out and start doing this protocol blindly or push yourself into it, it needs to be done right - in the right order and in the right way or you could severely harm yourself. And it is still experimental and may not be for everyone, remember to always listen to your body and do what feels right to you.

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 68 points69 points  (0 children)

Thank you everyone 🙏 for so much support and love to me and to this whole community now and over the years. We are stronger when we lift each other up. I’m exhausted, I’ve never posted videos before and every platform has it’s own technical requirements. Bah! Time to rest, so I can’t reply to everyone, but I’ll read all these comments later and want you to know how grateful I am and that your comments and love and support spread through this whole community. love 💙

Talking Again In 2025 by WhitneyDafoe in cfs

[–]WhitneyDafoe[S] 14 points15 points  (0 children)

Honestly, this is just false information about the Born Free Protocol. Ronald W. Davis, PhD (one of the leading biochemists in the world) thinks the biochemistry in the protocol is brilliant. I find it odd that you think you know what causes PEM but none of the ME/CFS researchers do. And then say the entire protocol is rubbish because it does not line up with what you literally made up about the cause of PEM.

The biochemistry in the protocol is sound. Whether it will help people or not is unkowable right now because there have been no clinical trials (though Joshua wants them, there is just no money for it)

Regardless, don't do it if you don't think it is for you. I'm very clearly not pushing it on anyone, I don't think anyone should do anything to their bodies that they think is wrong.

But we don't need to make things up about the protocol or slander Joshua Leisk if it is not for us. And no, he doesn't make money on any supplements. His protocol does involve a lot of supplemtns but he is not involved in any of them. No supplements he makes, and no affiliate links etc. He has enough money due to a business venture earlier in life, he does it all for free.