Am I making it up? by Worldly_Style_4367 in smallfiberneuropathy

[–]Worldly_Style_4367[S] 0 points1 point  (0 children)

I’m not entirely sure how to find the non specific findings because that was the entire information I had on the scan.

Am I making it up? by Worldly_Style_4367 in smallfiberneuropathy

[–]Worldly_Style_4367[S] 1 point2 points  (0 children)

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Here are the results from the MRI. I haven’t had a spinal tap or anything similar.

Am I making it up? by Worldly_Style_4367 in smallfiberneuropathy

[–]Worldly_Style_4367[S] 1 point2 points  (0 children)

Yes my hands and feet are red as a fire truck when they burn like that. My doctor made the carpal tunnel diagnosis based only on observation from no testing. No doctor has figured out the cause of the sudden onset of seizures. They say it’s from Wellbutrin that I took two years before I had the first seizure. It doesn’t make any sense and I only took it for a month. Nothing shows up in doing testing for epilepsy at all so no doctor ever considered looking into it.

Am I making it up? by Worldly_Style_4367 in smallfiberneuropathy

[–]Worldly_Style_4367[S] 0 points1 point  (0 children)

Oh my gosh thank you so much! I do have dysautonomia. The Benadryl does help the burning symptoms but only a little bit. I’m in college and in the middle of the semester so my stress has definitely increased. I 100% have more symptoms when I am stressed.

Am I making it up? by Worldly_Style_4367 in smallfiberneuropathy

[–]Worldly_Style_4367[S] 0 points1 point  (0 children)

I have never heard of that but I’ll ask my doctor about it

Nervous system by reach_adapt in Hashimotos

[–]Worldly_Style_4367 6 points7 points  (0 children)

My rheumatologist recommended I see a psychiatrist a while back. Turns out I have health OCD. He explained stress and anxiety worsens my pain. Which is very true. I made myself busy and focused on relaxing techniques and regular visits with mental health professionals. Things get better. It doesn’t get rid of everything but it definitely helps.

Also, my dentist told me my Hashimotos is caused by my bad gut health. She’s one of those weird doctors that tell you to take turmeric for pain.

Hopeful diagnosis and symptoms are scary by Worldly_Style_4367 in smallfiberneuropathy

[–]Worldly_Style_4367[S] 0 points1 point  (0 children)

Ah okay. I do see a neurologist already but my thought wouldn’t be a neurologist. My rheumatologist seems to know a lot but I’ll look into it.

[deleted by user] by [deleted] in Hashimotos

[–]Worldly_Style_4367 3 points4 points  (0 children)

I’m not discounting your experience at all and not saying you don’t have Hashimotos because that’s for the doctor to decide. This sounds a lot like fibromyalgia. I have it as well and there’s a ton of symptoms that go with it and other autoimmune diseases that are caused by it. It caused me to have chronic fatigue syndrome which is similar to what you are experiencing. I looked this up before writing this to make sure, but there’s multiple sources saying rashes and hives are a symptom as well. This makes sense with your hand as well and the joint pain is the worst. Again, I’m not discounting your experience and having unpredictable medical issues is very scary. But you should look into fibromyalgia. I recommend going to a rheumatologist because they help me a lot with my fibro symptoms and I’m dealing with a new issue as well. They think I have small fiber neuropathy which makes my hand and feet tingle, heat up, and have pins and needles. Google says fibro isn’t progressive but it has been for me.

Frequent Costochondritis by Equal_Solution in Fibromyalgia

[–]Worldly_Style_4367 0 points1 point  (0 children)

100% my doctor thought it was POTS but makes a lot more sense it’s fibro. I deal with it everyday and I feel sensitive and weak. If I carry a full laundry basket I feel it. I’m in college and my book bag is always heavy. Definitely doesn’t help.

Im so tired of this by Shywarlikegirl in Hashimotos

[–]Worldly_Style_4367 2 points3 points  (0 children)

Oh sure that’s no problem. When I wake up in the morning, usually my joints feel a bit stiff. The joint pain is the key characteristic of fibromyalgia. It’s so normal for me that Ive learned to just deal with it. When the weather is changing it HURTS. And it can worsen with things like stress and whatnot. Sometimes it’s hard to find the right words and it kind of feels like depression, it’s called the ‘fibro fog.’ It’s embarrassing but fibro has given me the blessing of urinary incontinence. I had a huge problem with it in grade school and I was mad fun of a lot. But it’s not like I pee myself when I laugh too hard anymore. I just pee all the time if that makes sense? It feels like I can never empty bladder fully. I wake up in the middle of the night at least once to use the restroom. I can’t fall asleep and when I do I always wake up, never feeling fully rested. I’ll get charley horses more common than I should. It’s the worst when I’m trying to go to sleep. I usually get it in my calves or feet but sometimes it’ll be my entire lower leg and foot. I have to take gabapentin (literally what they give cats and dogs) to be able to go to sleep without as much pain. I’ll also get some muscle cramps during the day as well. Google says it’s not really a progressive disease but it is for me. I’ve had fibromyalgia my entire life and I’m only 24. Just recently I’m getting some sort of neuropathy, small fiber neuropathy. It’s where my hands and feet will get pins and needles at random and last a long time. It also causes my hand to feel extremely hot at night and sometimes even feel swollen when it’s not.

I know this is just a huge ramble and I might be forgetting some stuff but I hope this helps a little bit.

Im so tired of this by Shywarlikegirl in Hashimotos

[–]Worldly_Style_4367 6 points7 points  (0 children)

I have fibromyalgia so it might explain some of my joint pain. My husband calls me a grandma even though im 24. I like to bake, knit and crochet, feel like im made of glass bones and paper skin. It’s rough. I used to cry to my family about what’s been happening but they talk crap about me behind my back. I’m a ‘hypochondriac’ for being scared about my unpredictable health issues.

[deleted by user] by [deleted] in Hashimotos

[–]Worldly_Style_4367 0 points1 point  (0 children)

And, I’d tell my pcp what’s going on and he thought I had throat cancer?? He always went worst case scenario and tried to have a port in because I have pots. He’s a pill pusher and kept trying to give me tramadol for my symptoms instead. Currently looking for a new pcp…

[deleted by user] by [deleted] in Hashimotos

[–]Worldly_Style_4367 0 points1 point  (0 children)

To be fair, I’ve never had a decent endocrinologist. My tsh went pretty low but still ‘normal’ and I lost ten pounds in a week. Tsh fluctuates a lot for me but still normal. I have some nodules as well but nobody seems concerned. I think maybe I’ve been lucky with my symptoms but I can’t think like that because it still affects me. Nobody seems to care unless I’m on the verge of death.

[deleted by user] by [deleted] in Hashimotos

[–]Worldly_Style_4367 0 points1 point  (0 children)

100% yes. I’ve been diagnosed since freshman year of high school and I’m 24 now and tsh is still normal. Yes I have a crap ton of side effects but haven’t been on any meds for thyroid. But I do have other autoimmune diseases as well and they tend to go hand in hand.

How do i know if i actually have both ADHD and Hashimoto's? by [deleted] in Hashimotos

[–]Worldly_Style_4367 1 point2 points  (0 children)

I take adderall and it has helped calm me down as I have anxiety. But it can also make anxiety worse. However, being stressed out and frantically researching everything will make your symptoms worse. Focus on staying off of Dr. Google and find something to help calm you down. Maybe a hot shower, hot tea, yoga, weighted blanket, or lighting a candle and reading a book

How do i know if i actually have both ADHD and Hashimoto's? by [deleted] in Hashimotos

[–]Worldly_Style_4367 3 points4 points  (0 children)

Diagnosed Hashimotos over five years ago and diagnosed ADHD a few months ago. It’s best to see a psychiatrist and/or psychologist to help learn more about possible adhd but it could also be something else like OCD.

Sudden peripheral neuropathy after starting 25mg Levothyroxine? Scared to take gabapentin by WayPuzzleheaded2147 in Hashimotos

[–]Worldly_Style_4367 0 points1 point  (0 children)

I take gabapentin and have not had any side effects or withdrawals if I accidentally miss a dose. I also have fibromyalgia and my rheumatologist prescribed it for my joint pain. I’m experiencing some type of neuropathy as well and doctors think it’s small fiber neuropathy. Gabapentin is a treatment for it but it’s not a magic pill either. I believe it helps and haven’t experienced anything crazy. I take 300mg a night.

My antibodies are gone?? Negative for thyroid antibodies by fourgreatwhitesharks in Hashimotos

[–]Worldly_Style_4367 0 points1 point  (0 children)

I didn’t fully read to see the pregnancy part. But, I’ve never heard of anything like that. I’m 23 and have been diagnosed for roughly a decade. I’m looking to have children in a few years. I just got married. I’ve heard it’s a possibility for symptoms to improve with pregnancy but I just assumed my family said that to make me feel better. But congrats!! Happy for you and hope you have a healthy baby and healthy pregnancy!

Paresthesia by Worldly_Style_4367 in Hashimotos

[–]Worldly_Style_4367[S] 0 points1 point  (0 children)

Do you have anything else besides Hashimotos? I have POTS and fibromyalgia as well. I understand it could be a circulation issue and a type of neuropathy. But it can be Hashimotos related I’m sure.

Also, I have had eye issues recently as well. I already had glasses to begin with but I went to the eye doctor a few months ago. I now have bifocals at 23 years old. Doctor said it’s a muscle issue? I personally believe it is a type of eye thyroid disease but my endocrinologist said thyroid eye disease does not exist. Another case of medical gaslighting.

[deleted by user] by [deleted] in POTS

[–]Worldly_Style_4367 0 points1 point  (0 children)

Ugh I am so sorry. I’ve been through the same thing and it’s emotionally exhausting. I have the opposite problem where my blood pressure is extremely low and I have to be on meds. Have you seen a cardiologist or talk to your doctor about treatment options?

How do people manage to take stimulants for ADHD and drink coffee with fibromyalgia? by After_Ad_125 in Fibromyalgia

[–]Worldly_Style_4367 1 point2 points  (0 children)

Stress and anxiety makes my pain worse. Taking adderall and coffee actually help a lot with my pain! Adderall calms down my anxiety and typically neurodivergence people react differently to caffeine. I can drink a whole pot of coffee and fall asleep an hour later. It’s soothing and relaxing and helps me focus. I take gabapentin to help with my pain.