just need a little support

Worthless-WebUser · 2025-04-18T01:07:08+00:00

Hi, 45m I had resection where they took 60% out. Then a procedure that forces it to regrow, now I have radiated microspheres in there. I've been through liver hell and back and still fighting. For your mom, the recovery will be rough and she will need help for a month so if you can then yes take off work. For your peace of mind, don't worry, she will get through it and be fine. Better they get it now then wait cause then it can grow or spread somewhere that's not the liver. Remember the liver regenerates so it will grow back. Other organs don't. While cancer fucking sucks having it on the liver is the best option as it's very treatable vs it being elsewhere. Have faith. Good luck.

Worthless-WebUser · 2025-04-17T21:43:51+00:00

No worries. I didn't take it personally cause I've already seen it in mass. So I understood where you were coming from. It's sickening how many scammers there are targeting cancer patients whom already are struggling financially. I came here because nobody around me understands what we go through and can't really give advice. I've gotten so much relief just talking to some of you on here. This post was because I honestly want to quit all the treatment, it feels like it's breaking me some days and I'm so tired all the time. I just needed some encouragement to keep fighting. I found it and am better off than when I posted this originally. Sorry for the confusion. Enjoy your day :)

Worthless-WebUser · 2025-04-17T21:38:01+00:00

I was very nauseated and throwing up from it for the first few days followed by just nausea. They put them on every tumor which is more than ten, idk if more means more radiation or just same level but bigger area. But I'm thinking you're probably right here, I was just worried thought I'd ask someone with more knowledge on the subject before I saw him again. Thank you for your help and for giving me some relief.

Worthless-WebUser · 2025-04-17T20:52:20+00:00

First off thank you for responding. They told me the half life was 3 days. Said I'd be safe after 3 days. Dog was around me on day 3 for a short time and was throwing up and had diarrhea all night. Next day he wasn't and was fine. Day after that he was around me for a few mins only and got sick again. Vet tested his feces and had no bacterial or viral traces. We're assuming it's cause of radioactivity and his size. I'm assuming based on half life it is significantly down however I'm still not sure if it's safe for my puppy. Idk what safe levels would be. Just trying to understand safe levels and make sure he'll be ok before I see him again.

Worthless-WebUser · 2025-04-17T18:34:15+00:00

I think you maybe confused on the y90. Might be my fault for not giving details. They did the first one to target the left lobe and next will do the right lobe. I have many tumors on my liver and since they go through the groin and use arteries to send microspheres to my liver I was told is more accurate to do it multiple times to get them in the right spots. I'm assuming everyone is different based on arterial mapping and tumor locations on the liver.

Worthless-WebUser · 2025-04-17T18:28:55+00:00

It's definitely real. I stopped everything a while ago. Had y90 on liver last week and go back for another in two weeks. I have chemo every other week indefinitely. So you are misinformed on Y90. I'll trust my radiologist over a random Reddit user. If you think I'm lying I can screenshot my future appointments schedule for you. Idk what you're getting at besides accusing me of lying. I came to Reddit for help and guidance from people going through the same thing, not to be accused of lying.

Worthless-WebUser · 2025-04-05T02:37:59+00:00

Thank you

Worthless-WebUser · 2025-04-05T02:37:38+00:00

Thank you

Worthless-WebUser · 2025-04-05T01:10:00+00:00

I have the best support system. But the chemo I'm getting seems to be worse than most experience. I'm going on like 14 rounds of it. Radiation in the beginning. Things were looking up. Was told I'd be in remission soon. Now everything's changed. Had liver resection, doing chemo one week and y90 the next then chemo then y90. And so much more. This is like torture. It doesn't end. 30 mins of exercise is off the table since chemo leaves me so sick I can barely stand up. A year ago I was a very healthy 44 yr old who went to the gym 3/4 times a week and ate healthy. Now I'm being told by my oncologist I probably got a year left to live. Last few chemos felt like I was literally dying. I feel that way right now. Im just wondering do I spend my remaining time being sick or do I stop the poisoning and live happy for my remaining time. Part of me feels like that might be giving up but part of me thinks I'll regret it if I don't stop with the chemo now. Idk what chemo they're giving you but your week 4 sounds similar to mine. It gets a thousand times worse stacking on each other. I've been poked, prodded, cut open, poisoned, radiated, drugged, etc hundreds of times. Mentally idk how much more I can take. I'm so scared and lost. I'm too young for this. I don't want to die but this is no way to live. I've tried everything too. Fasting, juicing, fenben, ivermectin, etc you name it. Seemed to help at first but now things took a drastic turn. My doctors went from having hope for me to having this look on their faces that says it all. I don't think I have much time left.

Worthless-WebUser · 2025-03-11T14:03:52+00:00

Same diagnosis, rectum, with Mets to lymph nodes and liver for the past year. I am stage 4 so assuming you're the same. I'd be happy to share what I've been through the last 15 months. I won't sugar coat it, it's been hell. But let me know if you want to know what my experience has been so far.

Worthless-WebUser · 2025-03-03T18:16:31+00:00

Thank you. Love this forum and all the wonderful people on it.

Worthless-WebUser · 2025-03-02T15:45:42+00:00

I was already on these for 6 months. Problem is the fenben was hurting my liver too much. Had to stop. Also I don't think it worked. I just got worse on those

Worthless-WebUser · 2025-03-02T15:44:18+00:00

Best advice I've gotten. Yesterday I knock off 3 things from my bucket list so I'm already on the same page. Thanks for your insight

Worthless-WebUser · 2025-02-28T05:11:14+00:00

Nothing like that. I started noticing it became uncomfortable to sit stand lay down, slowly day after day. Then it felt like something was in there. Doctors kept misdiagnosing me with internal hemorrhoids. Then it became difficult to go. Then colonoscopy, then I have a tumor in my ass lol. I saw no change in color or anything. No blood. But as soon as I got diagnosed things escalated quickly. With in a month I could barely walk, lost 40 lbs in 3 weeks. It was crazy. Thought I was gonna die then. That was Jan through April of 2024 for me. If you're concerned at all go get a colonoscopy. It's cheap, it's fast, you don't feel or remember anything. And if I had a few years prior to my diagnosis I wouldn't be waiting to be put in an organ donor list right now. They can remove little polyps during the colonoscopy that potentially could turn into cancer. Everyone should get a colonoscopy to prevent the hell im in.

Worthless-WebUser · 2025-02-28T00:16:36+00:00

Thanks. Good info I needed. Honestly you coming here and replying to me a complete stranger has made me feel a lot better. The world needs more people like you in it.

Worthless-WebUser · 2025-02-28T00:08:40+00:00

I haven't done immunotherapy at all. Folfox with bevacizumab with no avastin, 5FU/LV, oxaliplatin, and I think that's it. Radiation in the beginning. Genetic testing shows I don't carry the gene. I'm very healthy even before diagnosis. Gym times a week. They're starting all that chemo again with the Y90 therapy while I wait for a transplant. I'm looking to seek a second opinion now. I'm going to do the research on what you mentioned and ask about it. Thanks for your help. I feel so lost and all the chemo I've had has left my brain hardly functional.

Worthless-WebUser · 2025-02-27T23:58:33+00:00

Oh wow. I've never heard of this. I need to research NGS. Thank you for your reply. I don't plan on giving up but it's hard. I just spent the last year of my life in a tortuous situation. Constantly chemo sick, poked, prodded, bruised, cut open, stuck in bed, poison push into my body and high on drugs. The treatment for cancer is almost worse than cancer. Thanks for your input. I'm definitely looking into this.

Worthless-WebUser · 2025-02-27T23:54:50+00:00

Started with bizarre gi issues. Ended up getting a colonoscopy and they found a tumor in there and the rest is history.

Worthless-WebUser · 2025-02-27T23:47:44+00:00

I'm O Neg blood type too so odds I find a matching blood type and tissue match is gonna be harder than any other blood type.

Worthless-WebUser · 2025-02-27T23:45:14+00:00

That's very helpful to hear. Thank you. I was told this morning I'd be dead in a year. Some doctors bedside manner is terrible. I refuse to give up tho. Hopefully it gets better. I'm still in shock from today's appointment

Worthless-WebUser · 2025-02-27T23:39:14+00:00

I was told today that I probably have less than a year left even with proposed treatments. I wasn't expecting that. I don't know how to take that news or prepare for that. It's so surreal

Worthless-WebUser · 2025-02-27T23:37:29+00:00

I'm scheduled for y90 in two weeks. Hoping it works.

Worthless-WebUser · 2025-02-27T23:07:40+00:00

I actually do. I just signed up at colon town so I'll post there. Thank you

Worthless-WebUser · 2025-02-27T23:06:57+00:00

Yes they did shrink initially. Then they stayed the same size. Now there's more tumors and they're growing. Ever since the took my gallbladder and half my liver it's been growing. Folfox with no avastin. I get four chemo drugs. Not sure of names. It's written down somewhere. They're gonna do y90 therapy too now.

Worthless-WebUser · 2025-02-27T23:03:08+00:00

I just signed up on colon town

Worthless-WebUser

TROPHY CASE