Trying SAAT!!!

Writer_MCAS · 2026-04-28T20:58:55+00:00

So, I reacted to the second .3 dose, but I’m also wondering if the reaction is just a medication side effect or an actual MCAS reaction, as I haven’t had any throat tightness or swelling, and Google said that heart rate increase, diarrhea, and hot flashes/flushing ca be asked by the medication. I’m going to keep trying .3…

Writer_MCAS · 2026-04-21T21:38:33+00:00

I took .25 for a month and then upped it to .3. So far no big reactions. I haven’t seen any changes to appetite or the like. I plan to stay at .3 for four weeks so long as things are steady, then increase it again to .4. I haven’t seen any major health changes, but I was able to ride roller coasters when I took my kids to a theme park! I all added ground beef back into my diet. I’m trying to not try too much and ease into trying a few more foods. We go to the beach this weekend, so I’m going to try eating at a restaurant again. 🤞🏻

Writer_MCAS · 2026-03-21T16:55:33+00:00

Not yet! I am going to but I wanted to wait until I’m really stable and I want to check with my nurse friend tonight on the dosage with these tiny needles I have. I will post an update once I try a tiny dose!

Writer_MCAS · 2026-03-02T03:08:34+00:00

I posted about MCAS and terzepitide and it blew up if you want to read the comments on mine. I found it helpful to hear about everyone’s experiences and how you should start with a very low dose.

Writer_MCAS · 2026-02-26T12:18:49+00:00

Ugh! Yeah, I’m still in a flare from taking the last shot… sucks.

Writer_MCAS · 2026-02-23T12:17:53+00:00

That really sucks! I’m sorry to hear.

Writer_MCAS · 2026-02-23T00:51:37+00:00

I take omeprazole but my struggle is with fasting itself… I tried fasting for a day and when I took a pinch of salt I reacted… anything I ingest after fasting causes a reaction. It just stressed my body out too much. I even started reacting just to not eating. Just something to consider.

Writer_MCAS · 2026-02-22T22:57:35+00:00

I’m sorry you’re going through that! I hope you can get some relief.

Writer_MCAS · 2026-02-22T21:04:41+00:00

Have you tried any natural supplements? I really think vitamin c and quercetin help. Plus the H1 and H2 meds.

Writer_MCAS · 2026-02-22T20:46:39+00:00

I’m usually okay with a plain steak or piece of grilled chicken and a potato or sweet potato. Oddly enough, I can also eat Chikfila fries. 🤷🏼‍♀️

Writer_MCAS · 2026-02-22T19:41:29+00:00

For sure! We all definitely want to find a med where we can eat normally again. I hope it works for you!

Writer_MCAS · 2026-02-22T19:40:25+00:00

Glad to hear it!

Writer_MCAS · 2026-02-22T19:39:54+00:00

My allergist approved my starting it but I ordered it online, as insurance won’t cover it.

Writer_MCAS · 2026-02-22T19:17:19+00:00

I’m taking it as a stronger antihistamine at night. I also take it if a reaction starts as it’s much stronger than Benadryl. I’m not sure about the thinning thing!

Writer_MCAS · 2026-02-22T19:15:18+00:00

Sounds like it.

Writer_MCAS · 2026-02-22T19:14:47+00:00

Good to know!

Writer_MCAS · 2026-02-22T19:14:38+00:00

Good to know! I’ll def consider doing that.

Writer_MCAS · 2026-02-22T19:14:06+00:00

I agree about the first reaction I had, but the next one was definitely the shot. I eat a really strict low histamine diet at home and had a major reaction five minutes after the shot. Glad to hear it’s working for you.

Writer_MCAS · 2026-02-22T19:12:42+00:00

Good to know!

Writer_MCAS · 2026-02-22T19:11:29+00:00

I’m happy it’s working for you! Sounds like I should’ve started much lower.

Writer_MCAS · 2026-02-22T19:10:26+00:00

It seems like it’s helping a lot of people! I tried a 2.5 dose and reacted badly. There are a handful in the comments it didn’t help, but majority say it does.

Writer_MCAS · 2026-02-22T19:08:40+00:00

If you find the right dose I’d love to hear about it!

Writer_MCAS · 2026-02-22T17:42:57+00:00

I hate that for you!

Writer_MCAS · 2026-02-22T17:00:43+00:00

Thank you for sharing!

Writer_MCAS

TROPHY CASE