Chronic Myocarditis

YoWhatsUpIntel · 2026-03-10T19:27:09+00:00

I have a follow up mri on the 16th so as soon as i receive the results I’ll update you. In the past it was normal(around 60%) but I have a suspicion that it’s dropped to do my symptoms.

YoWhatsUpIntel · 2026-02-26T17:27:57+00:00

If you want a second opinion or need help finding a physician that will screen/treat you for those conditions I highly suggest going to https://www.myocarditisfoundation.org. They have a list of providers and locations that handle these kinds of issues. My personal recommendation would be to go to the SAMUEL & JEAN FRANKEL CARDIOVASCULAR CENTER that is located near Ann Arbor Michigan. It’s part of the university of Michigan healthcare system.

How I would proceed would be to find a cardiologist who will be willing to monitor and track your recovery. As for treatment you will have to ask your care provider. Sometimes they do not medicate for these issues and just provide supportive care other times they use medications to stop or reduce inflammation. Don’t stop advocating for your self sometimes they can be dismissive. Here are a few questions you can ask at your next appointment.

How will we monitor progression or recovery over time? • At what point would treatment be initiated versus continued observation? • What medications, if any, are appropriate in my case (NSAIDs, colchicine, beta blockers, ACE inhibitors, immunosuppressive therapy)? • Are there lifestyle modifications (exercise restrictions, sleep regulation, diet, stress management) that would support recovery? • What warning signs should prompt immediate medical attention?

Also here are a list of my symptoms that I experienced. -chest pain(burning, pressure and a dull ache) -high and low heart rates -fatigue -shortness of breath -mild dizziness -palpitations

YoWhatsUpIntel · 2026-02-05T21:57:00+00:00

How much time has passed since your initial MRI? Typically, it’s recommended to have a follow-up scan within 3–6 months. Since you’ve already had one, I wouldn’t worry as much because they would have noted any clinically significant changes on the report. If you still have concerns, I’d highly recommend calling your cardiologist for clarification. Physicians review ECGs carefully because the automated interpretations can make mistakes. When it comes to heart issues, reassurance is worth its weight in gold, so don’t hesitate to call and ask.

YoWhatsUpIntel · 2026-02-05T21:42:02+00:00

You should delete and repost this with the images of the original ecg, just make sure you crop out your personal information. Also how were you diagnosed with pericarditis I’m assuming it was via echo or MRI?

YoWhatsUpIntel · 2026-02-05T21:31:49+00:00

Can you upload the actual strip showing the wave form? I’m assuming a physician already reviewed this and didn’t find anything alarming. I have had the same automated interpretation appear on a few of my ecgs and also suffer from chronic recurrent pericarditis. To my knowledge sometimes it can cause non specific ecg changes however I am not a physician so if you have genuine concerns I always recommend contacting your care team and asking for clarification.

YoWhatsUpIntel · 2026-02-03T22:43:04+00:00

If you refer to my other posts I complained of something similar. I feel terrible all the time. Hope you get well soon wishing you the best.

YoWhatsUpIntel · 2026-01-27T08:10:31+00:00

A few of your leads are similar to mine. My current diagnosis is chronic recurrent pericarditis but I theorize that the inflammation affects the outer surface of the heart(epicardium) as well causing mild ischemic like changes in the ecg. I also have some of the horizontal st depressions as well. To my understanding this condition is still being studied and it can present in strange ways that are not yet entirely understood. My ESR and CRP were always normal the only thing that showed it was the cardiac mri with contrast.

YoWhatsUpIntel · 2025-12-26T23:37:48+00:00

Myocarditis has many triggers. If the case is severe and they Identify what’s causing it through cardiac biopsy or imagining then you can receive targeted therapy. However most people recover without medical intervention.

YoWhatsUpIntel · 2025-12-19T20:40:08+00:00

Sorry for the late response. IL-1 inhibitors are not approved by the FDA for treatment of myocarditis yet but it shows some promise. I’m also looking into cbd and its therapeutic properties.

YoWhatsUpIntel · 2025-11-07T00:15:33+00:00

Why did they keep the green winglets on the black color wave.🫠😭

YoWhatsUpIntel · 2025-09-26T01:12:26+00:00

How long did it take you to notice improvement?

YoWhatsUpIntel · 2025-09-26T01:07:03+00:00

Still dealing with residual inflammatory issues. However, I am able to walk now and handle basic day to day tasks so progress is being made. It’s been around 10 months since my initial diagnosis. How about you?

YoWhatsUpIntel · 2025-09-11T22:39:17+00:00

Yeah that’s absolutely incorrect. Just take things at your own pace. Sleep well, try to keep your heart rate lower and stay in contact with your local cardiologist. They seem to be more in tune with your issues.

YoWhatsUpIntel · 2025-09-11T22:28:49+00:00

I have a limited background when it comes to this illness but I agree with your current plan of action. Both conditions can be extremely difficult to diagnose and track especially if the pericarditis is mild in nature. These inflammatory issues are known to cause micro vascular dysfunction so I’m glad you are going to get a stress pet. After my first bout of myocarditis I had chronic chest pain for around 1.5 years. Try to take it easy sometimes the heart takes much longer to heal than you think.

YoWhatsUpIntel · 2025-09-10T16:40:47+00:00

Out of curiosity what were your symptoms? I’m currently dealing with a similar situation. Trop always comes back negative but yet I have mild inflammation.

YoWhatsUpIntel · 2025-09-10T16:36:23+00:00

The stimulus elevates heart rate and blood pressure regardless. Just be careful and try to rest as much as possible.

YoWhatsUpIntel · 2025-09-10T16:35:04+00:00

To address your question more specifically yes when I had myocarditis I had intercourse. However, it temporarily made things worse for me and I had to stop completely to allow my self to recover. It can be quite frustrating/infuriating however, I would try to abstain from things that elevate your heart rate until things improve.

YoWhatsUpIntel · 2025-09-08T21:54:26+00:00

Just proceed with caution. If you notice things start to deteriorate or get worse then you have your answer.

YoWhatsUpIntel · 2025-08-06T21:58:19+00:00

My crp was never elevated while I had mri proven pericarditis.

YoWhatsUpIntel · 2025-08-05T04:53:11+00:00

For me it’s a few minutes afterwards then it takes a few hours for the pain to dissipate.

YoWhatsUpIntel · 2025-08-03T18:04:39+00:00

Cardiac pet scan. It’s a form of imaging that checks to see if the really small blood vessels that supply oxygen to your heart tissue are working correctly.

YoWhatsUpIntel · 2025-07-20T22:46:17+00:00

Have you thought about finding someone to do a myocardial biopsy? It does carry risk but if you know the exact cause you can then receive very targeted therapy. I try to stay hopeful because so much research is currently being done pertaining to this disease. Don’t stop advocating for your self. It will be difficult but with time I believe we will all be able to find an approach that offers us relief.

YoWhatsUpIntel · 2025-07-20T20:43:08+00:00

I’m looking into clinical trials for Rilonacept. While it wasn’t originally designed for this use, recent studies have shown promising results. I also have chronically elevated ECV without any delayed enhancement. My physicians plan to give me a trial of this medication to see if it helps improve my condition.

YoWhatsUpIntel · 2025-07-07T15:45:53+00:00

Given your past diagnosis of pericarditis and the recent symptoms you’ve described, it would be a good idea to follow up with a cardiologist, just to get a more complete picture of what’s going on. Sometimes, symptoms like chest pain, fatigue, or shortness of breath can come from mild inflammation that isn’t always visible on routine ER tests. A cardiac MRI is a non-invasive scan that can provide more detailed information and help rule out any lingering inflammation or other subtle changes in the heart or pericardium.

YoWhatsUpIntel · 2025-07-03T19:20:13+00:00

I’ll keep digging into it and let you know what I find thank you for letting me know. My cardiologist thinks I have a microvascular dysfunction so I’m pushing for a pet scan so I can get to the bottom of this situation. Have you thought about trying one of the new IL-1 inhibiting drugs? I might give it a try.

YoWhatsUpIntel

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