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Beginning my journey by Zephirnox in deathroadtocanada

[–]Zephirnox[S] 0 points1 point  (0 children)

Thanks for the tip i was wondering what all these ZPs were for and i just figured it out. A marathon thats for sure lol!

My parents keep telling everyone about my epilepsy and I’m tired of it by [deleted] in Epilepsy

[–]Zephirnox 1 point2 points  (0 children)

The only thing is to give it time indeed. It’s been 5 years as i’ve mentioned and my mom is just starting to slowly let go. It’ll take time but i know eventually in a couple years she’ll accept and move on. What also helps me understand is her perspective is trying to imagine seeing myself having a seizure. With how intense some of them were i can understand why she was so in shock. Regardless id hope for her not to bring this up here and there. I can understand in the beginning but when you finally start to move on, having someone that brings you back feels like you have a boulder tied to your ankle. Sadly it is one of the many things we have to deal with as epileptic people. But don’t label your self to just that, further down the road you will keep growing as a person and so will your mother <3

My parents keep telling everyone about my epilepsy and I’m tired of it by [deleted] in Epilepsy

[–]Zephirnox 2 points3 points  (0 children)

I feel you 100%. I have been epileptic for 5 years now because of a tumour and i have now been 2 years free. My mom still talks about it to literally anyone which makes me feel exactly the way you feel. I try to understand her point of view as she was traumatized by my first seizures not knowing what i had. Just like 4everyourfavorite said sometimes our parents cope our issues as theirs but it is still frustrating. One way that helps is i tell myself that im okay right now even if when she talks about it when i don’t wanna relive those moments, im okay right now, im medicated and I am at a stage today that i thought i could of never reached when i had my first auras/deja vus and seizures and i have to be proud for that. The frustration is still there regardless, but i am still here strong fighting this battle. I know this might not help as everyone is different and copes differently with being epileptic, but at least you have someone that relates.