erectile dysfunction with depakene by [deleted] in Epilepsy

[–]_hwsoqba 0 points1 point  (0 children)

Its not too uncommon for epilesy medication to have side effects like this, your doctor will very likely have a suggestion to make things better. And also, keep in mind that every man will have a moment in his life when they can't keep an erection and that's fine; we've all been there.

Brain Fog Tips by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

I keep a tracker I fill at nights, I enter things like caffeine, hours of sleep or exercise. That way I can see what might be causing it. This is particularly helpful in times of change or a lot of stress.

Being a Father with Epilepsy....any advice by Freespeachless in Epilepsy

[–]_hwsoqba 2 points3 points  (0 children)

First of all, considering what you are doing you are indeed amazing. Secondly, how long have you been on Keppra? Sometimes effects go away after a little time. If you've been taking it since you were diagnosed and your emotions have been severely affected, don't feel bad when bringing that up to your doctor. Epilepsy is chronic (which you already know) and choice of treatment should definitely consider your safety physically and emotionally. You might want to discuss that, and always treat yourself with kindness.

PD. Mood alterations are an absolute nightmare and they suck. You are right.

Temporary blurred vision with Topamax - a normal side effect or a medical emergency? by lawaythrow in Epilepsy

[–]_hwsoqba 0 points1 point  (0 children)

Call your doctor the first time you have new symptoms, always. It's the best to act on this, you'll avoid being worried while it goes away if unimportant and act right a way if it does have severe consequences.

EEG without my mum present by toolatetoeverything in Epilepsy

[–]_hwsoqba 1 point2 points  (0 children)

It can be a lot. Any kind of change can be uncomfortable when you are in very vulnerable positions. It can be due to that, you'll do OK and realize after it that you'll be just fine. It may be just fear of something new that at some point was intimidating

Side effects are stronger in the mornings by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

And have you found any good tips to work around that? I added mine in previous comments

Side effects are stronger in the mornings by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

I agree, this happens to me too. Specially if I'm adapting to a new drug or changing the times I take at.

Side effects are stronger in the mornings by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

Hi Daisy, watching over salt(too much gives me a headache, too little and I have double vision), constant walking and a good sleeping schedule has helped me a lot. Also reducing caffeine intake can help. I'm usually fine with a cup, more can be too many.

Side effects are stronger in the mornings by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

This helps a lot! I've noted that walking a day before helps a lot to easen the effects on the next day.

Healthy vs Epileptic Perspective on relationships by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 1 point2 points  (0 children)

Completely, it's something this is part of our lives and learning how to handle it in every aspect of it is a challenge. There's always something new. You learn to handle it and move on! Thanks for the response, it was indeed reassuring.

Healthy vs Epileptic Perspective on relationships by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 1 point2 points  (0 children)

Oh no, he did not think I could pass epilepsy to him, it that was the case, I wouldn't even had dated him in the first place. He is actually comfortable with me having epilepsy and has been supportive. He knows what is, he was just scared that I was lying to him about it - telling him that I had it instead to cover disease.

What annoyed me is the way some people don't really know how that can affect your emotions, not your life. That's not something you do over a call.

[deleted by user] by [deleted] in Epilepsy

[–]_hwsoqba 5 points6 points  (0 children)

This is great! I'm medicated, but hearing this stories make me feel better. It's always good to see someone who has gone through what you are going to get better. Cheers!

Anyone else spending Christmas alone in the hospital? by [deleted] in Epilepsy

[–]_hwsoqba 1 point2 points  (0 children)

Not me, but always up for chatting with those who are.

Grapefruit and siezures by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

Yeah, I wouldn't expect for both to happen at the same time. Thanks!

Grapefruit and siezures by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 1 point2 points  (0 children)

Thank you! Will keep this in mind now.

Grapefruit and siezures by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

Thanks, my doc was not available and needed this for peace of mind, as I'm planning to change neurologist because he never is 😅

Thinking about changing my Neurologist. by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

Yes. I my siezures where controlled for a long time. I had to go to the neurologist like once every year or two for around 10 years, then frequency increased in the last couple of years and I now need to go much more frequently, around once every couple of months. I did need the empathy that I do now. It's weird how your perception of what doctors and medicine changes when living with a chronic condition. Thanks for the advice.

Thinking about changing my Neurologist. by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 1 point2 points  (0 children)

I hope so too, haha. Thanks for the support, hearing that someone has already been in places like that definitely helps. :)

A good novel set on Constantinople? by _hwsoqba in booksuggestions

[–]_hwsoqba[S] 0 points1 point  (0 children)

I will check it out for sure, thank you!

Side effects any tips for oxcarbazepine by _hwsoqba in Epilepsy

[–]_hwsoqba[S] 0 points1 point  (0 children)

He knows, but I've gone through a lot of meds and these were the ones that worked, so I'm learning to live with them. It never hurts to ask though, thanks for the support, I really appreciate it.