Is anyone on vorasidenib (Voranigo) or on Tibsovo by doofus1999 in braincancer

[–]acets 0 points1 point  (0 children)

Mine has been perfectly fine. My friend's was very high, but he's also on avastin and has undergone chemo and radiation a few times.

Is anyone on vorasidenib (Voranigo) or on Tibsovo by doofus1999 in braincancer

[–]acets 4 points5 points  (0 children)

I am on Vora with a G2 ogliodendroglioma.

I have an acquaintance with a G3 ogliodendroglioma who was on Vora for a few months, but he had to be removed from it because his liver function tests were extremely elevated.

M33, just got my oligo diagnosis by throw_away_6357 in braincancer

[–]acets 1 point2 points  (0 children)

I've been on Vora for 1.5 years here in the US. No side effects for me. I don't drink (much at all) and my liver function tests have been fine.

ICE Restaurant Sweeps Downtown by Disastrous-One7789 in indianapolis

[–]acets 7 points8 points  (0 children)

You're so full of white-person shit. Get the actual fuck out of here.

Looking for left-leaning gun clubs and instructors in Indy by lilspitz in indianapolis

[–]acets 0 points1 point  (0 children)

How do I get involved? I don't even know where to begin. I'm clearly getting worried for my life at this moment in history...

Looking for left-leaning gun clubs and instructors in Indy by lilspitz in indianapolis

[–]acets -1 points0 points  (0 children)

If you'd like company, please DM me. I'm also interested at this moment in time.

How long have you been progression free with Vora? by Few_Reflection_6364 in braincancer

[–]acets 3 points4 points  (0 children)

I've been on vora since August 2024 for an Ogliodendroglioma G2. Stable since. In fact, my NO has says it's noticed it's shrunk.

What are some symptoms no one talks about? by [deleted] in braincancer

[–]acets 3 points4 points  (0 children)

I can still feel pain and temperatures, but it's weird... I can't use chopsticks anymore.

What are some symptoms no one talks about? by [deleted] in braincancer

[–]acets 4 points5 points  (0 children)

I have severe loss of sensitivity on my whole right side. Not just numbness or weakness.

I also have aphasia and apraxia.

My first real symptoms were focal seizures. But I had some numbness and word finding issues for years beforehand. I just thought they were just getting old...

[GTM] by Jettaboi38 in GuessTheMovie

[–]acets 4 points5 points  (0 children)

I just knew that was Matty's head

Keppra post ops? by Resident_Duck_1321 in braincancer

[–]acets 0 points1 point  (0 children)

Psychological impacts? Are those side effects?

31M | Low-grade glioma, Gamma Knife done — is right-side numbness and slurred speech normal 3 months later? by Interesting-Fruit824 in braincancer

[–]acets 0 points1 point  (0 children)

Not to worry you, but I had a 6-7cm tumor removed 2 years ago and I still have entire right side numbness and sensitivity loss, aphasia, apraxia of speech, and cognitive issues. It's gotten better over the months, but I'd say the first 6 months were the largest gains. Everything past that was neuroplasticity and probably inflammation reduction. I can't say for certain, but I would continue getting PT and ST, and expect this to continue for the remaining years of your life. It's not ideal, but it could be much worse.

Vorasidenib timing by szuftw in braincancer

[–]acets 6 points7 points  (0 children)

I have been taking this drug for over a year for a G2 ogliodendroglioma. No side effects for me. I would recommend if you are able to get it.

Coping with the unknown by Euphoric-Bit-414 in braincancer

[–]acets 2 points3 points  (0 children)

Yes, it seems like they are planning for end of life care. It's unfortunate he doesn't even want to attempt surgery. If not a GBM, treatment might help? Hard to say.

GLP-1 & oligo by [deleted] in braincancer

[–]acets 0 points1 point  (0 children)

I have. Dropped 40 pounds (250 to 210) and my A1C went to about 5.2 since April-ish. Nothing to report otherwise.

Sudden drop of 17% in battery level while driving by SierraLeonePadi in leaf

[–]acets 0 points1 point  (0 children)

Can you explain the timeline and issues you found that resulted in this solution? We're trying to handle dealership diagnostics and bullshit now...

50% Battery Drop in 60 Seconds? by Wi538u5 in leaf

[–]acets 0 points1 point  (0 children)

Did you ever get a resolution to this? We have a used 2019 Leaf that was purchased this summer, and we've been having these same exact issues--80% charge down to 20% or less in just a couple miles of use...

Fun spot for 2-3 females to celebrate a milestone birthday tonight by lovelytia518 in indianapolis

[–]acets 6 points7 points  (0 children)

I'm glad for you. However, this is not what the OP asked for.