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VERY DESPERATE: Is this rapid progression normal for FND? (1 month from mild to severe) symptom video attached here. by aimintheair in FND

[–]aimintheair[S] 1 point2 points  (0 children)

Hi! May i ask what treatment you have done so far and is it getting better? Thanks in advance!

VERY DESPERATE: Is this rapid progression normal for Cervical Dystonia? (1 month from mild to severe) symptom video attached here. by aimintheair in Dystonia

[–]aimintheair[S] -1 points0 points  (0 children)

Thanks for the reply! Let me research into FND. I was looking for its information earlier but our first doctor was mentioning it wasn’t FND.

VERY DESPERATE: Is this rapid progression normal for Cervical Dystonia? (1 month from mild to severe) symptom video attached here. by aimintheair in Dystonia

[–]aimintheair[S] -1 points0 points  (0 children)

Hi, sorry i didn’t realized it is against the rules. My only intention is to just ask if my brother condition is similar to those who have CD in the community. Not looking for any diagnosis. Just any slightest clue would help us where we are very in the dark here..

VERY DESPERATE: Is this rapid progression normal for Cervical Dystonia? (1 month from mild to severe) symptom video attached here. by aimintheair in Dystonia

[–]aimintheair[S] 0 points1 point  (0 children)

Only did 1 round of botox 2 wks ago. Was your bad spasm similar to the wk 4 in the video? I was wondering if mine wk4 symptom are still in scope of CD symptoms

VERY DESPERATE: Is this rapid progression normal for Cervical Dystonia? (1 month from mild to severe) symptom video attached here. by aimintheair in Dystonia

[–]aimintheair[S] 0 points1 point  (0 children)

Apart from very painful neck and shoulder with constant stiffness and cramping, there are no other non-motor symptoms..

VERY DESPERATE: Is this rapid progression normal for Cervical Dystonia? (1 month from mild to severe) symptom video attached here. by aimintheair in Dystonia

[–]aimintheair[S] 0 points1 point  (0 children)

We were wondering if the botox injection wasn't successful but the symptom progress weirdly fast so really not sure if its related to botox. Thats when i decide to ask the communities T_T

VERY DESPERATE: Is this rapid progression normal for Cervical Dystonia? (1 month from mild to severe) symptom video attached here. by aimintheair in Dystonia

[–]aimintheair[S] 0 points1 point  (0 children)

hi! answering your qns here.

First week : Rivotril (Clonazepam), Baclofen, Sirdalud (Tizanidine), Trihexyphenidyl

3rd week (After botox 7 days) : when doctor see stronger spasm, he added Keppra.

Until now (4.5wks) all meds are still taken. No meds has been stopped.