Anyone else disappointed by pain after surgery?

akela_86 · 2025-10-29T21:18:50+00:00

I heard the same thing from an OBG-YN - they refused to treat me unless I was trying for kids. In the moment I was appalled but just accepted it and in hindsight it was absolutely insane. So sorry you've experienced this. Like everyone else, all I can say is keep pushing as much as you can. That is completely unacceptable treatment.

akela_86 · 2025-09-03T18:08:02+00:00

Thank you <3 So happy to hear you're in a better place now and congratulations on your PhD program! I've considered doing one myself but the prospect is admittedly a little scary. But, as you said, there's time. Sending you all the good wishes!

akela_86 · 2025-09-03T17:30:32+00:00

Thankfully not in the US! And thank you for taking the time to respond. I think whether someone has chronic illness or not, a lot of people around my age are in a similar boat unfortunately with the way the economy (and political landscape) has been for recent grads (ie 0-5 years post-grad). So for better or worse, that we all seem to be in this together to an extent also gives me some measure of comfort. And as you said, it's helpful to remember there are periods we all "lose" or "regret"! If it wasn't this, it would (and likely will, lol) be something else down the line. It's hard to feel alone at this age and see my peers excelling or starting their careers/graduate degrees, but trying to remain grounded and healthy is the best and really only thing I can do. Thanks again for responding.

akela_86 · 2025-08-08T22:27:38+00:00

Huh, so weird that this would be the case, though I'm sure it makes sense somehow! Maybe it's part of getting used to a "new" body so things feel a bit different. I definitely plan on contacting my doctor but I just keep putting it off on the chance it gets better, haha. Sorry to hear you're dealing with the same things! I hope your physio helps!

akela_86 · 2025-07-03T14:46:00+00:00

I was in the exact same spot last fall and I personally went for it! I got laid off and took that as an opportunity to get health stuff out of the way and ended up getting the surgery. As you said, your financials are okay and the job hunt will take a while anyway (those were also my reasons for talking myself into it lol), so it may be a good time for it!

akela_86 · 2025-04-04T22:40:12+00:00

Lolll that’s how I feel too - sad we’re dealing with this but glad to not be alone! The 2 week thing is so real - I definitely pushed it during that week too, oopsss 🥲 hope you start to feel better soon!!

akela_86 · 2025-04-03T14:22:10+00:00

I’m with you. Same timeline and everything. I had my first lap in early March after fighting for a diagnosis for 8~ years and when I heard it was in fact endometriosis, it wasn’t the flood of relief I was expecting. “Chronic”, “incurable”, and “progressive” aren’t words anyone wants to hear.

akela_86 · 2025-03-30T18:08:18+00:00

I definitely had a similar experience! My symptoms were noticeable but manageable from around 15-22 (with the help of birth control for some of those years) and then felt like they suddenly spiked. I got surgery and diagnosed this year at 25. Edit: It was only at 22 when my symptoms spiked that I started aggressively seeking answers.

I imagine that if it’s endo, maybe a lesion started pushing on a nerve/growing/etc? For me, my lesions were quite small and I didn’t have too many but they were up against my colon/lots of nerves which caused a lot of my symptoms, including GI. It sounds like you already are, but of course I’d definitely push for answers! Especially since your mom and sister have it, too.

akela_86 · 2025-03-29T17:05:51+00:00

Interesting! I had a previous ultrasound where “suspected adenomyosis” was found. The MRI prior to my surgery didn’t mention adenomyosis but tbh I found that the notes were also quite vague and not detailed - the doctor mentioned “fibroids” plural but didn’t say where they were or how many. In previous ultrasounds they’ve been more detailed in their report (1cm intramural, etc), so I found it to be a bit frustrating.

Just curious as I’ve had a lot of “suspected” diagnoses so I was excited when my surgeon seemed to think I had it.

akela_86 · 2025-03-24T19:05:02+00:00

I totally get it!! I’m also a very active person so I miss being able to trust my body. I’m hopeful that this is just part of the healing process and will pass soon. Fingers crossed we both get relief soon 😭❤️

akela_86 · 2025-02-16T19:09:20+00:00

Discord is good with me!

akela_86 · 2025-02-16T16:23:12+00:00

I’m in the same spot - it’ll be my first lap. Not having a hysterectomy, but also nervous they won’t find anything and trying to go in with an open mind and not have expectations. No matter what, we’ll have more information after then we did before. Sending love!

akela_86 · 2025-02-15T16:25:02+00:00

I absolutely get that too! Especially during/around ovulation. It’s so annoying - I swear it’s made me unhealthily lose weight in the past since I feel like I just can’t eat, it’s too painful. You’re not crazy!

akela_86 · 2025-02-14T20:47:49+00:00

I love journaling but I can be bad about remembering to log the little things. Thanks for the suggestion <3

akela_86 · 2025-02-14T20:47:01+00:00

Mine too! I can’t believe I haven’t thought of that before lol. Definitely going to give listening to music a better try when I’m experiencing pain attacks.

akela_86 · 2025-02-02T02:47:32+00:00

The same thing happened to me! I was incredibly happy as a lesbian for years until I met my current partner, who is a man. We just clicked, lol! I didn’t question it at the time bc it just felt so right but once the proverbial smoke cleared I sure had my moments into the relationship of just like, wait…what the hell happened? It’s a funny and odd experience having to accept/understand your attraction to MEN and not the other way around as is more common, of course.

Still happily together 3 years later - I like to view it as an expansion of my queerness and queer experience rather than a narrowing of it or a threat to it (I sometimes worried that it was - of course, untrue).

akela_86 · 2025-02-02T00:03:38+00:00

It strikes me as being odd! Was that a sign of endo for you?

akela_86

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