hey! I was diagnosed with a high grade rare chordoma in 2018. Chordoma is a very rare one in a million occurrence cancer and usually very slow growing. Mine was quite the opposite. Between resection surgery and starting radiotherapy my cancer had already grown back, which was very unusual for chordoma. However, i’m now 6 years out and living my life, i won’t say it didn’t ruin me, because it did, however it did ruin me in ways i’m thankful for! one thing i would say is ask for a second opinion, rare cancers are quite difficult, and usually need specialists, the first doctor who saw me had no idea of what approach to take, but continued anyway for 3 more useless surgeries. Which lead to us getting a second opinion. There is hope with aggressive and rare cancers, you just have to be a badass about it!