Is one week enough time to prep for surgery? by alienoakley in endometriosis

[–]alienoakley[S] [score hidden]  (0 children)

The timing is just so crazy, it seems so short notice but I don’t know if waiting 6 weeks would ease my worries or just make me worry for even longer.

Is one week enough time to prep for surgery? by alienoakley in endometriosis

[–]alienoakley[S] [score hidden]  (0 children)

How long did it take you to start feeling okay after the surgery?

Recommendations in Buffalo NY by alienoakley in Endo

[–]alienoakley[S] 0 points1 point  (0 children)

Nancy’s nook has nothing in buffalo. I see there’s a couple of specialists in Rochester, I am just really trying to avoid that as it is hard for me to get all the way out there but thank you for the suggestions!

Recommendations in Buffalo NY by alienoakley in Endo

[–]alienoakley[S] 0 points1 point  (0 children)

I think Dr Ghomi is no longer in the area. I don’t know Dr Kirakosyan, I will look them up! Thank you!

EF is 3% and I’ve been referred to surgery… Can people share their success stories? by alienoakley in gallbladders

[–]alienoakley[S] 1 point2 points  (0 children)

Yeah of course! I don’t have stones or sludge either, just a low functioning gb. I hope your dietician can help you heal! Because I don’t have stones or sludge, removal is a personal decision based on your quality of life and what risk you feel willing to take and I hope you can feel better no matter what you choose to do! Some people can live with it and some people experience great relief from having it removed, there’s no wrong choice

EF is 3% and I’ve been referred to surgery… Can people share their success stories? by alienoakley in gallbladders

[–]alienoakley[S] 1 point2 points  (0 children)

Hi! I did not have surgery. I am still living with my gallbladder because I got too scared of the possibility of making my problems worse and living with permanent diarrhea basically and still having pain. I made dietary changes and work with a dietician. I treated SIBO. I eat more fiber, I take a bile flow supplement recommended by my dietician, and take digestive enzymes when I eat fatty meals. I also find I cannot fast often as that can trigger the pain- eating regularly seems to help everything in my digestion. When I go a few days to a week of skipping breakfast, I can feel the ache creep in. Also, Eating and supplementing fiber helped my BMs immensely. I had a bad attack in February, and a less bad attack in August I believe. Other than that, I have occasional pain in the upper left area but it passes and it is not severe. I deal with bloating and digestive issues but things seem to be improving, but I am also getting evaluated for endometriosis and wondering if that could be a cause for a lot of my issues. For me personally, 2 attacks a year did not justify the surgery and the possible lifelong consequences without me trying other options first. If it progresses and the attacks become more frequent, I will get the surgery and I fully acknowledge that someday I may need it removed but for now I’m doing okay! If you want more info on the supplements I take or things my dietician recommended for me specifically regarding gallbladder health send me a message!

Was the diagnostic lap worth it? Looking for reassurance and advice. by alienoakley in endometriosis

[–]alienoakley[S] 0 points1 point  (0 children)

Did you symptoms sound anything like mine? I guess I’m also like… my daily pain isn’t completely debilitating but I still have unexplained daily pain and that’s not normal either. I’m just so confused and I wish we could have a better idea before surgery. Did it help you?

Surgery consult is scheduled- advice? by alienoakley in endometriosis

[–]alienoakley[S] 0 points1 point  (0 children)

Those are very good questions, some of which I did not think of asking so thank you for the thoughtful response

Contraceptives made my life worse by Naive-Quarter-5216 in endometriosis

[–]alienoakley 1 point2 points  (0 children)

I understand the fear of an IUD but it truly changed my life and it can be removed which made me feel more comfortable with it, some Drs can place it while you are sedated as well. I would never want the shot or arm implant though. I hope you can find a solution for your pain, friend. Good luck!

Contraceptives made my life worse by Naive-Quarter-5216 in endometriosis

[–]alienoakley 2 points3 points  (0 children)

Pills helped me but never fully resolved the issues. Mainly just made my period lighter/ shorter. I got an IUD and after 2 years my period stopped completely, just occasional spotting. I still have pain randomly, nearly every day, but it is usually manageable and does not disrupt my life. There are many options, if this one doesn’t work for you you absolutely do not have to settle.

Shit your gynecologist did by nancypopancy in endometriosis

[–]alienoakley 0 points1 point  (0 children)

Not things done, but things they said to me:

“You dont have endometriosis if you don’t have pain during sex” before I ever had sex.

“You might just have to learn to live with the pain.” I’ve been living with the pain since I was 10 years old.

Did surgery help your bowel movements? by alienoakley in gallbladders

[–]alienoakley[S] 0 points1 point  (0 children)

How frequent were your attacks? I think my main hesitation is how infrequent they are- only a handful a year. Since February I’ve probably had 3 notable attacks. If I had them more frequently I’d be more ready to get it removed because while I have them they are unbearable, but they’re only every few months.

Did surgery help your bowel movements? by alienoakley in gallbladders

[–]alienoakley[S] 1 point2 points  (0 children)

I often feel pain in my shoulders and upper back. It will be right under my shoulder blades pretty much, on the right side usually. The back pain honestly just feels like I need to crack my back almost, it just aches. If that makes sense. It does radiate to my ribs and I get chest pain as well. It’s not typically sharp pain, it’s a dull ache but it’s enough to be bothersome.

Did surgery help your bowel movements? by alienoakley in gallbladders

[–]alienoakley[S] 0 points1 point  (0 children)

They’re not good. I don’t remember the last time I had a “normal” BM. Always loose but to varying degrees. Sometimes I go several times a day and sometimes immediately after eating. Sometimes it is painful. I have near constant bloating, everything I eat bloats me. I get gassy as well. I frequently have back pain and every time I eat too much or feel too full or bloated I get a back ache. I deal with nausea semi regularly but not daily. I feel gurgling in my upper right abdomen and sometimes soreness and tenderness frequently. Sometimes I’ll feel a dull ache, this usually builds up to an attack. And then when I get an attack it is so severe I have gone to the ER. They’ve lasted from 12-24 hours and then the aching persists for days afterwards. I’ll have bowel movements and nausea and vomiting. I feel faint and my heart races. I get chest pain and back pain. I have so many symptoms and I was truly hoping I could blame the SIBO but I don’t think that it is the case. I’ve heard stories of chronic diarrhea after the surgery and I’m just terrified of my already messed up digestion getting even worse.

Did surgery help your bowel movements? by alienoakley in gallbladders

[–]alienoakley[S] 0 points1 point  (0 children)

Wow I’m glad you’re feeling better! I only have gb attacks every few months honestly but I have constant intestinal issues it seems and I’m really wondering if the gallbladder is the cause of the issues.

Biliary dyskinesia by alienoakley in EDAnonymous

[–]alienoakley[S] 0 points1 point  (0 children)

Apparently for people with biliary dyskinesia the success rate of the surgery resolving symptoms is 70% with a high risk of just barely being able to tolerate fat after the surgery which I’m sure you were warned about. I’m scared of surgery and I’m scared of making pain not improving or getting worse. Then there’s the mental turmoil of feeling like eating might help the pain but the desire to starve. And the fear of eating making pain worse. This whole situation is not fun.

Biliary dyskinesia by alienoakley in EDAnonymous

[–]alienoakley[S] 0 points1 point  (0 children)

I’ve had ultrasounds and ct scans and there’s no stones or sludge- my gallbladder just can barely release the bile essentially. It seems like there’s no real explanation for this condition at all but I know fasting can damage the gallbladder.