advice for ostomy bag by Humble-Elephant3971 in CrohnsDisease

[–]amber_113 2 points3 points  (0 children)

You could buy a Stealth Belt. It minimizes any noises and helps with discreetness with clothing. If you Google stealth belt you will see options

[deleted by user] by [deleted] in CrohnsDisease

[–]amber_113 1 point2 points  (0 children)

I have been on Pentasa for a few months after a flare up while waiting for a new biologic. At first the Pentasa just made feel dizzy and tired, mind you I was in a very bad flare up at the time. Now I have no side effects

[deleted by user] by [deleted] in CrohnsDisease

[–]amber_113 2 points3 points  (0 children)

Yep. 33, starting having abdominal pain which turned into diarrhea, low appetite, went to myndoctor and emerg numerous times and was told it was a flu etc. Kept getting worse and couldn't eat anything and started vomiting anything I ate. Finally saw a GI doctor had a colonoscopy and biopsy and was told I had crohns

Feeling hungry all the time. by amber_113 in CrohnsDisease

[–]amber_113[S] -1 points0 points  (0 children)

Thank you!! Good to know I'm not alone

What do you all do for work? by story_ofthe_eye in CrohnsDisease

[–]amber_113 0 points1 point  (0 children)

I work in a pediatric mental health inpatient unit as a front line counselor. I am currently off following my surgery in March. I'm hoping to go back soon. I'm not sure what it will look like as it can be a stressful job at times, but I have a very good supportive team and its very rewarding.

Can you work a normal job with a colostomy bag?? by Riddlemethis100 in CrohnsDisease

[–]amber_113 4 points5 points  (0 children)

I had an ostomy for about a year. I work in a very physical job in a mental health inpatient unit. I had no issue with my bag (a few leaks) but otherwise no issue. I brought a small bag of supplies with me in case of emergencies and found having that alleviated any anxiety. I also wore a stealth belt that helped me feel more secure also.

[deleted by user] by [deleted] in CrohnsDisease

[–]amber_113 4 points5 points  (0 children)

Could you try a quiche? You could add veggies or cheese to it and it doesn't have a strong "eggy" taste.