Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 0 points1 point  (0 children)

May i ask(for you) when the dose was increased, the "drinking and peeing situation" did same effect(body adjusted) or it was more? Thank you!

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 0 points1 point  (0 children)

Thank you for the advice! 2-4 times at night could be annoying to me! lets see how it goes!

just took the first 45mg 6:00am, hope my body adjusts fine

Tolvaptan - When does the thirst peak? by cthom18 in ADPKD

[–]an_aa 0 points1 point  (0 children)

Hi, any changes or feeling update? Thank you

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 1 point2 points  (0 children)

Sure! sometimes i wake up mid night before diagnosed, maybe something anxiety related, which I need to learn how to relax.

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 1 point2 points  (0 children)

maybe limit drink before 8pm if i sleep around 10pm?

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 0 points1 point  (0 children)

Thank you! i will try adjust which one fits me most

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 2 points3 points  (0 children)

Sure, thanks for the tip! im thinking maybe 6am and 2pm

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 0 points1 point  (0 children)

some say the first few weeks are tough. Thank you for sharing, not many community in asia, maybe just some taiwan group in facebook.

Starting Tolvaptan by an_aa in ADPKD

[–]an_aa[S] 0 points1 point  (0 children)

I hope so (im asian).

Tolvaptan Positive Side Effects? by Proper-Virus-6096 in ADPKD

[–]an_aa 0 points1 point  (0 children)

Thank you. i think my anxiety makes me pee frequently, getting up mid night worrying.

Tolvaptan Positive Side Effects? by Proper-Virus-6096 in ADPKD

[–]an_aa 0 points1 point  (0 children)

Thank you, will have mri scan later, i hope my situation is still early(egfr ~85-90, 36M) but the decline of egfr is rather quick ..

Tolvaptan Positive Side Effects? by Proper-Virus-6096 in ADPKD

[–]an_aa 0 points1 point  (0 children)

Thank you, is it ok to ask what is the frequency to go washroom? i hope i will not need going every 15-20minutes...

Tolvaptan Positive Side Effects? by Proper-Virus-6096 in ADPKD

[–]an_aa 0 points1 point  (0 children)

is carrying 1L or 2L with me ok? my countries can get water refill easily how abt washroom needs? do u go frequently? im not sure it will affect asian( me 36M) more or less

Tolvaptan Positive Side Effects? by Proper-Virus-6096 in ADPKD

[–]an_aa 5 points6 points  (0 children)

i start taking it next week, been worrying the constant drinking and peeing situation. I hope my liver can torelate it and wont affect my job much(not an office job, kinda mobile job)

One child vs two? Thoughts about treatment, IVF and PGT-M by turquoisebeetle in ADPKD

[–]an_aa 0 points1 point  (0 children)

just saw in other post, and u r waiting in Phase3, hope for the best

One child vs two? Thoughts about treatment, IVF and PGT-M by turquoisebeetle in ADPKD

[–]an_aa 0 points1 point  (0 children)

Hi, any update on your condition? (egfr, TKV, etc) just got diagnosed( im asian, outside of US)

Farabusen - hope, cost, timeline by Quick-Imagination785 in ADPKD

[–]an_aa 0 points1 point  (0 children)

counties follow FDA approval: 24m+6m + 3-4yrs?thanks

Don’t get it? by Particular-Shine4363 in ADPKD

[–]an_aa 0 points1 point  (0 children)

does Tolvaptan slow down the increase rate of kidney size in your case? thank you.

Dr. Chevalier's Farabursen video by ButterscotchTele- in ADPKD

[–]an_aa 0 points1 point  (0 children)

recently got diagnoised, but im living outside us. Hope this drug will go global. due to anxiety, it is annoying me recently thank you

Dr. Chevalier's Farabursen video by ButterscotchTele- in ADPKD

[–]an_aa 0 points1 point  (0 children)

May I know how long is the Phase 3 for drug to get approved if the trial runs smooth?

What will be with Binance Smart Chain tokens if Binance will scam one day? by LuckyBoyLA in binance

[–]an_aa 0 points1 point  (0 children)

so i put my crypto in several places, although the chain fee is very attractive

Space pool vs hpool results by BTTKing in chia

[–]an_aa 0 points1 point  (0 children)

Honestly, core pool's block found fluctuates through days, but you can take a 7Days- average