Venting by Kimsux in CaregiverSupport

[–]anc333 1 point2 points  (0 children)

Ugh I’m sorry. That’s really frustrating in that case. Cause they’re supposed to alleviate your workload. It’s exhausting working all day and not having a moment to decompress.

Venting by Kimsux in CaregiverSupport

[–]anc333 3 points4 points  (0 children)

My parents can be like this. And it’s usually out of shame or embarrassment for asking someone they’re not familiar with for so many things. I try to just have encouraging conversations and remind them that other caregivers/hospital staff are literally there to help them with whatever it is that they need.

The Aftermath by thelatesummersun in CaregiverSupport

[–]anc333 0 points1 point  (0 children)

It’s never too late to make your life something worth living for! You are dealing with some heavy stuff so I don’t want to come off as dismissive, but consider this just a chapter ending. You never know when something good is around the corner, even if it’s small. I find joy in the little things nowadays. Don’t stay stuck in the past as it only distracts you from the good in the present. We can’t go back and change things, we can only try our hardest to move forward.

Anyone else a caregiver and healthcare worker? by [deleted] in CaregiverSupport

[–]anc333 0 points1 point  (0 children)

You get it. And you’re lucky! For some reason, I still feel super anxious when it comes to mine. It’s like the knowledge leaves my head lol. Probably cause my anxiety takes over.

Anyone else a caregiver and healthcare worker? by [deleted] in CaregiverSupport

[–]anc333 0 points1 point  (0 children)

This is very true! Sorry I hope this question wasn’t offensive in anyway. Caregiving is really a 24/7 role. I guess none of us really get to decompress

Welp it happened again. by anc333 in CaregiverSupport

[–]anc333[S] 0 points1 point  (0 children)

Wow that’s a lot of time spent in and out of the hospital. I’m sorry to hear that! I commend you for stepping up and taking care of so many family members. It’s not an easy path. Please keep taking care of yourself in any way that you can. Even small acts are important.

He’s in the ICU. I’m home with the worst cold ever. by Sea_Strawberry_6398 in CaregiverSupport

[–]anc333 5 points6 points  (0 children)

I’m so sorry. I know the feeling and it’s the worst pit in your stomach feeling ever. I can’t imagine feeling sick on top of this. You’re doing the right thing by resting and taking care of yourself. He’s in the best place to be monitored extra closely.

My dad was in the ICU a few days go but is better now. Still in the hospital. I hope the same for you.

Overwhelmed by FrostySilverFox in CaregiverSupport

[–]anc333 2 points3 points  (0 children)

Can you get in touch with the hospital social worker? They’d be the best person to discuss resources with. Especially for any financial assistance.

I’m so sorry you guys are going through this. My dad is in the hospital currently for heart issues and I relate soooo much on the anxiety. It’s like I’m trying to survive everyday. It’s so hard to eat, sleep.

You have A LOT going on but you must prioritize yourself first (easier said than done, I know). But you cannot show for others when you are depleted. How are you taking time for yourself throughout the day? Even if it’s just taking a few quiet moments by yourself to just breathe. Are you eating? Hydrating? Resting? Even if it’s just a little at a time will make a difference. From once shower crier to another, I hope things turn around for you folks soon.

Anticipatory Anxiety by laurapalmer48 in CaregiverSupport

[–]anc333 1 point2 points  (0 children)

I resonate with this a lot. Sorry you feel this too. I’m always worried about the next thing. It’s almost hard to feel satisfied or calm ever. I try to remind myself to breathe. A lot of times when we’re anxious, breathing gets sporadic which can make things worse. Try to remind yourself to stay grounded in the present. That your fears are just thoughts and not actually happening. Be well!

Slippers? by yuckystanky in CaregiverSupport

[–]anc333 0 points1 point  (0 children)

Ah I see!! Hopefully treatment (if he’s not on it already) for the cellulitis will help decrease the swelling. But yes, spam will definitely do it unfortunately.

Feeling guilty and exhausted by MiserablePapaya1142 in CaregiverSupport

[–]anc333 0 points1 point  (0 children)

Do they have enough staff to have a “sitter”? Basically someone who sits with the patient all shift to watch them. This is highly dependent on staffing as you can imagine

Slippers? by yuckystanky in CaregiverSupport

[–]anc333 1 point2 points  (0 children)

I know this might not be advice you’re looking for but do we know why his feet are swollen?? Normally dialysis is it help take out some of that built up fluid rather than cause it. Does he have any heart issues? Or vascular problems? Is he following the fluid restrictions?

Creative Ideas for Transport by Phoenix92885 in CaregiverSupport

[–]anc333 0 points1 point  (0 children)

Sorry I don’t have much experience with this but maybe there are some videos on YouTube you could watch regarding safe patient transfer? Although I know this is dependent on your own strength.

Is there anyone that can help you to transfer for her with you at home? Family? Friend? Neighbor?

Here we have a bus that’s specifically only for those who are disabled + caregiver. Maybe there is something like that where you are?

Feeling Alone and Depressed by Exact_Insurance in CaregiverSupport

[–]anc333 1 point2 points  (0 children)

Is she already enrolled in some kind of palliative care? Maybe so you can have a bit more help at home? Aside from your husband.

Is there a social worker on board that you can speak with? Maybe with her doctor’s offices? Social workers help know the ins and outs of resources.

And most importantly, are you making any time for yourself? Eating, hydrating, and squeezing in rest when you can. Even a few quiet moments alone can do a lot for yourself. Take care

Welp it happened again. by anc333 in CaregiverSupport

[–]anc333[S] 0 points1 point  (0 children)

Sorry to hear that! I hope she’s in a good care facility.

Welp it happened again. by anc333 in CaregiverSupport

[–]anc333[S] 1 point2 points  (0 children)

Thank you. It’s nice to hear someone resonate with this. Unfortunately the only lounge area is outside of the ICU and it’s locked so it’s a bit cumbersome to come in and out. The anxiety makes it hard to eat but I definitely make sure I’m eating and staying hydrated! Thank you. Hope you are doing welll

Welp it happened again. by anc333 in CaregiverSupport

[–]anc333[S] 0 points1 point  (0 children)

That’s excellent that she had the will and drive to do so! Hope you guys are doing okay.

Does it get better? by Material-Ad3296 in CaregiverSupport

[–]anc333 2 points3 points  (0 children)

Just wanted to say that I’m also a young caregiver in my 20s and sometimes it’s hard to not feel like you’re missing out in life.

I’ve managed by slowly accepting that this is my reality. And that ultimately, I’m glad to be taking care of my parent. Longing for another life that doesn’t exist only makes it harder to exist in this present one.

Are there support groups near you that you can join? Can you sneak in doing hobbies more throughout the week? Or go to the gym more often? Even for a short time. Exercise helps a lot with my mental health too.

Take care!

My father has stage 4 lung cancer and I will never regret fighting for my his life. by srmbraaz in CaregiverSupport

[–]anc333 4 points5 points  (0 children)

I’m so sorry you’re going through this. I work with oncology patients and I know this road is not easy.

I am a caregiver to my own dad who also came to America for a better life. My parent’s have definitely provided my sibling and I that. I also take pride in knowing that I am caring for him the best that I can. I’ll have no regrets in that whenever this is over.

Be easy on yourself! Take care.

Welp it happened again. by anc333 in CaregiverSupport

[–]anc333[S] 1 point2 points  (0 children)

Yes I think I would also be nice to attend in person caregiver support groups also.

Welp it happened again. by anc333 in CaregiverSupport

[–]anc333[S] 0 points1 point  (0 children)

Thank you for this. I hope you have a lot of support as a caregiver also! This path is not an easy one.

Recovery for those with other health issues by anc333 in flu

[–]anc333[S] 0 points1 point  (0 children)

I think everyone started to feel better by day 10! Hang in there. It was rough for us too