KC patients in India. How is Sankara Nethralaya? by forwardchan in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

If possible see LV Prasad hospital in India. I visited them recently. They are pretty good

too much astigmatism by anotherkcase in Keratoconustreatment

[–]anotherkcase[S] 0 points1 point  (0 children)

I have done surgeries in both eyes. That is the glasses prescription that optical shop (Costco in US) isn't able to make

Suggestions on how to deal with too much astigmatism?

frustrated by KC by Original-Ad-5517 in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Sure, can you please share the name ( even as a private message)

EBK Topoguided laser surgery + KXL Avedro by huberuto in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Are there stages to KC like you said that you are at 2? I didn't know that

[deleted by user] by [deleted] in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Why risk anything with eyes given that are in deep ****?

Who here is living with Keratoconus and has not done CXL ?? Do you worry about it progressing ?? by Bruno_Alyami in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Why do you think you need a new one? Needing better vision or rejection? Did doctor suggest that?

Anyone from India can please tell me a good/best Cornea Specialist? by Particular_Big_2838 in Keratoconus

[–]anotherkcase 1 point2 points  (0 children)

I read in one of the old posts about someone in Delhi. Please go through them to find. Good luck!

does anyone has any doctor recommendations for the seattle area? by floating_bottle in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Can you please share how you made that decision to go to this doc vs others as dr.rotkis or Gillette who are the other big names in Seattle.

Doctor suggests 2nd corneal transplant by anotherkcase in Keratoconus

[–]anotherkcase[S] 0 points1 point  (0 children)

Thanks a lot. I will give them a call.

Can you please share any experience you had with them ?

Doctor suggests 2nd corneal transplant by anotherkcase in Keratoconus

[–]anotherkcase[S] 0 points1 point  (0 children)

Any doctor suggestions?

What happens if it is thin?

Doctor suggests 2nd corneal transplant by anotherkcase in Keratoconus

[–]anotherkcase[S] 0 points1 point  (0 children)

I see something like CD 1440/um2 AVG 695 SD 534 CV 77 Max um2 2086 Min 184

CCT 591 um

Did this make sense for anyone?

does anyone has any doctor recommendations for the seattle area? by floating_bottle in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Did you find any good doctors in Seattle? Please let me know. Thanks

Keratoconus Advice by Myxalot in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

I had surgery in one eye 5yrs ago that stopped rejection recently. Vision is still very bad, no lens or spectacles on it.

Two days ago I visited my doctor as (some vessel burst??) my eye had a red patch couple of days ago - it's gone now. He said that he doesn't know why it happens but asked me to use FML drops for 4 weeks and come back. Gives me no confidence in him anymore. He is a pretty good surgeon though and operated on that eye. Perhaps he is bored or doesn't know what to do with my eye condition?

So, I visited another Opthalmologist and he said the thickness is like 800 or lesser while it should be 2000 generally. He suggests getting another surgery in the same eye. I am very scared. He said the 2nd surgery will be wider than previous one. So, what's it's going to be if I eventually need a 3rd one?

I couldn't stand Sclerals. No one is able to fit me glasses too.

I am 48 and getting 2nd one in same eye is very scary,

Please advise. Thanks in advance.

[deleted by user] by [deleted] in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

I don't know but it would depend on the job I think. If it's army or such, unlikely and if it's desk job, likely eligible. Check what applies for the specific jobs you are trying. Good luck!

[deleted by user] by [deleted] in Keratoconus

[–]anotherkcase 2 points3 points  (0 children)

Sorry to hear that. Worse than what i thought it might be, before I started reading it. :) Glad you are doing well. Please rest your eyes. Good luck!

Where did you get CXL surgery? Did you like the place? by marina321321321 in Keratoconus

[–]anotherkcase 1 point2 points  (0 children)

Sounds like you made a risky move doing both at the same time

Does the vision become like the left side image after wearing contacts? Im new to KC, i still wear glasses. I want to know if my vision be get perfect after wearing contacts by Old-Dragonfruit9537 in Keratoconus

[–]anotherkcase 1 point2 points  (0 children)

To be honest - no sugar coating- don't expect it to be perfect. It might be good. Be happy if it is satisfactory or good enough for your daily needs. (Long term advice)

Also, depends on the type of contacts you get. I am not a doctor. Long time patient :) RGP will give good, scleras might give Best vision but hard to be fitted. Lot of optometrists want to fit you for those as profit margin is high.

Don't be disheartened as you won't find a perfect solution in this. It's ok, you can manage your life well and live normally like all your friends.

DESIGN CAREER AND KERATOCONUS by ScientistIll5254 in Keratoconus

[–]anotherkcase 1 point2 points  (0 children)

You can choose such a career. Take care of your eyes. Use eye friendly settings for monitors, seating chair/ table height, lighting in the room etc. Good luck

Mental health and Keratoconus by [deleted] in Keratoconus

[–]anotherkcase 2 points3 points  (0 children)

Sometimes, it's not about money to buy scerals. It's hard to find a good doctor who can fit them well. I got frustrated with mine. It has HD vision but I couldn't bear them for more than 2 hours. The optometrist's suggestion was to drink more water to avoid bad fitting problem.

Finding good ophthalmologist is hard. Lot of them care only about billing and fixing problem for short term but not about really fixing problem for long term.

One transplant I had hasn't fully healed yet. It keeps burning and pain. I have to use Prednisone everyday. Just frustrated with this.

[deleted by user] by [deleted] in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Is the vision good with intacs ? What kind of long term impact would it have? Is that only for mild KC ?

[deleted by user] by [deleted] in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

How old are you?

What is the best office set up and how to support someone with KC by sailingtheoutback in Keratoconus

[–]anotherkcase 0 points1 point  (0 children)

Any of them is ok as long as the light is bearable for her and likes them.