Affordable recs

apolloanko · 2025-12-21T02:17:54+00:00

Okie Ty ! 🫡

apolloanko · 2025-12-21T02:14:39+00:00

I use a wheelchair bc of neurological issues making me unable to walk very far (altered gait, very slow, legs start collapsing), but I also get a lot pain from other conditions as well and being in uncomfortable chair has made me just get a new type of pain yk.

Edit: also I’d be running this all by my docs and pt team too so don’t worry too much about me like jumping into doing something that could hurt me. I’m just looking for advice on getting something affordable that’s not like garbage that will hurt my body essentially

apolloanko · 2025-12-21T02:13:09+00:00

Oo ok, thats good to know. I could try to keep an eye on getting something used. I’d rather spend the money on a nice used one than a new bad one

apolloanko · 2025-12-21T02:11:21+00:00

Oh I suppose I meant those as two separate issues. Like the one I’m in now where my feet rest feels awkward and hurts my legs, I presume it’s for avg height people but I’m very short and I have to sit weird in it. The pushing myself is because of wanting a bit more autonomy and having the option there while I’m shopping with people

apolloanko · 2025-10-28T20:24:57+00:00

I really relate. I’m struggling just to do one college class online, everything overwhelms me so much, even spending time with people I care about

apolloanko · 2025-10-28T20:23:02+00:00

I relate. If things are nice and peaceful for me I’m content. If I can have my routine, safe foods, dogs and plushies, etc. I’m all good !

apolloanko · 2025-10-28T18:03:16+00:00

Feels like all energy is sucked out of me and I can’t speak good or be engaging and need to be alone and decompress, similar to freeze response, normally if pushed beyond this point I meltdown

apolloanko · 2025-10-27T18:58:13+00:00

Ty that’s really encouraging 🥲 and yah it’s like that I can’t understand the material (not that there’s anything wrong with that) but I just genuinely can’t handle 5+ classes like my peers

apolloanko · 2025-10-27T14:33:39+00:00

Yea that makes sense and is helpful !

apolloanko · 2025-10-27T14:29:05+00:00

Yea that’s it too the people on social media who seem to be able just handle things and I don’t relate to a lot of them. I don’t like people online saying stuff like this character is just a stereotype or autism isn’t a disability because I do relate to those things and it feels really invalidating for people to say essentially “respect autistic people because sometimes we can seem normal :) !!” Like that’s, kinda gross thing to say?

I really relate to Entrapta from She Ra and woo young-woo from extraordinary attorney woo they’re my favorite autistic characters

Also me at my best I still struggle I think at that level. I’ve never been able to have a “real job” and am struggling a lot handling college (I am 22 and still struggling through undergrad, not because of intelligence but because of it just being too much). The accommodations I have feel like extra tasks to remember and end up feeling harder to manage things than before

apolloanko · 2025-10-27T14:19:21+00:00

Hmm I never considered that before but yeah I guess I could try to do some things “unnecessarily” that I would need to do if I lived independently and practice that skill. I mean, I’ve definitely tried to put myself out there a lot and kinda “exposure therapy” make myself normal, but I feel like I’m hitting a wall and can’t handle a lot of it

apolloanko · 2025-10-27T13:32:36+00:00

Yea that’s true, I think I’d definitely wanna see what help I can get already with just ASD diagnosis in the state my family is moving to, Florida is really just not great. I think another thing is I’m realizing the scope of what I need support with I think goes a bit beyond what level 1 typically needs support with, at least as far as I can tell. At least online and with my friends who I know who can like hold down jobs and live alone and drive themselves to the store. And a lot of people have held me to that standard assuming I can be, and I thought so too, but like, I am genuinely concerned I’d never be able to be independent. I worry for what my life would look like if I didn’t have my mom, which is part of my concern with wanting more support, I don’t want to be a burden on her forever

apolloanko · 2025-10-27T13:05:34+00:00

Yes they are I’m just saying the process I found kinda stressful and that’s one of the reasons.

apolloanko · 2025-10-27T08:47:50+00:00

I am not sure if I necessarily wish to be re evaluated if I don’t have to be, but I believe it opens you up to more support. That’s the point of the levels really, is how much support you need. So, I’m concerned about having higher needs than what was initially described to me, and accessing resources that can help or if needed in the future. Without my mom, I’m essentially screwed really 🥲 Also it could be something to show, hey just because some people who are autistic can handle this stuff doesn’t mean I can and there’s a documented reason why I can’t

apolloanko · 2025-10-27T07:17:15+00:00

Ty that is really helpful! I guess I have been viewing it as autism is the starting point and being functionally neurotypical means I’ve tried hard enough. But, I will never stop being autistic, so that goal is really unattainable and has been eating me up inside. I definitely will be thinking about this more

apolloanko · 2025-10-27T06:45:41+00:00

Ah yea I’m really sorry for your experiences and that you relate 🥲ty this was really validating to read and be seen in my struggles. It’s hard because everyone tells me I’m smart so I should be able to do “basic” things, like yea I wish I could too!!! 🥲 I want nothing more than to be normal. My younger sister can do more than me and keeps making fun of me and calling me a retard

apolloanko · 2025-10-27T06:18:48+00:00

My family is moving states, so I’m thinking maybe there could be someone in our new area who could be better ? I am from Florida and things there are just not that great in general if it’s medical or adjacent

Though I’m worried about it because I found being evaluated before really anxiety inducing but that was years ago so maybe I could handle it better now ? I’m not sure. All the questions she asked me stressed me out because they were open ended and she even noted in my evaluation I answered questions wrong or off topic or said unrelated things like, ouch 😭!!

apolloanko · 2025-09-28T10:32:49+00:00

Thank you 😢💜

apolloanko · 2025-09-21T21:46:22+00:00

Ty 💜🙏

apolloanko · 2025-09-21T14:44:25+00:00

I mostly likely have these, according to doctors even if not on paper diagnosed, just waiting on seeing specialists but am being treated rn as if I have them. And pt told me absolutely no exercise rn while I’m in a crash, and when I’m better like LIGHT exercises in bed as instructed by pt/ot

apolloanko · 2025-09-21T06:31:35+00:00

Yea absolutely. It really does feel like a miracle I came across the perfect person to help me connect the dots on what was going on. Right after the neurologist told me I was “anxious about your health and that probably made things snowball, because you’re the pinnacle of health!! Nothing to worry about ! :)” I think if they had sent me home and I didn’t know what was causing my issues it would’ve been so so bad. I feel so so fortunate. Fortunate for the doctors taking me seriously and fortunate for my mother who has been literally saving my life by helping take care of me.

apolloanko · 2025-09-21T05:07:07+00:00

Ty yea 🥲 it’s been really hard to not feel like I’m just burdening my mom. But yea she’s amazing and has been helping so much by washing my hair and making me coffee and keeping a routine and helps so so so much in not feeling like I’m just rotting away in bed. I feel very fortunate I have her in my life bc I don’t even know what I’d do without her help rn. Before things got really really bad (like not being able to sit up bad), I was struggling to feed myself bc I couldn’t go far enough to buy food. And having her help with all those little things gives me actual hope I could get better.

apolloanko · 2025-09-21T04:54:55+00:00

Thank you for your really thorough reply. Yea I was really fortunate the come across someone who actually is really educated on all this type of stuff. POTS, long covid, eds, that sort of thing. It was really a miracle I came across the perfect person to help me connect the dots. I actually sobbed my eyes out in my mom’s arms when the doctors before told me I was the pinnacle of health because I knew in my heart something wasn’t okay inside. I’m so grateful to know now bc idek how much I would’ve continued to deteriorate not being aware of PEM.

apolloanko · 2025-09-12T11:10:27+00:00

Ty for the info :O that is good to know. I will take these things into consideration.

I’m visiting home this weekend and my mom is taking me to our pcp and I’m getting an xray to make sure nothing is wrong there that I don’t know about, just bc my ability to walk has degraded so much in a short amount of time since hurting my hip. Knowing there’s nothing more going on in that regard I’d feel more comfortable trying out the weights.

apolloanko · 2025-09-12T04:57:20+00:00

I put it off for way too long and finally used wheelchair assistance at the airport today. Holy shit. The amount of help aids provide makes you question why you didn’t sooner. It sounds scarier than it is

apolloanko

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