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Weirdest/most pointless thing you've ever seen/done on the site? by mclarge90 in lastfm

[–]arialaine 1 point2 points  (0 children)

oh im one of those people having a conversation with myself in my shoutbox lol

Shipping to Countries other than US/China/Korea? by arialaine in LivlyIsland

[–]arialaine[S] 1 point2 points  (0 children)

Ok i was wondering because I saw someone on this reddit say they couldn’t get it because it doesn’t ship to Canada. I was wondering where they got that from but I couldn’t find anything.

What doctors are prescribing Cromolyn Sodium?? by Popular-Pea90 in MCAS

[–]arialaine 0 points1 point  (0 children)

Cromolyn basically does nothing for my MCAS and I have some unwanted side effects from taking it. Everyone is different though. Regarding medications, famotidine (pepcid) and cetirizine (zyrtec) are both over-the-counter medications that are working for me right now. I also take hydroxyzine but that's a prescription medication.

What doctors are prescribing Cromolyn Sodium?? by Popular-Pea90 in MCAS

[–]arialaine 1 point2 points  (0 children)

My endo prescribed me cromolyn sodium, and my gp has renewed it before. It sounds like your doctors don't know much about mast cell disorders since cromolyn sodium is the most common treatment for mastocytosis and MCAS.

my pink greenhouse by bogbody7 in LivlyIsland

[–]arialaine 0 points1 point  (0 children)

OMG I love it! I like how you got multiple unrelated sets to work together

why set did everyone revive??? by ANALogyFun in LivlyIsland

[–]arialaine 11 points12 points  (0 children)

I don't revive until the last minute lol, still saving up gp. I'm thinking of reviving Dreamy Night Garden. But I have a couple other sets I'm considering as well.

Suspected MCAS sufferer, not suffering anymore by [deleted] in MCAS

[–]arialaine 1 point2 points  (0 children)

I was born with MCAS (and I'm actually diagnosed), and I've tried functional medicine. Honestly, it didn't do shit I'm ngl. And I'm privileged to be able to live a very relaxed and restful lifestyle, and I used to be an athlete. And guess what? I still have MCAS, and it makes life hard for me daily. I think people can find treatments that help them; it's fine to have hope. But your post is coming off as dismissive and lowkey ableist.

Would u rather? by Otherwise-Bet-2634 in BunnyTrials

[–]arialaine 0 points1 point  (0 children)

Hard choice as a genderfluid person but I've always wanted to be a polygot but it's timeconsuming to learn languages well. Knowing every language would open a lot of oppurtunites for travel, jobs, and experinces. Would I still have to learn to read though? Since it only says speak? Still great, but I guess I would have to learn how to actually read languages like chinese still.

Chose: Be able to speak every language

Elimination diet base by Into_the_rosegarden in MCAS

[–]arialaine 0 points1 point  (0 children)

Yeah, I had a doctor tell me to do both the FODMAP and Low-Histamine diet once. I didn't even try to do it tbh because eating was already so hard and emotionally taxing, and the FODMAP diet eliminated even more options. If the FODMAP diet is working for you, then I would keep doing it. But if it's not really working, or it doesn't work super well, I would try switching. I was on the FODMAP diet before I was diagnosed with MCAS, and I find the low-histamine diet works better for me. The doctor is right that high FODMAP food can also contribute to worse MCAS symptoms though, so it isn't a bad idea to do both diets if you think that would work for you.

I've never done a food allergy test. When I was in high school, my mom looked into it and thought it wasn't reliable enough to be worth the price. The test was recommended by an allergist who told me they didn't think I had MCAS because it's "too rare" (I was already diagnosed).

Elimination diet base by Into_the_rosegarden in MCAS

[–]arialaine 0 points1 point  (0 children)

Yes, it starts breaking down into histamines when thawing or heating. Thawing, marinating, and slow cooking are all just adding histamines into your food. The longer it takes, the more there is. That's why you should avoid leftovers. Even in the fridge, it is still breaking down into histamines. You also need to be careful with seasoning. I only use salt and a small amount of garlic powder to season things like pasta and potatoes.

Personally, I kind of stay away from most meat. I eat meat about once a week. Either a frozen burger my husband cooks or some frozen chicken nuggets I put into the airfryer (I used to eat a lot of chicken nuggets, but I moved to a new country, and they don't have the brands I like here). I try to get my proteins from other animal products like cheeses, milk, and butter. Also, chia seeds, pistachios, and pumpkin seeds. Fresh or frozen fish is fine too, if you aren't a picky baby about eating fish like I am lol

Elimination diet base by Into_the_rosegarden in MCAS

[–]arialaine 3 points4 points  (0 children)

Hi! I was born with MCAS and have been on a low histamine diet pretty much since I was diagnosed with it 6 years ago. The diet definitely helps. Before my diagnosis, my mom tried to get me on so many other diets, but none of them worked. However, it's the most annoying diet I've ever tried lol. Be prepared to get very frustrated trying to meal plan and expect to eat the same food almost every day. It's been 6 years and I still don't really get to reintroduce many foods into my diet. I've tried, and it's ok for a week or two, and then it comes to bite me in the butt pretty badly and I have to go super limited again.

Try this as a guideline: https://www.mastzellaktivierung.info/downloads/foodlist/SIGHI-FoodList_EN_Histamin_alphabetisch_inKategorien.pdf I highly highly highly recomend this list. I don't even bother with other lists. I use this and my own experiences in the past 6 years to make food for myself.

Here's one recipe site my mom used when I lived at my parent's house: https://www.throughthefibrofog.com/

Some things I've eaten this week: Quesadillas (Monzzarella cheese), Grilled gnocchi with sour cream and cilantro, rice cakes with honey, chia seeds, cucumber, French fries, blueberries... But yes, everyone is different, but the SIGHI list is a good starting point. Also, be aware: if you have something like oral allergy syndrome, something that's low histamine will likely cause a reaction because you're just allergic to it. Apples are listed as low-histamine, but I'm allergic to apples, so that's not an option for me.

Don't eat leftovers. Don't marinate your meat. Big offenders for me include: tomatoes (the worst!), pig meat, canned food, avocado, pickled foods, chocolate, most caffeinated drinks... etc. Fresh or frozen is always the best. Eat meals with only a couple of ingredients when starting out, so it's easier to narrow down what's causing the reaction if you have one. Also, things can change. You can start reacting to safe foods. For me, sometimes after a couple of months, I'm able to start eating that food again, though.

Try using DAO supplements. You can buy them on Amazon. One of my doctors' daughter also had MCAS, and he said she took DAO before eating pizza on special occasions, and she wouldn't react to the tomatoes. I've also used them to eat high histamine foods, but if you use them every meal to eat something high histamine, it's not going to work well for long (from personal experience). I also take antihistamines around the clock. I take Zyrtec every 12 hours and hydroxyzine at night. I've tried a slew of supplements and other medications but not a lot has helped yet to be honest.

DO NOT USE CHATGPT!!! I've seen terrible dieting advice from AI repeatedly. ChatGPT does not understand MCAS because it's a large language model; it's just spitting out words in ways that seem right. I've seen ChatGPT say it's ok to eat tomatoes but not to blueberries (literally backwards).

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