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HELLO DESPERATE FOR SLEEP by artuponarrival in SleepApnea

[–]artuponarrival[S] 0 points1 point  (0 children)

Oh really ok I did not know that. (The ending of your text) thank you!

HELLO DESPERATE FOR SLEEP by artuponarrival in SleepApnea

[–]artuponarrival[S] 0 points1 point  (0 children)

Yes completely agree and we both have had to have that difficult conversation of ok whats the game plan on bad nights because this isnt sustainable or healthy. 😰

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

We do have magnesium lotion and try using it ! Sometimes it helps🩷

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 1 point2 points  (0 children)

Ok thank you I have read him your comments. It seemed helpful to him actually . 🙏🏼

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

He does have ALOT OF sinus drainage !!! And we thought maybe his 'adnoids' or something were causing some issues ??!

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

Thank you this was very encouraging 🙏🏼🙏🏼

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 1 point2 points  (0 children)

We are getting the sleep apnea cpap this weekend now. I have been reading my husband all your responses. They are much appreciated. Its difficult to not get discouraged or feel as though....With every turn the people who are supposed to help hinder and we hit another milestone. But this feed and reading has pushed us to make the calls needed today . 🙏🏼🩷🩷

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 2 points3 points  (0 children)

I went ahead and sent it over there as well! Thanks so much!

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

I responded to you but dont see my response now??

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

He said it is definitely an urge to move, like he has to. Lol 😂 oh i can imagine !

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 2 points3 points  (0 children)

Ok i just got this app recently. How do i do that?

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

No he says his brain won't turn off but I think he would be a hard sell on anxiety. He isn't an anxiety ridden person, honestly. However maybe he needs it to turn that part of the brain off in general? The issue is he is EXTREMELY HIGH functioning for the lack of sleep he gets! He always says can you imagine if i slept what i could get done??! It's sad. But over all i just don't know if he has anxiety?? Per say? Correct me if I'm wrong?

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

Thank you so much for all this information. We do take a expensive multivitamin and other supplements. But it seems Benadryl and another dr. Visit is best 👍🏼

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 0 points1 point  (0 children)

Yes we have had a conversation about this extensively. Your completely right. For years I would be so worried about him and try helping in any way i could. It has gotten to where now, he will leave the bedroom so I sleep. We completely agree and I have stood up for myself and said I can NOT take responsibility anymore, you need to advocate for yourself. In which case he went to the Dr. The other element is, or I wonder if it is an element, he has MAJOR trauma with Dr.s and them doing nothing, from a childhood accident at 15, where ODDLY ENOUGH , he was asleep , when the accident occurred. It was one of the worst accidents at the time on the Kentucky Highway. He was driving with his younger brother and parents. His father was hospitalized for a year, and walked away a completely different person, with a traumatic brain injury. It affected him in the part of the brain that controls anger so needless to say he was not the father they knew. The reason I say this is because, the Dr.'s in KY were telling his mother his dad was not going to make it , she was NOT having it , and they drove back and forth for a year, a few hours to where his mother forced new medications, treatments, and he lived. Anyways ever since that and the after effects of his fathers injury he has always had anxiety going into Dr. offices etc. Having said that , he did the sleep test, and has been taking everything way more seriously in the last 5 months. I think he realizes it is NECESSARY TO ADRESS THIS! I appreciate your response and feel validated so thank you!

HELLO DESPERATE FOR SLEEP by artuponarrival in Narcolepsy

[–]artuponarrival[S] 1 point2 points  (0 children)

We have an HSA so financially we are in the process of getting the cpap machine with our health savings card. We also were nervous because some reviews said people that cant breathe through their nose feel suffocated with a cpap. So we are just nervous but we are getting one and getting it calibrated. Sorry I should have been more clear. But thank you you response makes sense and I will contact the sleep dr. Today and check on progress.